Grover's Disease: What works to help find relief?

Posted by 43219876x @43219876x, Sep 23, 2016

I have been diagnosed with Grover's disease under my breasts. I had a biopsy for diagnosis. Tried topical ointment with no really good results. Any ideas?

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@elderly1

Thanks for sharing results from Miracle Oil creme.. Grover's has been a bother for~20 years and Witch Hazel only thing to help my itching. Had tried tea tree oil previously and no help, but for first time this year have had the disease on my back. Used the Miracle oil for a week and it is helping!

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Glad that it’s working for you. For the past couple of weeks I have been using a new product called Tea Tree Oil Face Cream made by Majestic Pure Cosmeceuticals and it has worked just as well as the Miracle Oil. It’s also less expensive. (You can find it on Amazon.) It contains ceramides and is a really good moisturizer too.

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@markopolo

Glad that it’s working for you. For the past couple of weeks I have been using a new product called Tea Tree Oil Face Cream made by Majestic Pure Cosmeceuticals and it has worked just as well as the Miracle Oil. It’s also less expensive. (You can find it on Amazon.) It contains ceramides and is a really good moisturizer too.

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Thanks for the update!

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@locutus

You might want to try one of the skin creams by CeraVe called Itch Relief Moisturizing Cream. That one has helped me more than others I have tried.

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Good evening @locutus, @elderly1, My dermatologist just introduced me to a new anti-itch cream named Dermeleve. We have been working on resolving my itch issues for a couple of years. I have described this treatment in the Skin Health group. @johnbishop has also added a post with the important contact information. Let me grab the links for you.
https://connect.mayoclinic.org/discussion/unexplained-itching/?commentsorder=newest#chv4-comment-stream-header.
https://connect.mayoclinic.org/discussion/what-do-you-do-for-neuropathy-itch/?pg=17#comment-652354
You can also just go to Dermeleve.com and place on order by phone or in writing. I have also called and talked with them about expectations and other treatment information.

Good luck to you …..If I could I would make sure that itching never, never attacked me again. It is worse than pain.
Where on your body does it have the most impact?

May you be both physically and mentally healthy.
Chris

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There are a number of "tree oil" and Miracle oil products and the do not contain the same ingredients. Can you be specific as to the product maker/name?

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@artscaping

Good evening @locutus, @elderly1, My dermatologist just introduced me to a new anti-itch cream named Dermeleve. We have been working on resolving my itch issues for a couple of years. I have described this treatment in the Skin Health group. @johnbishop has also added a post with the important contact information. Let me grab the links for you.
https://connect.mayoclinic.org/discussion/unexplained-itching/?commentsorder=newest#chv4-comment-stream-header.
https://connect.mayoclinic.org/discussion/what-do-you-do-for-neuropathy-itch/?pg=17#comment-652354
You can also just go to Dermeleve.com and place on order by phone or in writing. I have also called and talked with them about expectations and other treatment information.

Good luck to you …..If I could I would make sure that itching never, never attacked me again. It is worse than pain.
Where on your body does it have the most impact?

May you be both physically and mentally healthy.
Chris

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Thanks, Chris. I have no personal interest in promoting the CeraVe Itch Relief Moisturizing Cream, but it looks like the ingredients are somewhat similar to the one you and your dermatologist are working with. The CeraVe product costs about six cents per gram if bought on Amazon.com, whereas the Dermeleve product costs almost $1/gram if bought from their website…pretty huge price difference. However, if the itching is driving one crazy, whatever works is worth the expense! Thanks again for the information and best of luck to you.

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@bburg

There are a number of "tree oil" and Miracle oil products and the do not contain the same ingredients. Can you be specific as to the product maker/name?

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The product is called Miracle Oil Tea Tree Skin Creme made by Earthly Body in California.

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@locutus

Thanks, Chris. I have no personal interest in promoting the CeraVe Itch Relief Moisturizing Cream, but it looks like the ingredients are somewhat similar to the one you and your dermatologist are working with. The CeraVe product costs about six cents per gram if bought on Amazon.com, whereas the Dermeleve product costs almost $1/gram if bought from their website…pretty huge price difference. However, if the itching is driving one crazy, whatever works is worth the expense! Thanks again for the information and best of luck to you.

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Good evening @locutus, Thank you so much for your response. I appreciated the feedback. I know about the CeraVe products and have not tried them. The itch problem has taken over a big part of my medical life so I do feel that it is worth the expense for something that gives me relief within a few minutes and lasts for several hours. That gives me time to get my mental issues……also called stress…..to calm down and I do a better job of not scratching my skin.

How often does the "itch" cause problems for you?

May you be free of suffering and the causes of suffering.
Chris

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@artscaping

Good evening @locutus, Thank you so much for your response. I appreciated the feedback. I know about the CeraVe products and have not tried them. The itch problem has taken over a big part of my medical life so I do feel that it is worth the expense for something that gives me relief within a few minutes and lasts for several hours. That gives me time to get my mental issues……also called stress…..to calm down and I do a better job of not scratching my skin.

How often does the "itch" cause problems for you?

May you be free of suffering and the causes of suffering.
Chris

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I have the itching on a rather unpredictable time table. It is sometimes several times per day, or other times only several times per month. I have basically the same experience with the CeraVe Itch Relief product as you do with yours. About 2 to 5 minutes after I apply it, it starts giving me relief which lasts several hours. It's not foolproof, however, and on some rare occasions not even this product can handle the itch. I also sometimes use a prescription steroid cream, but I try to limit how often I resort to that. Sometimes that doesn't work either. Scratching works EVERY time if I do it hard enough, but then I;m left with a mess on my body for days or weeks. It's a frustrating situation.
CeraVe has several different creams and lotions, so if you ever decide to give this stuff a shot, make sure to get the "Itch Relief" formula. Best of luck!

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@locutus

I have the itching on a rather unpredictable time table. It is sometimes several times per day, or other times only several times per month. I have basically the same experience with the CeraVe Itch Relief product as you do with yours. About 2 to 5 minutes after I apply it, it starts giving me relief which lasts several hours. It's not foolproof, however, and on some rare occasions not even this product can handle the itch. I also sometimes use a prescription steroid cream, but I try to limit how often I resort to that. Sometimes that doesn't work either. Scratching works EVERY time if I do it hard enough, but then I;m left with a mess on my body for days or weeks. It's a frustrating situation.
CeraVe has several different creams and lotions, so if you ever decide to give this stuff a shot, make sure to get the "Itch Relief" formula. Best of luck!

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Hi there…..I will certainly stay in touch with you. Suffering is all I can say about the "itch". I will get some CeraVe….and give it a try. Do you also have an itchy scalp? I use a different product for my head and have made myself wash my hair more infrequently. Yikes….this is tough stuff.

May you be free, safe, and protected from inner and outer harm.
Chris

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@artscaping

Hi there…..I will certainly stay in touch with you. Suffering is all I can say about the "itch". I will get some CeraVe….and give it a try. Do you also have an itchy scalp? I use a different product for my head and have made myself wash my hair more infrequently. Yikes….this is tough stuff.

May you be free, safe, and protected from inner and outer harm.
Chris

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No, not an itchy scalp. I have something called Grover's Disease which involves itchy patches of red skin eruptions, usually on the front or back of the upper torso. No known cause or cure. Thanks for the encouraging words. Right back at you!

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Hello all, I'm new to this community but wanted to join because my mom suffered from this disease about two years ago. There were times when the itching and pain were so excruciating, she felt as though she may not live another year. It was a traumatizing time for her, and for me as I worried so much for the health of my mom. After a harrowing many months spent seeking medical support and finding no doctors who had any answers, she finally found Dr. Brook Brouha (San Diego) who ordered Xeljanz for her. She has been taking it ever since, twice a day. She is in doing so much better, living her life, happy and healthy. Every single day I thank God for that, so I thought I'd share it here and anywhere else that it might be of help to others who are suffering! Please message me if you have any questions about it. Sending you my best wishes and support.

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@matthewrocca88

Hello all, I'm new to this community but wanted to join because my mom suffered from this disease about two years ago. There were times when the itching and pain were so excruciating, she felt as though she may not live another year. It was a traumatizing time for her, and for me as I worried so much for the health of my mom. After a harrowing many months spent seeking medical support and finding no doctors who had any answers, she finally found Dr. Brook Brouha (San Diego) who ordered Xeljanz for her. She has been taking it ever since, twice a day. She is in doing so much better, living her life, happy and healthy. Every single day I thank God for that, so I thought I'd share it here and anywhere else that it might be of help to others who are suffering! Please message me if you have any questions about it. Sending you my best wishes and support.

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Thanks for the info. Glad your mom is doing better. Just a note to all the sufferers out there. I have had GD for over three years now. I did the Cilantro smoothies for about 2 1/2 years with pretty good results. About 6 months ago, I switched over to the liquid extract. During that time my itching stopped almost completely. I continued to do the liquid 2 times a day. Well, guess what? About a week ago, a new outbreak. Not terrible but no fun. I guess my point is, it ain't over 'till it's over, but it's never over. I can only hope remission for all, and that at some point, big pharma will take this insidious condition seriously.

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