Hair loss after transplant, probably Tacrolimus: Anyone change meds?

Posted by hello1234 @hello1234, Mar 26, 2022

In the beginning, my hair loss seemed minimal and I took Biotin supplements. Now, approaching my 2nd anniversary for my kidney transplant, my hair is coming out in gobs. I believe it's probably the Tacronlimis. If you had this problem, what did you do to solve it? Rogaine for Women, Hairmax laser comb, change your medication, or something else? Please let me know your experience (I think I am going bald).
Many thanks!

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randallscott1 | @randallscott1 | Oct 14, 2023

In reply to @kandidubrall "Yes if your pain is on left side, you need a stool softener but ask your..." + (show)

Yes. I basically had to relearn to walk after my transplant. I’m 3 years in and so grateful for my new life. It takes work but strength will return. Just have to realize our new normal is great. Slow and steady.

Rosemary, Volunteer Mentor | @rosemarya | Oct 13, 2023

In reply to @texastxp "Daily I learn a new limitation, but I still can tell I’ve gained more strength in..." + (show)

@texastxp - I know you are happy to actually see and feel your improvement! I like your improvised home gym!

texastxp | @texastxp | Oct 13, 2023

In reply to @rosemarya "@texastxp, I hope you are continuing on your recovery with slow but steady steps forward. Medicine..." + (show)

Daily I learn a new limitation, but I still can tell I’ve gained more strength in my upper and lower body. I’ve been going for longer walks and going upstairs to my bedroom is much easier. I’ve been using my wife’s 2 pound dumbbells when watching TV for upper body strength and I use an aerobic stepper for a lower body workout.

texastxp | @texastxp | Oct 13, 2023

In reply to @kandidubrall "Yes if your pain is on left side, you need a stool softener but ask your..." + (show)

Reglan before every meal made a huge difference. I feel much better now

Rosemary, Volunteer Mentor | @rosemarya | Oct 11, 2023

In reply to @texastxp "I’ve been home for 2 weeks. Besides the lack of strength in my legs; which I’m..." + (show)

@texastxp, I hope you are continuing on your recovery with slow but steady steps forward. Medicine changes are to be expected for a while. It is wonderful to have a transplant team for guidance, isn't it?
Walking is good, and be alert to your body for any signs of overdoing it. I had to gain leg strength , too, after my transplant was using a wheelchair/walker before my transplant due to my pre transplant condition.

Texastxp, As you become more mobile, you will be faced with many challenging adventures as you return to your favorite activities. I want to share this Transplant Support Conversation with you:
- Living Life after your Transplant
https://connect.mayoclinic.org/discussion/living-life-after-your-transplant/

kandidubrall | @kandidubrall | Oct 10, 2023

In reply to @texastxp "I’ve been home for 2 weeks. Besides the lack of strength in my legs; which I’m..." + (show)

Yes if your pain is on left side, you need a stool softener but ask your team

kandidubrall | @kandidubrall | Oct 10, 2023

In reply to @texastxp "Anyone since the last post found anything that may help men with hair loss? I’m new..." + (show)

Yes hair loss is very common, I cute my very short, I have many bald spot

texastxp | @texastxp | Oct 4, 2023

In reply to @rosemarya "@texastxp, Welcome to Connect and Congratulations on your liver transplant. You have certainly had a busy..." + (show)

I’ve been home for 2 weeks. Besides the lack of strength in my legs; which I’m working on, I’m having some stomach pain. They believe I’m backed up and we’ve made some changes to my meds yesterday during my follow up. Hopefully that gets resolved here soon.

Rosemary, Volunteer Mentor | @rosemarya | Oct 3, 2023

In reply to @texastxp "Anyone since the last post found anything that may help men with hair loss? I’m new..." + (show)

@texastxp, Welcome to Connect and Congratulations on your liver transplant. You have certainly had a busy couple of months and I hope that you are healing and will be soon returning to some of your normal/pre liver failure/transplant activities!
My transplant was in 2009 when I received a liver and kidney at Mayo Rochester. Unlike you, I had one surgery for both organs. And like you I have a white head of hair. It was mostly white before my surgery because I have vitiligo which also causes nonpigmented areas of skin that don't tan. This has been active since I was in 5th grade. (I'm mid 70's now) Mom and Grandpa also had white hair, My dad, however, and his dad were bald, as are a couple of my brothers, and now one of my sons. None of them have had a transplant, and are not taking immunosuppressant meds. My hair did get wirey during my liver failure, and it thinned after my transplant surgery. but it was temporary. I was I wish that I had some hair ideas that I could share with you.

How is your recovery coming along? Are you at home now?

chickytina | @chickytina | Oct 3, 2023

There was another conversation regarding this. However, I also tried Biotin with no postive results. I switched over to BioSil and this has helped a lot. I still have a couple of spots that are not as thick and I am trying The Ordinary multi-peptide serum for hair density (my salon recommended this to me), but still taking the BioSil. The BioSil is also good for your nails and skin. I cleared it with my transplant team prior to taking though.