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Hair loss and Bronchiectasis

Posted by Beth Kiefer @mrf5629, Sep 18, 2020

My doctor has me doing nebulizer treatments twice daily (or more if coughing a lot) with Ipratropium Albuterol, 3% sodium chloride, and budesonide. After a couple weeks my hair started falling out in much larger amounts. Has anybody else experienced this or have a guess about why? Is it the nebulizer treatments or my lower oxygen levels causing it? Or stress?

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terrimn | @terrimn | Feb 5 10:20am
In reply to @barnettk18 "Hi Beth. Before being diagnosed with Bronchiectasis I had pneumonia for at least 6 months, didn't..." + (show)
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Hi Beth. Before being diagnosed with Bronchiectasis I had pneumonia for at least 6 months, didn't know it (go figure), and lost weight and hair by the gobs. My dermatologist noticed the hair loss and prescribed Minoxidil. A year later my hair is thicker than I ever remember and my blood pressure is slightly lower than usual.

I'm trying to find the very best bronchiectasis doctor our country has to offer. Anyone happen to know???

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@barnettk18 Hi there! MN gal here so I choose to have Mayo Rochester oversee my care. However, my ID doc, pulmonologist, cardiologist, audiologist, and ophthalmologist are all at UMN in partnership with Mayo with their labs/sputum sent to ARUP in Salt Lake City. My choice was based on teaching
hospitals as I've found they stay most up to date on ACT, PD, and meds. As a retired microbiologist and organic chemist, Mayo Rochester is the best choice for me.

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barnettk18 | @barnettk18 | Feb 5 12:55pm
In reply to @terrimn "@barnettk18 Hi there! MN gal here so I choose to have Mayo Rochester oversee my care...." + (show)
Profile picture for terrimn @terrimn

@barnettk18 Hi there! MN gal here so I choose to have Mayo Rochester oversee my care. However, my ID doc, pulmonologist, cardiologist, audiologist, and ophthalmologist are all at UMN in partnership with Mayo with their labs/sputum sent to ARUP in Salt Lake City. My choice was based on teaching
hospitals as I've found they stay most up to date on ACT, PD, and meds. As a retired microbiologist and organic chemist, Mayo Rochester is the best choice for me.

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@terrimn good advice. Thanks. I am going to try Mayo in Arizona in the spring. Appreciate the info. Stay healthy.

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barnettk18 | @barnettk18 | Feb 5 1:03pm
In reply to @kamarla "@barnettk18 hi, wonderingbwas the minoxidil topical or pill form? thanks" + (show)
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@barnettk18
hi, wonderingbwas the minoxidil topical or pill form? thanks

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@kamarla pill form is best.

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kris2468 | @kris2468 | Feb 5 3:15pm
In reply to @barnettk18 "Hi Beth. Before being diagnosed with Bronchiectasis I had pneumonia for at least 6 months, didn't..." + (show)
Profile picture for barnettk18 @barnettk18

Hi Beth. Before being diagnosed with Bronchiectasis I had pneumonia for at least 6 months, didn't know it (go figure), and lost weight and hair by the gobs. My dermatologist noticed the hair loss and prescribed Minoxidil. A year later my hair is thicker than I ever remember and my blood pressure is slightly lower than usual.

I'm trying to find the very best bronchiectasis doctor our country has to offer. Anyone happen to know???

Jump to this post

@barnettk18 National Jewish Health in Denver is Mecca and Dr Charles Daley is the top doc in this field. I am going there for seven clinical days February 16. It’s a major effort but my docs at Mass General Boston will follow their protocol. Mass General is a center of excellence for BE and NTM but they are not as thorough as NJH.

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