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Grief of transplant

Posted by cmccall813 @cmccall813, Dec 27, 2024

My son has had two heart transplants every heart transplant I feel he has been a different person. I grieve the children I lost before the heart transplants as I also thankful for them and transplant moms notice this. I mean everything changed personality, foods to eat. I struggle with not getting to say good bye to my pre heart sons. He was 2 and 7 he is now 19 and had vascular dementia which makes it even more tough. Anyone else notice this?

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748sk | @748sk | 1 day ago

At this time I just want to say that it is not just solid organ transplants where the recipient has changes in personality. I experience such difficult emotions that I will need to return to this at a later date. My spouse had a stem cell transplant with personality and memory changes which aligned with the donor.

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benedict66066 | @benedict66066 | 9 hours ago
In reply to @cmccall813 "Let me be clear this is my son who had the transplant. We opted out of..." + (show)
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Let me be clear this is my son who had the transplant. We opted out of vaccines due to my extreme interest in what was happening to my son and at one point having his vaccines after his transplants to catch up. He is so unhappy and the lack of care and follow up with other things it was like switching one set of issues for others. I’m trying to be thankful but there are times I feel guilty for the gifts we received.

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@cmccall813 yes, I understand.

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benedict66066 | @benedict66066 | 9 hours ago
In reply to @melbourneaussie69 "I have had a double lung transplant and it has changed me, I cannot pinpoint how..." + (show)
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I have had a double lung transplant and it has changed me, I cannot pinpoint how as it is hard to explain. I don't know anything about the donor or how they died but I have had severe depression since having the transplant. I don't know if it is the medication I have to take, something changed within me. I have thought of doing things that go against the whole reason I had the transplant. It may be because of the trauma I went through in hospital. I just thought I would tell you some possible reasons I have thought of.

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@melbourneaussie69 - It's August 2026 now, I'm wondering if anything has changed for you? I can't say I have had a personality change but the meds have made me so sick, that I do wonder why I thought I would feel better after transplant. It has been completely the opposite. Sending good thoughts to you, friend. You are not alone.

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