Ground Glass - Scared

Posted by scareddad46 @scareddad46, Jun 30, 2023

Hi! I am 46 year old Male.

Details - Cancer Skin (24) - Mohs Surgery
Smoked (socially - stopped 14 years ago)
Hypertension (since 23)

I am very fit and run a lot. Only issue recently is my knee not my lungs! Anyway here we go!

My Cardilogist requested a Calcium score for 6/28 and I got the results back zero calcium however they found ground glass!

REPORT - SUMMARY

Extracardiac: Patchy groundglass opacities posterior left lower lobe
image 27 through 29 of series 2 likely inflammatory. Consider follow-up
as per Fleischner guidelines. No pleural effusion. No enlarged
mediastinal lymph nodes.
IMPRESSION:
Coronary artery calcium score of 0, 25th percentile for age and gender.
Patchy clustered groundglass opacities in the left lower lobe largest 9
mm likely inflammatory. Follow-up as per Fleischner guidelines.

Background on some stuff this June… I got sick around the time of the Canadian Wildfires (3-6 days) brown and green mucus and dry cough… I got it mostly from blowing out dust and dirt from my leaf blower in my garage and it created a huge dust cloud. I can’t handle dust. Anyway by 6/15 I no longer had a cold but actually was worried I had pneumonia since my cough but the Cardiologist said my lungs sounded fine. Anyway, my cough ended around 6/17 is .. also lost my voice in that period.. took days to get back and I had my scan on 6/28… I assume I have the big C..

FYI - called my Cardiologist and could t get ahold of him but spoke to the nurse practitioner. She called back and was confused what the issue was.. said that’s a good calcium score. I said I am worried about the other thing / she asked me if I am sick or was sick. Anyway I got her to call back and speak tot he Cardiologist and he just said have him see a pulmonologist in 6 months. I said was he worried she said no never said that but she said that isn’t his speciality. I am freaking out.

I also send the report to my primary who told me to not worry she sees nothing wrong just follow up with an additional scan

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How are you doing? I'm worried about you!

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@maggie1955

How are you doing? I'm worried about you!

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I am sorry, but didn't I already provide you an update.

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How are you now?

Did you gave Covid?

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@maggie1955

How are you doing? I'm worried about you!

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Hi @maggie1955 , how are you doing? Are you still searching for another doctor? Still scheduled for a scan in November?

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After reading your post I am guessing you have MAC or similar and not the BigC. My biggest nodule was 14mm. I have MAC and aspergillosis. Get yourself to an infectious disease doctor and be properly diagnosed. Good luck! Irene5

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@irene5

After reading your post I am guessing you have MAC or similar and not the BigC. My biggest nodule was 14mm. I have MAC and aspergillosis. Get yourself to an infectious disease doctor and be properly diagnosed. Good luck! Irene5

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My reply is for @scareddad

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@irene5

My reply is for @scareddad

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I was sick as stated in my original post and had Covid in August. Not sure regarding any issues regarding feeling sick etc. I just ran 10 miles yesterday and all of my blood work came back perfect.

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@scareddad46

I was sick as stated in my original post and had Covid in August. Not sure regarding any issues regarding feeling sick etc. I just ran 10 miles yesterday and all of my blood work came back perfect.

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That’s awesome! I see that your original post was in June I think. You should go to an ID doctor to have them explain your scan. Many pulmonologists aren’t familiar with MAC. Glad you recovered from Covid. (Irene)

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I have one ground glass and several nodules in my lungs. So far, it seems like they follow these over time. There is not a way to biopsy them, due to the "lacey edges." I am on D3, which helps with the nodules. The first recheck was at six months, and nothing had changed. I will have another in January, 2024 which is at 18 months. So far, nothing actionable and as long as you have good lung function it is less worrysome. However, I will say that the whole thing was unnerving at first.

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@maggie1955
Try to find a pulmonologist who will be able to explain how these nodules should be followed.
I have just gone through the process of regular CT scans.

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