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Hailey-Hailey Disease
I have a painful and itchy hereditary skin disease known as Hailey-Hailey. I am 78 years old and it has gotten much worse as I age. Before I fell twice in the last few months I was seeing my dermatologist every two months; now I talk to him on the phone or leave a message about my condition and prescription needs. The worst place on my body is between my legs and behind, causing horrible pain when I sit or try to get in and out of a car. I have the blisters, whelps, crusting, raw skin, and bleeding over much of my body and everything (clothing, bedding) hurts my body. Have had the disease in between legs/behind for 18 months; it gets a little better, then worse again and when urine touches it, I sometimes cry or almost scream. Do any of you or someone you know have HH?
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I’m a 55-year-old female. I was diagnosed through a punch biopsy via Mayo Clinic when I was 28 years old I inherited this disease from my dad’s side of the family. I was actually the first one to get an official diagnosis in 1998. I have tried so many oral medications and topical medications throughout the years.
There were about 200 different dermatologist that came to see me as I was part of a clinical study. They all said to try bleach baths I was surprised, but they actually worked to alleviate the disease. You fill your bathtub up with warm water and put one cup of bleach in it and soak for 20 minutes rinse off quickly pat to dry. Hope this helps!