Glioblastoma grade 4 thalmic tumor unresectable

Sorry, typo, he lost all use of his left arm and leg after the biopsy. He is also on steroids and Keppra still.

I am very sorry to read about your husband. My husband passed away two years ago. He had two GBM tumors. The doctor did not remove them because he said they would just grow back. My husband did some brain radiation and Temodar. He was on Keppra also. The brain radiation killed him quicker I think. I’m sorry I don’t have more encouraging words. All I can say is just try to enjoy every day with him. Be supportive. Don’t get upset with him. Tell him you love him every day. I wish you the best.

Hello Everyone
A few weeks ago my VA doctors informed me that the tumor on my brain if they were to do the surgery that there’s a possibility that I will not survive the surgery? I’m looking for a second opinion and just waiting for the paperwork from VA to identify what an where this problem is and why it’s threatening my life this way?

So sorry for the loss of your husband, Is there a reason why you say you think the radiation killed him quicker. My hubby was diagnosed Jan 1rst with GBM grade 4. He just finished his first course of radiation and temodar. Taking a break till April 17th to start higher dose of pill.

My husband was never very good physically after the diagnosis. He had two tumors. They didn’t remove either one. He did three weeks of rehab before coming home after his surgery where they discovered it was GBM. He could get out of bed at that point with a lot of help from me. He would transfer into a wheelchair of course. He could maybe walk twenty feet with a walker. We started radiation ten days after he came home. Within a week of starting radiation he was no longer able to walk at all. I could barely transfer him between bed, wheelchair and car. Within about another ten days he was bedridden until he died six weeks later. He only did about 10 radiation treatments. They wanted to do thirty but he was going downhill so fast and his bloodwork kept them from giving him anymore. Another big issue which I don’t see talked about on here is that died tumors depleted his body of sodium which made him unable to function when the sodium got real low in his body. The hospital and rehabs were not having me give him sodium at home in the beginning for some reason. They would get his levels to be pretty good while under their care and then they never insisted that I give him sodium at home which made no sense to me since his body was always being depleted of it. We ended up in the ER several times due to that. They finally had me give him six grams of sodium after a while. That allowed him to be able to function a little and talk and know what was going on. But it wasn’t saving him from the cancer. I wish the best. It is a touch disease and I never thought such a rare disease would ever hit so close to home. I miss him energy and he has been gone two years now. Do as much as you can with your husband now and enjoy your time together. I hope you get a lot more good times with him. Don’t argue with him when he gets confused or can’t understand things. Just support him and comfort him as much as possible. Tell him you love him as much as possible. I am glad he is doing well right now and I hope that continues for a long time. I don’t mean to be so down but just remember GBM isn’t curable and it can be very agressive. I wish you the best.

Thank you for sharing….we are trying to embrace every day knowing that days will become more challenging.

Thank you for reminding me not to argue. I am so glad I found this site. My husband has battled Glioblastoma stage 4 for exactly one year. We are 72years.
Surgery, 6 weeks radiation following 5 day a month Temodar. He has stable results on blood and MRI-
Last three months moderate to debilitating depression - He is so depressed - very sad… his brain seems to get worse and worse. He feels
“Useless” “stupid”
He is also very very tired.
I don't know the cause of depression / extreme tired because all his tests look @good?” ?? drugs , radiation glioma or what??
He is taking Brupropin for depression- they bumped in a little Zofran at bedtime -
I am confused and i suppose wishful thinking that he would be able to extend his life and not have to suffer .
Does anyone have a better experience with a antidepressant? Drs have told me we have to wait at least 2 more weeks to try a different medication.
He has strong faith but he is being tempted and riddled with anxiety worry and sadness.
If you pray - please pray for him - his name is Peter. Thank you from MaryBeth

I will pray for you. I wish you the best. We never dealt with depression. My husband declined pretty rapidly. I didn’t feel he would last long after he was diagnosed. He clearly had had the disease for a while before we knew what was going on. Once we discovered it was GBM he was bedridden within about six weeks. We just tried to enjoy each other’s company as best we could. He was in and out of the hospital about five times during his last three months. I stayed with him as much as possible in the hospital. He was alone when I was not with him. Very few of his friends and family visited him. I honestly don’t know how he got through all of that without going crazy. I guess my constant support helped him. Early on he could call me and talk time when I was at home with our dogs. But as he got worse he could not figure out how to use the phone. That kept us apart a little more. But I still managed to be with him about 10 hours a day. Then he came home for hospice that last 11 days. I was with him 23 hours a day then. I liked that better. He still knew who I was until the very end which gave me comfort.

So sorry…

Everyone is different with these medications, but my spouse started bupropion and he felt it made his anxiety and panic attacks 10x worse. He got into see an aprn as he was beside himself and couldn’t wait much longer. The aprn prescribed sertraline and had him stop the bupropion ( he seemed better off of the bupropion. If he feels it’s not working he could get different dr.