Grover's Disease: What works to help find relief?
I have been diagnosed with Grover's disease under my breasts. I had a biopsy for diagnosis. Tried topical ointment with no really good results. Any ideas?
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I never took oral (meaning pills) prednisone. Topical steroids did nothing. I got an annual corticosteroid shot, Kenalog 40 each Dec 1 for years which stopped my internal Allergic Contact Dermatitis internal symptoms of burning, itching and taser like stinging in its tracks but did not help with GD when symptomatic. The shots never shortened my recurring break out length or pain and itching with GD. Did you say you tried the cilantro smoothies yet? A 50% chance of cilantro helping you with GD is better than any chance you have of prednisone helping you. Forgive me if I repeat myself, but have you read our blog starting around mid March with the post by Kimass1 referring us to the earthclinic blog on GD with cilantro?
Side note, because of following a rigid anti-inflammation diet I didn't even get my Dec 1 2018 corticosteroid shot and will not need one again this year on Dec 1 2019. Of the many things I now must restrict or severely limit- zero processed sugar for life is hard to accept but a small sacrifice to feel good again. After 6 months of detoxing sugar holds no interest for me and now it's easy to pass it up. Sugar withdrawal lasts a long time and I am not willing to go through it again.
Have not yet tried the smoothies – was hoping to avoid the cilantro taste by swallowing a pill. I have contacted Kimass1 and read many of the comments by others, and now have a reasonable library from the blogs to work through. Many thanks for your detailed response. Best regards.
Oral Prednisone was the only thing that relieved my itch. I did not like the side effects of extended use, but would endure them not to itch. I gained about 8 pounds after a few months and my mood was affected…(I was bitchy..lol) BUT I was also miserable when I was itchy and didn't sleep so the trade off for me was ok. However, please know that extended use is different for each person and it is not recommended. The Cilantro was a life saver for me. If you are not one of the lucky ones, then you will need to read through all the threads and try, try try and try again each remedy.
I always wonder if you or others who resist cilantro because of the taste did or are not suffering as much as I was. GD was dramatically limiting my activities too. Desperately seeking pain relief which no px helped with I was eager to try anything, even if it wouldn't taste good. Ironically after 8 months now the taste is no longer offensive to me. I do add a pinch of Stevia. It simply tastes refreshing. Now it's a daily habit, my morning "tonic" with breakfast. You are reading the blog which kimass1 informed us about cilantro and has many of our tips on storage. This is the challenge. It is time consuming to shop for it, wash it, dry and store property if you want to keep it fresh for at least 5 days. I do keep some in the freezer if I run out, but rarely need to use it.
http://www.mercurygroversandparkinsonsdisease.com Interesting site connecting mercury to Grover's and Parkinsons
MariannJ- Your post is mind blowing!!!!! My sister and I both got GD in our mid 60's, my brother got Parkinson's in his mid 60's. We all had mercury fillings; my brother who went to bed sucking on Milk Duds went in one time for dental check up at age 10 and had 22 fillings My sister and I only have a few. No one else in our lineage that we are aware of had GD or Parkinson's. The connection between GD and Parkinson's does seem like more than coincidence.
Wow – I live only two miles from a coal burning power plant & my step-father died of Parkinson's
YOUTUBE.COM Grover's disease (Transient Acantholtytic Dermatosis): 5-Minute Pathology Pearls I don't know how to post a link to this site but I imagine you can go to YOUTube and type in the title. It is the pathology with a dermatologist giving a very good explanation of what happens to the skin and how to identify it.
@gardeningjunkie I also have had fillings in most of my teeth since early years due to an enamel deficiency and my teeth crumbling, even baby teeth. Hopefully, all those fillings are long gone. When I was a child all of the homes in our village were heated by coal. Don't know if that also counts.
I lived in an area with ideal weather, winter and summer for most my life and coal was not used anywhere. I only have 4 amalgam fillings and even though they have held up now for 60 years I considered having them replaced with gold or ceramic because of numerous metal allergies I have, but read that the removal process releases mercury and after all these years not much is leaching from the top. Did you have your had your fillings replaced?
I appreciate the informative sites you send us to and hopefully get to the YOUTube site soon.