Hair loss after transplant, probably Tacrolimus: Anyone change meds?

Hi @bencures I had a liver transplant 9 months ago, I started loosing hair in handfulls. I was starting too see bald spots. At my 4 month check up, I was told it was most likely due to Fluconozale, I thought it was tacrolimus too. I was given the ok to take "hair, skin & nails" which has biotin. I also started using mielle - rosemary mint strengthening shampoo. It took some time but my hair stopped falling out and seems to be growing back. Good luck to you!

I had a kidney transplant about two years ago. I lost most of my blonde hair the first year. The second year, it started growing back, but now it is gray, and a different texture. I’m happy I have some hair, but the Tacrolimus still causes hair loss. I take multiple vitamins, and use multiple shampoos and conditioners. It takes awhile to find out what works for you. Your hair might not be the same, but you will be able to make it look good.

I was taking Biosil after my transplant to combat the hair loss (lost about 1/2 my hair). However, my transplant pulmonologist checked with the transplant pharmacist and found that Biosil boosts immunity. So I stopped taking it right away. Every time that your body has a shock like having COVID (first time I lost half my hair) or having a transplant (lost another half before getting it back from the first time), you can loose hair. I have used The Original Hair Serum, which is topical so no issue with boosting immunity. I am not sure if it really does anything though. However, your hair will come back in. It is a natural process for your hair to fall out when the body is in "shock". Unfortunately, mine came back in with a bit of a different texture and drier than before.

I did not take anything or use a special shampoo. I just waited it out and it did return. I also take Tacrolimus 2 mg twice a day.
I’ve always had pretty full hair and I don’t think anyone noticed like I did.

Thank you so much for your reply. Did you take any supplements or use any special kind of shampoo? Also I’m on Tacrolimus taking 2mg twice a day.

@bencures i had a lot of hair loss for the first year after my transplant. I think it’s from the trauma of a major surgery. I was worried too, but in time it went back to normal.

Hi there, may I know what vitamins did you take to help hair growth? And also and what month did you start experience hair loss and when did your hair start growing back?

Thank you so much!

Post 4 months kidney transplant and I just started having hair loss. It has been very worrying. when I blow dry or comb my hair I lose around 100-200 strain of hair. I have been approved to take biotin from my coordinator. May I know if anyone had their hair grow back ? And what level of hair loss did you guys experience? Close to balding ? Or major thinning etc..

Thank you!

The transplant pharmacist told my transplant team that the Biotin was too taxing on my liver with all of the other meds that I was on. I also had an issue taking Turmeric, because it boosts your immune system. Double check with your transplant pharmacist prior to taking Biotin or any other OTC meds or supplements. There is an oil from Origin that helps grow back hair that is atopic, so it won't interfere with any of the meds that you are taking.

I am having the same issue, it will be 2 years since my transplant in July of this year. I started taking Biotin last year as well as using an Rosemary , peppermint exilir on my natural hair. After a few months of using the exilir I have noticed some growth in the middle where it was getting thin but I also cut off all my dead, split ends which helped also.