Glaucoma surgery

No, but can you tell us about it and why it is needed?

It’s a tissue sparing trabeculectomy. I was dx with primary open angle glaucoma severe stage a little over a year ago, with borderline pressures which have had zero response to SLT or eye drops. I’m out of options other than incisional surgeries,

Who is treating you and where do you live? Did you get a second opinion?

@marymj7
I had high pressure due to surgery for an epiretinal membrane in 2008. I was offered a trabeculectomy, but when I heard the risks, I came back to my home town and consulted a naturopath. I stopped the prednisone drops I was on. I started high dose vitamin C powder, several homeopathic supplements, did about 2 hours of vigorous exercise/day. Also, I was taught how to do mindfulness positive imaging. I did these every day for 2 weeks and the eye pressure was back in the normal range.

@mikaylar I am seeing a glaucoma specialist in Louisville, Ky. He is known as a good, very experienced surgeon-the best of the very few local specialists-but he will not engage in discussion. Travel is terribly difficult for me, but I am thinking of going to Wilmer Eye in Baltimore for a second opinion if I can manage it.

Is there a neuro eye doctor local to you? They don't do surgery, but they treat glaucoma. Get the best you can. We need our eyes.

@mikaylar The doc I’d like to see in Baltimore is a neuro

@marymj7
May I ask who is the neuro-ophthalmologist that you are seeing in Baltimore. I live in Maryland and I do suffer from glaucoma because of scar tissues developing on my drainage system. I am terrified of surgery because all of these problems started after a cataract surgery. Doctors keep threatening me if you don’t do this treatment and that treatment, you’ll lose your vision, but so far with all they’ve done, I am going downhill with one eye and the other is doing okay since it hasn’t been manipulated and poked at so much!!! I have trust issues with them and I come out of their office in tears or with some sort of injury and I get blamed for it!!! They are supposed to be the best and I think to myself who can I turn to, I don’t want to go blind!?

@greengold
How much vitamin C did you take and how did you learn the mindful imaging and what kind of vigorous exercise did you do? Have you been able to maintain the lower eye pressures over the past 2 or 3 months?

@laluna9 The doc I have just started seeing is a glaucoma specialist and a neuroscientist. He has a research lab at Johns Hopkins. I don’t know if that’s different than a neuro ophthamologist? But you can call the Wilmer Eye Center at Hopkins and request a neuro ophthamologist. My doc’s name is Thomas V. Johnson III .