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Hair loss after transplant, probably Tacrolimus: Anyone change meds?
In the beginning, my hair loss seemed minimal and I took Biotin supplements. Now, approaching my 2nd anniversary for my kidney transplant, my hair is coming out in gobs. I believe it's probably the Tacronlimis. If you had this problem, what did you do to solve it? Rogaine for Women, Hairmax laser comb, change your medication, or something else? Please let me know your experience (I think I am going bald).
Many thanks!
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Thank you @l0lag0lag0b3 😊 I think my meds may need to be adjusted to resolve my BK, and protect against rejection. I am hearing 5mg Prednisone and stopping the Mycophenole may be the next adjustment. I have lab work tomorrow to double-check my creatinine level and BK viral load. Thank you again for always being there for me!
Yes @hello1234 5mg daily.
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2 Reactions@hello1234 Ah but the glowing report was on my head, not the hair. Smooth, no bumps or wrinkles. She said most men can't pull off a buzz haircut. Now, hair loss and a buzz cut have to be easier on a man. I can't imagine the challenge if a woman is losing her hair.
Best always,
s!
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2 ReactionsThank you @l0lag0lag0b3 😊
Do you take Prednisone too?
Take my meds after breakfast & Dinner from day 1 of transplant (Reco. from Transplant team)
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2 ReactionsCongrats @scottij 😊
It's always so great to hear from you! Happy to hear your #1 buzz cut went so well and your barber had such a glowing report of your head of hair!
Just got my regular #1 buzz at the barber because the semblance of hair is no longer there after the transplant. Happily, the new barber said, "You have a beautiful head. It is perfect for a close buzz." And it is really easy to manage!
best always,
s!
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2 ReactionsHi @l0lag0lag0b3 😊
It is great to hear from you!
You are giving excellent advice! You are correct that the transplant team knows "the scoop" about the donor match, etc.
Do you take your Tac with or without food (5 to 7 level)? Are you also taking 5mg Prednisone and 500mg bid Cellcept?
Hello @bobinnevada
In regards to Tacrolimus 6-8 levels, I would abide by Transplant Team recommendation as they are aware of all the different variables they encountered in decision making during the transplant.
I have completed 3.5 years my Tacrolimus range is 5-7 and take 1.5mg of Tacro/day. & I have accepted that as a maintenance dose. I would be happy with Tacro dose got reduced to 1mg but I was told if ever I encountered a rejection episode.. it is tough to deal with that as time advances.
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2 ReactionsHi @bobinnevada 😊
My local nephrologist also said 4 to 6 is fine and the transplant team said 6 to 8. When I spoke to the local doc office, they told me that you don't have to panic if occasionally you see a 4 or 5 in the mix.
My girlfriend had both of her PKD native kidneys removed after 1 year and things went very well. She was very nervous too, but everything turned out to be fine and the timeline the hospital gave her for recovery was shortened. She was home much quicker!
I have been dealing with BK for five months now. My Mycophenolate was reduced to 250mg bid, but not stopped. I don't take any Predisone. This week, my creatinine is up and GFR is down. I am going to be retested to confirm the numbers.
Not sure, what the next med adjustment is going to be. Maybe I will need a biopsy to determine rejection from reduced immune suppression or BK nephropathy. Not sure what the cause of the rise in creatinine is at this point.