1. < Polymyalgia Rheumatica (PMR)

Had Shingles shot and now have PMR

Posted by terre @terre, Apr 1, 2019

The shingles shot has now been replaced with a new one that is giving in two doses. I had the shingles in 2014, but since you can get them again I had the shot. Now I have been diagnosed with PMR. The original shot has PMR as a possible side effect. I was never informed of that possibility.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

grandmaR | @grandmar | Jan 23, 2021
In reply to @karinaph "These “disabilities” that have developed for you and me and so many others really give me..." + (show)
@karinaph

These “disabilities” that have developed for you and me and so many others really give me the perspective of those who live with serious disabilities, humbling. Sorry that you sustained permanent nerve damage. That is the one thing that really has made me think about surgery too. A good friend warned me about ignoring it, as he did and he has to use a cane and has foot drop due to the nerve damage. I guess this is a discussion for a different site. But it does center on “inflammation” to some extent. I’m trying to lower my inflammatory foods etc that can exacerabate it true inflammation. Are you able to do water therapy, ie spa/hot tub? It is a real game changer for me, plus my son introduced us to a post workout tool called a theragun. It is basically a percussive massager that really makes you feel soooo much better, increases blood flow, and likely lymphatic flow. He’s a competitive runner and use it post work out. It’s really a great addition. Maybe it could be of help. Not inexpensive but really worth it. Hope you can get out there in whatever capacity. Trekking sticks are a wonderful way to support yourself too.

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I do go for theraputic massages, which are great!
I live in Florida and have a pool.
When it is warm outside, I go in every day.
I always tell my hubby how I feel "normal" when I am in the water.
I swim and do all sorts of exercises including jogging.
In the mornings, I do the treadmill.
All this exercise does not seem to make a difference as far as strengthening my leg muscles.
I also have neuropathy an my big toe, on my right foot is dead, so it drops and will sometimes make me trip if I don't make sure I am lifting my feet when I walk (it gets caught when it drops).
Waiting for the weather to warm up so we can get into the pool!!

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jan 23, 2021
In reply to @grandmar "@karinaph You are certainly right that getting older takes courage and patience! I waited for a..." + (show)
@grandmar

@karinaph
You are certainly right that getting older takes courage and patience!
I waited for a long time for surgery, too.
I had to take an early retirement because of my lingering eye issues and the pain from my back.
I hardly walked in 3 years!
I did all the non-invasive things, too, but they didn't work.
After I retired we moved to a warm weather climate that helped, but not enough.
I had no quality of life and it was getting to me and unfair to my hubby (in MY eyes).
So, I searched out a neurosurgeon to see just how bad I was and what my options were.
Long story short, I waited so long for the surgery that I have been left with permanent nerve damage that has impacted my ability to walk like I once did. I need a cane and will not walk alone because I have fallen a couple of times and after spine surgery, last thing you want to do is fall. A fall could cause horrible results.
Anyway, I'm here and pushing along!
Enjoy your weekend!
Ronnie

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@grandmar I've always been amazed at your can-do spirit, Ronnie!

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grandmaR | @grandmar | Jan 24, 2021
In reply to @hopeful33250 "@grandmar I've always been amazed at your can-do spirit, Ronnie!" + (show)
@hopeful33250

@grandmar I've always been amazed at your can-do spirit, Ronnie!

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@hopeful33250
Thank you! That is so kind of you to say!!
Ronnie

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1 reply
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jan 25, 2021
In reply to @grandmar "@hopeful33250 Thank you! That is so kind of you to say!! Ronnie" + (show)
@grandmar

@hopeful33250
Thank you! That is so kind of you to say!!
Ronnie

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@grandmar
Just the truth, ma'am, nothing but the truth! 😃
(An old Dragnet line – you might not be old enough to remember when Dragnet was on TV. I'm undoubtedly dating myself here.)

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1 reply
grandmaR | @grandmar | Jan 25, 2021
In reply to @hopeful33250 "@grandmar Just the truth, ma'am, nothing but the truth! 😃 (An old Dragnet line - you..." + (show)
@hopeful33250

@grandmar
Just the truth, ma'am, nothing but the truth! 😃
(An old Dragnet line – you might not be old enough to remember when Dragnet was on TV. I'm undoubtedly dating myself here.)

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@hopeful33250
I am more than old enough to remember! LOL

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1 reply
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jan 25, 2021
In reply to @grandmar "@hopeful33250 I am more than old enough to remember! LOL" + (show)
@grandmar

@hopeful33250
I am more than old enough to remember! LOL

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@grandmar I'm glad to hear that. It is easier being old with company!

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seggink | @seggink | Jun 23, 2021

I had my first shingles shot in March 2021, developed PMR about 6 weeks later. I was a healthy 58 year old without any symptoms. I’ve been doing some research and many people seem to have the same side effects of the Shingrix vaccine…. I do not think I will get the second dose….

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Jun 23, 2021
In reply to @seggink "I had my first shingles shot in March 2021, developed PMR about 6 weeks later. I..." + (show)
@seggink

I had my first shingles shot in March 2021, developed PMR about 6 weeks later. I was a healthy 58 year old without any symptoms. I’ve been doing some research and many people seem to have the same side effects of the Shingrix vaccine…. I do not think I will get the second dose….

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Hi Seggink, welcome. You'll notice that I moved your message to this existing discussion where others have reported developing PMR after receiving the first shingles shot.

You are encouraged to report vaccine adverse events to the US Department of Health and Human Services. Visit http://www.vaers.hhs.gov to file a report, or call 1-800-822-7967.

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lizzier | @lizzier | Jun 28, 2021

I'm not a particularly brave person, and I did Phizer w/o complications, but I'm just not there for the shingles shot. I keep reading up on it, but it just doesn't seem worth it the way that my body reacts when I take new meds, and this seems like the grand daddy of them all. I'm weighing the options, and for now I'm opting out.

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Jun 28, 2021
In reply to @lizzier "I'm not a particularly brave person, and I did Phizer w/o complications, but I'm just not..." + (show)
@lizzier

I'm not a particularly brave person, and I did Phizer w/o complications, but I'm just not there for the shingles shot. I keep reading up on it, but it just doesn't seem worth it the way that my body reacts when I take new meds, and this seems like the grand daddy of them all. I'm weighing the options, and for now I'm opting out.

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@lizzier, My PMR is currently in remission but I had both Pfizer vaccines followed by both Shingrix vaccines with only the normal side effects – sore arm, some fatigue, etc…

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