Glioblastoma Multiforme and Cognitive Loss

Posted by nursnis @nursnis, Sep 5, 2018

Has anyone experienced removal of a temporal lobe Glio with cognitive loss at surgery – not to recover cognitively, but better physically? Would like to discuss that aspect of that diagnosis

Hi @johns66 She was initially diagnosed with a grade III malignant glioma and it went to grade IV at some point. I recall they also called it diffusely infused.

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@IndianaScott

Hi @johns66 She was initially diagnosed with a grade III malignant glioma and it went to grade IV at some point. I recall they also called it diffusely infused.

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Ok thank you and sorry for your loss.

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Thanks @johns66 In this forum, the sorrow is understood. I, too, am sorry for the journey your husband is on and yours as a caregiver.

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@IndianaScott

Thanks @johns66 In this forum, the sorrow is understood. I, too, am sorry for the journey your husband is on and yours as a caregiver.

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Thank you.

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Bain Tumors What is the likely lifespan of someone with glioblastoma who does not take chemo and radiation after surgery?

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@coachconnors

Bain Tumors What is the likely lifespan of someone with glioblastoma who does not take chemo and radiation after surgery?

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Hi, @coachconnors – welcome to Mayo Clinic Connect. I've merged your post here so that you could meet others familiar with glioblastoma. I'm not able to provide any medical advice, not being a medical professional, but I'm thinking that other members in this discussion may have some thoughts about what you asked about the potential lifespan of someone with this disease who does not take chemo or radiation after surgery, as well as on experiencing glioblastoma in general.

@coachconnors, is this your personal diagnosis, or a loved one's? Have you or this loved one recently had surgery and are contemplating this decision?

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In our case with our relative we were told about 6 months. It's been 3 months and so far so good altho we think we might be seeing a small bit of deterioration at this time.

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@coachconnors

Bain Tumors What is the likely lifespan of someone with glioblastoma who does not take chemo and radiation after surgery?

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Hello @coachconnors Nice to e-meet you here on Mayo Connect. I am Scott and my wife had surgery for her brain tumor and due to its location and the complications from surgery she made the decision not to have any chemo or radiation.

She fought her war for over 14 years, but I fully realize each patient and each tumor is very different.

Are you just asking out of general interest?

Strength, courage, and peace!

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Our relative had a glio removed in July of this year. No treatment given because cognitive ability was lost with the seizure 4 days prior to the surgery. Now as of yesterday she has become non-mobile, and non-verbal accept for a few words. Only has had eggs to eat today – nothing yesterday. Her hubby is thinking this can go one for months – We don't expect it can. Any comments re the end of life with a GLIO?

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Hi @nursnis,

I merged your discussion in to your previous discussion started on Glioblastoma Multiforme and Cognitive Loss so that you could reconnect with the members who've joined this discussion.

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@kanaazpereira

Hi @nursnis,

I merged your discussion in to your previous discussion started on Glioblastoma Multiforme and Cognitive Loss so that you could reconnect with the members who've joined this discussion.

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Thank you so much!

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@nursnis

Our relative had a glio removed in July of this year. No treatment given because cognitive ability was lost with the seizure 4 days prior to the surgery. Now as of yesterday she has become non-mobile, and non-verbal accept for a few words. Only has had eggs to eat today – nothing yesterday. Her hubby is thinking this can go one for months – We don't expect it can. Any comments re the end of life with a GLIO?

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Hi @nursnis
My mother lost her battle with GBM. She Was diagnosed stage 4. Of the time they diagnosed her she had over 100 fingers that wrapped around her brain and her brain and two of the fingers develop tumors at the end of them. Surgery was not an option for her and we chose to do radiation for 30 days straight and a round of chemo in hopes to slow down the disease process. Over 3 months time she declined by the 3rd month she had no core strength to sit up on her own. Her headaches were getting worse she became more and more confused. We decided it was time to get help from hospice. But her oncologist refused to order hospice. I fired him and went with the hospice medical director. From my medical background and my personal experience, the end process of a GBM battle is painful for the patient and the families. I’m am sorry there is no easy way to tell anyone how the end will be as it is different for each individual. For my mom within 24 hrs she went from talking and eating to completely unresponsive other than moaning in pain. Within those 24 hours the cancer created holes externally and she went to sleep surrounded by her family and love she went to her forever home.

Praying for peace as you all endure this journey.
Dawn

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