Hair loss after transplant, probably Tacrolimus: Anyone change meds?

Posted by hello1234 @hello1234, Mar 26, 2022

In the beginning, my hair loss seemed minimal and I took Biotin supplements. Now, approaching my 2nd anniversary for my kidney transplant, my hair is coming out in gobs. I believe it's probably the Tacronlimis. If you had this problem, what did you do to solve it? Rogaine for Women, Hairmax laser comb, change your medication, or something else? Please let me know your experience (I think I am going bald).
Many thanks!

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Profile picture for bencures @bencures

Thank you so much for your reply. Did you take any supplements or use any special kind of shampoo? Also I’m on Tacrolimus taking 2mg twice a day.

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I did not take anything or use a special shampoo. I just waited it out and it did return. I also take Tacrolimus 2 mg twice a day.
I’ve always had pretty full hair and I don’t think anyone noticed like I did.

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Profile picture for mollyv @mollyv

@bencures i had a lot of hair loss for the first year after my transplant. I think it’s from the trauma of a major surgery. I was worried too, but in time it went back to normal.

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Thank you so much for your reply. Did you take any supplements or use any special kind of shampoo? Also I’m on Tacrolimus taking 2mg twice a day.

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Profile picture for bencures @bencures

Post 4 months kidney transplant and I just started having hair loss. It has been very worrying. when I blow dry or comb my hair I lose around 100-200 strain of hair. I have been approved to take biotin from my coordinator. May I know if anyone had their hair grow back ? And what level of hair loss did you guys experience? Close to balding ? Or major thinning etc..

Thank you!

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@bencures i had a lot of hair loss for the first year after my transplant. I think it’s from the trauma of a major surgery. I was worried too, but in time it went back to normal.

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Profile picture for yani2023 @yani2023

Yes, Tracolimus does a number on hair. After kidney transplant in Dec 2022, hair also fell out in chunks. IT was frightening and yet thank goodness for hair wraps dealing with this situation made it more bearable. Only things was that people automatically assumed I had Cancer and was doing chemo.

Boitin in my opinion does nothing. This is only my opinion. IT maybe different for others. Generally according to my nephrologist team of doctors hair will start to regrow after 5-6 months. This may vary from person to person. IF trying biotin , I found the vitamins perhaps worked better to kick start hair growth.

Don't be surprised I hair comes. out curly. Yes. perhaps rare but it happened in my case. I also have jet black hair and it grew back silver grey. I wasn't psychologically ready to be grey but grateful hair grew back. A few months of adjustment yet I am ok with it now. Once your meds are reduced, yes this make a great deal difference. Tremors also subside. NOT go away completely yet more tolerable. Best of luck and hopefully if my number are normal my doctors will wean me off prednisone. Best of luck. Spring is around the corner and things will get better especially being able to go outdoors.

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Hi there, may I know what vitamins did you take to help hair growth? And also and what month did you start experience hair loss and when did your hair start growing back?

Thank you so much!

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Post 4 months kidney transplant and I just started having hair loss. It has been very worrying. when I blow dry or comb my hair I lose around 100-200 strain of hair. I have been approved to take biotin from my coordinator. May I know if anyone had their hair grow back ? And what level of hair loss did you guys experience? Close to balding ? Or major thinning etc..

Thank you!

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The transplant pharmacist told my transplant team that the Biotin was too taxing on my liver with all of the other meds that I was on. I also had an issue taking Turmeric, because it boosts your immune system. Double check with your transplant pharmacist prior to taking Biotin or any other OTC meds or supplements. There is an oil from Origin that helps grow back hair that is atopic, so it won't interfere with any of the meds that you are taking.

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I am having the same issue, it will be 2 years since my transplant in July of this year. I started taking Biotin last year as well as using an Rosemary , peppermint exilir on my natural hair. After a few months of using the exilir I have noticed some growth in the middle where it was getting thin but I also cut off all my dead, split ends which helped also.

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Profile picture for Rosemary, Volunteer Mentor @rosemarya

@blbird33
I don't know about shampoo, however I used oral biotin tablet/capsule. My dermatologist suggested the amount and my transplant team okayed it.
As for shampoo, my hairdresser who took care of cancer patients, recommended a gentle shampoo that she used and sold to them. I don't remember the name. Do you have such specialty beautician/hairdresser near you as a resource?

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I use a wild mint shampoo and conditioner that I order online.

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Worrying about having your hair thinning, or not being able to eat out when that was all you did, are all strange ways to react to a transplant. Your life has changed, it is not the way it once was and will never be. Now you have to take care of the body you have. You cannot live in the past, thinking that the transplant would make you able to do and be who you once were. That book has now closed or slammed shut. It is time to learn how to be the new you and take care of the body that you now have. Don't worry about the small things, wigs are fun to wear. I did it, 3 times, when I had my chemotherapy. Eating out is just a waste of time and money. Grocery stores sell frozen meals you just microwave. I find that most of these meals have too much fat, salt, and sugar in them, which we can't have. I buy frozen vegetables, that I like, cooked protein, no beef, put them in a microwave dish add some water and spices, no salt. Cook them 3-5 minutes and I have dinner. Everyone can do the same thing using other ingredients and they have their dinner. I like canned fruits rather than fresh, because I am unable to digest the skins, and the fruits in a glass jar can go into the refrigerator. You have to learn to live with your new body and take care of it or you may loose it. Good luck. mlmcg

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Profile picture for blbird33 @blbird33

I never thought of celebrating the anniversary! I will have to think about what I want to do to celebrate. I am so grateful for family, friends, and the hospital and all who helped me get this far in recovery and thriving. Blessings, BB

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Here are some ideas that others have shared:
Happy "Transplantiversary"!
https://connect.mayoclinic.org/discussion/happy-transplantiversary/?

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