Hair loss after transplant, probably Tacrolimus: Anyone change meds?

Yes hair loss, still on tact , at least I don’t have cancer any more

Fatigue and balance issues along with brain fog have been my biggest problems. I have ways of coping that have become just routine and I am very happy with my progress. I still have days where I just simply don’t feel well. Pretending to feel better than I do can be daunting. I’m not complaining, My liver failed after three years with cirrhosis suddenly. Never got on the transplant list and had only hours to live when the ambulance arrived. The MTs would barely speak to me when they saw my condition. I was in critical condition for 2 days when we got a donor liver. With the help of family and friends I have survived. My liver team has helped tremendously. I was recently introduced to this site and will enjoy reading about others’ journeys.

@muddlycrew, Thanks for the giggle. It is contagious, even via our online connection.

On a more serious note, from my experience as a recipient, I assure you that the current challenges are partly caused by your new medication routine. As time passes, you will gradually adjust to your new "normal". I would be happy to connect you with others who have shared their own adjustments and helpful tips, too. What is your biggest challenge?

I’m sure you are wiser and beautiful!!! Thanks for the giggle. I love humor as we deal with such a life changing event. I’m 5 months post transplant and as I deal with hair loss, memory challenges, unexplained weight gain, learning what I can and cannot ingest, etc., I welcome humor every step of the way. As Jimmy Buffet said, if we couldn’t laugh we would all go insane. Thanks for all the posts on this chain everyone!

I don’t really know how to post pic but believe me I’m old and ugly. Ha ha. 3 years transplant.

I am always amazed by the support that all of us give and receive by participating in these transplang support groups. I am also amazed at the way a conversation like this one began with discussion about hair loss - and - has evolved into encouragement in addition to hair loss after transplant.

I would like to invite you to share a photo of hope.
- Snapshots of hope: Life on the other side of transplant
https://connect.mayoclinic.org/discussion/snapshots-of-hope-life-on-the-other-side-of-transplant/
.
What photo do you have that wouldn’t exist without your transplant?

@randallscott1, @texastxp, @kandidubrall, @chickytina, @crystalfaye, @brendag60

Yes. I basically had to relearn to walk after my transplant. I’m 3 years in and so grateful for my new life. It takes work but strength will return. Just have to realize our new normal is great. Slow and steady.

@texastxp - I know you are happy to actually see and feel your improvement! I like your improvised home gym!

Daily I learn a new limitation, but I still can tell I’ve gained more strength in my upper and lower body. I’ve been going for longer walks and going upstairs to my bedroom is much easier. I’ve been using my wife’s 2 pound dumbbells when watching TV for upper body strength and I use an aerobic stepper for a lower body workout.

Reglan before every meal made a huge difference. I feel much better now