Good evening all,
I am 59 year old healthy as a horse former collegiate athlete, and I was stricken in March of this year with GBS (Guillan Barre) and Adult ADEM (Acute disseminated encephalomyelitis) , requiring being placed on a vent, getting steroid, IVIG and plasma pharesys treatments.
20 days in hospital, 11 in rehab, now after almost 4 months getting better daily….my question is does anyone have any earthly idea of how many folks obtain both these maladies at once?
And any idea of what to be aware of?, avoid? The path forward? I've reached out to the GBS Society, Rare Disease Org, ADEM Support groups and i keep getting the same answer….getting just one of these is pretty rare, no one has numbers on folks getting both.