Mayo Clinic Connect
I have been diagnosed with Grover’s disease under my breasts. I had a biopsy for diagnosis. Tried topical ointment with no really good results. Any ideas?
@kg7382 @gardeningjunkie – Thank you so much! I thought I would receive notifications when I get posts but didn't. I am so happy that I checked back today. Now, I feel more "normal" —:) as throughout my reading, I keep finding that this is related middle-aged men! The next important symptom that you mention which many articles do not and had me a bit scared is: pain! It seemed after this little red blotch appeared under my breast, I felt pain under the skin, almost like how shingles must feel and around (rib cage). Mine was located in the fold under my breast and almost more so upper abdomen (as the derm cited). I couldn't understand why this pain was there and of course, with the recent tiny calcifications in the ducts on my mammo, was beyond scared. When I visited the breast specialist this week, she assured me that they were not related. I am happy to know that the pain may have been associated with this little spot. It seems the punch biopsy (I have two sutures right now) removed the lesion. Of course, now I am a bit sore and pinchy in another way due to the biopsy! I hope it does not return but glad I can visit here to gain insight. One additional note: I recall late May, early June when this first appeared. I had performed some heavy duty gardening and became very hot. The fact this is located under my breast, even though I am not busty) makes sense that it would retain heat and sweat. Thank you all so much. I was filled with anxiety and I am sure that stress does not help anything.
One quick note, all. I have worn underwire bras for years. I recently read of women who experienced a weird rash from Victoria's Secret bras. I stopped wearing their bras, mainly because of the strong odor that arrives with their material but also worried the underwire would aggravate the condition. Have any women here changed their bras? Sorry for the double post; I should have edited which I will do in the future.
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What most Grover's ladies do is remove the bra as soon as possible at home and some just go braless in public if they can get away with it. I have found 100% cotton without the wrinkle free chemical process or stainguard chemicals or 100% polyester camp style shirts which are safe for me, those with 2 pockets over the breast do a fine job of covering the bralessness, but I am small busted. Also with Grover's either find some soft cotton loose fitting Hawaiian style Mu Mu's, grandma style housedresses. They are simple to sew your own as I first tried to order online the fabric was too coarse for my sensitive skin. The gathering of this style house dress allows me to go bra free without anyone noticing. The looser your clothing is the better. My image will become secondary to desire to live pain free. . Grover's is triggered by heat, sweat and friction/pressure. For a light cotton which is safe for me I order from The White Cotton Gown my nighties. 100% cotton, well made and airy, but they hold up for years. I'd had mine for 3 years and still no sign of wear. At the end of the day I love to put this nighty on even the lace is 100% cotton. I also have Allergic Contact Dermatitis and am allergic to elastics, spandex and blended fibers. Even my bras are 100% cotton with drawstring closures. If you are large busted this would be a problem. There are also 100% cotton panties sold at Cottonique, on line, with the drawstring closure. The main thing is now no pressure, so no tight elastic around your waist, torso and definitely no underwires. Grover's normally is located in front and back torso and has gotten as low as my waist in the back. This may sound shocking, but my gynecologist told me years ago to give up all panties as they trap heat and will breed yeast, an ongoing issue I have for a decade. I often wear a 100% cotton long slip under the mu mu's at home without the panties and yes my yeast issues have been minimal if at all. Yet I have also eliminated my diet which was rich in the fruit that breed yeast, so sad, but now eat safe fruit only. Also you mentioned Victoria Secret. First none of their fibers are safe for me, let alone the chemicals they add to their clothing. Also the underwire pressure will trigger your Grover's. Hang loose sister! I know Facebook has a Grover's site, but I don't have time for Facebook, but you would learn more from others.
Liked by Colleen Young, Connect Director, dazlin, gteach
@gardeningjunkie …those sites you mentioned for the white cotton is a huge help. Since my last outbreak of so called Grovers, my drs at mayo suggested wet wraps over my prescription creams. They said all cotton in white, like long John's or similar. I cant find anything that comes close. So I've used my husband's tea shirt, but haven't found bottoms. I'll surely look into the sites you mentioned.
So far, rashes are gone…just a few little red itchy ones pop up. Couple on my legs..that look like tiny blisters that watery fluid comes out if I nag it. Haven't had to use anything or take any meds…so far.
Glad I saw your post…stay well!
Normally Grover's doesn't manifest on legs. It is normally limited to torso but some cases have it extend to neck and down the upper arm. I looked at your profile and didn't learn if you have other forms of eczema. I have 3 different forms of eczema, Grover's is just one form. Have you been tested for Allergic Contact Dermatitis, ACD? Forgive me if I have already asked this. Your leg papules may be a form different than Grover's. ACD is related to allergic contacts like metals, dyes, preservatives, rubber elements and so on. Yet, your water filled blisters have me baffled, but for sure there is a reason. Could be related to none of the above. I did see on your profile an interest in blood cancers. I have or hopefully had leukemia, my chronic form, Adult Leukemia, CLL, after watching blood counts for 15 years it just started disappearing on it's own about 3-4 years ago. One of the 5 or 6 commonalities in Grover's is blood cancer like leukemia or lymphoma. I am wondering if your doctors want you to wear white cotton because it is dye free? The Cottonique clothing is not white, but the natural color, an off white, never dyed. The White Cotton Gown is bleached, but has never bothered my skin. I think they sell pj's, but I don't like the feel of anything around my waist when I sleep. A white t-shirt is a great substitute as a nightgown just make sure it is 100% cotton. I think Stafford from JC Penny's makes the softest and strongest.
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Liked by gteach
@gteach I did read on a few sites that sports bras can trigger the problem, so I am careful to wear them when I work out and then swap to something else. Mine seems to be related to the heat, sweat and moisture. So keeping things dry helps. I’ve been trying to read up more on diet but haven’t found any solid information yet. My family all did Whole30 earlier this year and seemed to help other inflammatory health symptoms for my husband but not sure there would be a link to Grover’s. Hope you are feeling better soon! Also for me the pain went away shortly after my treatment from the dermatologist.
@gardeningjunkie …haven't been tested for specific allergies, just prick test for environment, but previous biopsies showed hypersensitivity and a mix of cells that come with inflammation. This last bout of rashes has been the most severe along with feeling ill. Comes and goes on its own. Now this recent biopsy shows Grovers, with an already fading rash, but dr still wants a fresh biopsy of active rash. Dilemma to get me in on time. As for the suggestion on white cotton, that's only for times when I need a wet wrap. The garments get soaked in water, then rung out till damp. I apply steroid cream, then put the damp garments on. Of course they get cool, and its kinda icky, but I then put on my husband's big Terry robe over so I can at least sit on the couch, and stay comfortable . I'll say the coolness of the wet teeshirt actually felt relieving on the severe rash on my abdomen and back. Dr wanted me to do this 3x daily for 60 minutes. But, I only did it a couple of times since it was already on it's way out. About my blood condition…its a low grade MGUS. Very strange because I noticed a fatigue and body aches, hoarseness of my voice a couple months before, (happened many times over last 2years) and now my #'s on blood test have creeped up a bit. Nothing alarming, just needs monitoring. I dont think drs agree there's a connection to how I feel, but possibly, maybe can cause this rash.?? Yet, I know for a fact, those physical feelings that come over me, are NOT my normal. Even when I don't have the rash, I'm experiencing these symptoms. I'll go about my usual busy day, and then it just hits…I cant go anymore, start feeling real achy and super tired, my voice even gets weak. When I'm in this mode, could come and go over several months, I actually worry about entertaining and going out with friends…just not sure if I'll hold up. I know I covered alot here…hope I'm not getting confusing
Thanks so much for your informative replies!!
You do have an abundance of overlapping issues, quite a puzzle. 1. Not sure why the doc wants a second biopsy. My biopsy came back negative for GD, but the symptoms were abating. Still 100% certain I have it, as I am a classic case, even doctor agreed another biopsy with active breakout is unnecessary and we both figured it served no purpose. 2. MGUS, that's a new one for me but looked it up. It is interesting that some patients that develop MGUS later develop lymphoma. That is a tie in to GD, as lymphoma and leukemia are common indicators GD. 3. I can't wright strongly enough that you get the 5 Day Extended Patch Test. Do that first before you get a second GD biopsy. Is your doctor licensed to perform this test. I went to derms that were not licensed to perform this test and they never recommended it!!!! Still angry. I had to learn about this test on my own, like you and others desperately seeking answers for problems no doctor was able to help me with. Allergies could be the cause of skin sensitivities, this test literally saved my life. What have you got to loose? It is not comfortable for 5 days, but not painful except where you might have a severe reaction to a chemical of element activated on patch. For me multiple sites were at a plus 3 (highest reaction) and those were exceeding itchy, yet I gladly toughed it out desperate to get a name for my tormentors. It is absolutely impossible to guess what these may be as many chemical and even natural elements are added here and there into our daily contacts. However I don't believe it would be possible if you had a back torso rash GD breakout. 4. Fatigue- I felt fatigued from lack of sleep based on painful or itchy symptoms. Yet right now am symptoms free for all my forms of eczema and have not noticed any fatigue, but I get a good nights sleep. I will be turning 70 soon and must admit my normally hyper nature has slowed especially in the last few years. Getting projects finished takes longer and I need to get off my feet by 8 pm once dinner dishes are done, because my legs start aching, but I realistically think that is a part of getting old. I am not sure of your age.
Liked by dazlin
I looked up the Whole30 diet and it sure couldn't hurt. It's basically an extreme eczema diet, except with Karen Fischer's Eczema Diet plan (she seems to be the eczema guru) she will allow gluten free grains like quinoa, rice and others. She bases the gluten issues on a leaking gut, in which the undigested gluten in the intestine passes through the cell walls and into the bloodstream. This gluten is seen by our immune system as a poison and so it raises our histamine levels to try to kill it off these histamines, inadvertently raising our histamine levels to an inflammatory level. Karen also allows certain 'safe fruits', so some natural sugars are allowed if this fruit doesn't contain high levels of offending elements which she outlines. Karen's main focus is on the Atopic form of eczema, but this probably includes all forms. The Whole 30 diet would be seriously hard to maintain. With the KF diet I pick and choose, starting in baby steps until I noticed any difference. I have reduced gluten by 90% and have cut out aggravating fruits: grapes, citrus, stone fruits, berries, pineapple and others, but I eat lots of the safe others. I gave up all alcohol 2 1/2 years ago out of desperation from health issues, but substituted it with sugar, which previously held no interest to me. Giving up sugar is a killer, this will be a desperate act of last resort and still indulge desserts- a real no no, but since I symptom free now am not dedicated to" fixing what isn't broken."
@gardeningjunkie , I'm surprised you tested negative for Grovers. Its said to have a specific pattern unlike other rashes. That's why it was named after dr.Grover, who discovered it. Who really knows…just glad you've got some remedies that help you.
Thank you, all for your responses to my concerns! I really appreciate it. I am wondering if the pain may not be related but Fibromyalgia or others. I still feel there is pain but no rash where the punch biopsy was performed last week.
I am female and was diagnosed eight years ago when I was 40. I tried cortisone, but the spots never ever went away. Last year I had 120 spots on my upper body and they started appearing on my legs as well. After reading online about a person who cut out alcohol, sugar, wheat and milk and thereby cured himself I decided to try. First I stopped consuming dairy, and after a month 25% of my spots had disappeared, and the improvement plateaued. I then also stopped eating wheat (gluten) and after three months ALL my spots were gone! I still eat red meat maybe once a week and drink wine two days a week, so it seems like it was the dairy and wheat free diet that did the trick. After eight years of nonstop Groves disease it is now completely gone. I have removed 95% of all wheat and dairy and that seems to be enough to get rid of the spots. I have not taken any medicines or used cortocone creams at all, it was diet alone that made the difference.
Liked by JK, Volunteer Mentor
I am so happy for you to have found relief and what seems to be the cause. I am a very allergic person and now have 3 forms of eczema, Grover's being one. My first outbreak of Grover's started about 3 years ago and only lasted a year and after that would have about 3 months off and then the next break outs were about 6 months apiece. I can't imagine your suffering for eight years. Right now I am Grover's free which surprises me as it went away this time in August and heat for me is a trigger. However that said, I reduced my gluten by 90% about 8 months ago, then 3 weeks ago cut it out totally along with other carbsl. I did this because of yeast issues after reading several books on diet and leaky gut. I quit drinking alcohol 3 years ago thinking it would help multiple other issues and can't say it made any difference, but won't start back up. I know I eat too much fruit. Once I quit the alcohol I developed a sweet tooth. I consumed at least 5-6 pieces of fruit a day, gluten free but full of sugar. After more reading decided my yeast issues could very much be tied into sugar- both natural and processed. I've gone cold turkey cutting out all carbs, not just gluten free as they have natural sugar in them as well as all processed sugar and of course all fruit for 3 weeks now. I've never had a weight issue, but one can't help but loose weight and I do consume meat daily with tons of veggies (one has to eat something). I also have not cut back on dairy- yet anyway. I eat my probiotic yogurt and consume kefir with probiotics. The only cheese is not aged for long, so string cheese which is mozzarella I eat. Yet I know dairy has sugar in it so we will see.
Turning 70 in a few weeks I can say I have never felt better. Although I am normally energetic unless I've lost sleep due to eczema pain and itching, I am amazed at my even more abundant energy level. I feel great. All 3 forms of eczema are in remission right now. I am motivated to keep going, not only for the eczema but for my yeast issues which are 90% better. According to my reading if I can purge myself of all sugar for 2 months it can stop the fermentation in my digestive tract- stomach and intestines and slowly add back a moderate amount of "safe" fruits. Like you I am very motivated to keep up this way of eating. For some of us with food allergies or leaky gut these foods increase the inflammation in our bodies. The histamines which raise of inflammation are actually trying to fight off foods they consider poison and they sent out battalions of histamine warriors. Therefore if we cut back on the offending foods the histamine army won't' be raised.
You helped motivate me to stay on this diet. Thanks.
I guess it is important to know that it takes some patience. First the inflammation has to go away, and the the skin has to heal, so I think a minimum of a month is needed to assess any effect from a dietary change. Maybe more. I also thought it was important to share that I am not 100% compliant, I eat a scoop of ice cream or a piece of cheese or a cinnamon roll every now and then, and nothing happens. The spots don´t reappear just because I make a little exception; it is the total dose of irritating foods that is most important in my case.
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