Going to see an EP for the first time on Oct. 16th.

@ejstolte Nice to meet you and Yes our type problem is not the Normal. But I can say after 10 years dealing with the episodes that I still did every physical activity I wanted or needed to. When I was first diagnosed i was about 50. I was still working a job I loved as a communication Tech visiting mountain repeater stations and sub stations where my communication equipment was located. So I remember when I got my first pacemaker I was so nervous being around High Power transmission lines and we even went into the generator areas of the Dams like Hoover, and others. So my work actually allowed me to get a gauss meter to see how high the magnetic waves got. Luckly my pacemaker could handle 1 Gauss which is a pretty high value, Of all the readings they were below 1/2 a Gauss so I was safe. Plus my doctor said that after visiting some of those really big ones he was able to check and see if my pacemaker showed any problems and there was none. So long story short I was able to work another 10 years and get closer to retirement before I had to retire due to the Heart transplant i ended up getting in 2018. Even now I still love hiking, long walks and play Golf all activities I enjoy. With the pacemaker I also did all those things and even went up to 10,000 foot mountains. So my advice is to not worry and keep up with the exercise.

Ill be here anytime you want to share stories.

@danab Thanks a lot for the useful information. I will be working under some high power lines and was concerned, so your experience is very much appreciated. I will continue to increase my activity. Did you have an underlying condition that led to the transplant? Worry about the future and my condition getting worse is always on my mind.

@ejstolte My Journey started because of a flu bug that caused fluid build up in the sac around the heart and lungs. It caused my heart to fight against the water and as such enlarged. Thats one muscle you don't want large. Thats what started the whole thing. My heart circuits kept getting more and more and I had many ablations. It was like 7 or 8 I lost track after about 4. So after my last one the doctor recommends an eval to be ready if a transplant may be necessary. Well that was November 2017. I think he knew he was running out of options to keep my heart from going into arrythmias. I basically after the eval was great timing as by Thanksgiving i was probably not leaving the Hospital. They had me on the IV type of Amiodarone just to keep my heart in Rhythm. I was officially on the transplant list just after Christmas. I had one more event that really sped things up when the Amiodarone became toxic to me. Jan 5, 2018 I got my new heart and a new lease on life. I Thank God that I had been under the care of a EP Doctor that knew when it was time to change strategies. I like to take the approach that unlike say Cancer at least this particular life affecting problem has options.