Glaucoma misdiagnosed after 17 years of Latanoprost treatment!

Posted by barbaradh @barbaradh, May 11, 2024

At age 50 due to bad scores on my visual fields tests and eye pressure numbers an optometrist sent me to a fellowship trained glaucoma ophthalmologist. For 17 years he treated me with Latanoprost, and my pressures remained low (around 12). I moved at age 67 to a different area of the country and saw a younger fellowship trained glaucoma ophthalmologist at an academic med center. They used virtual reality type “goggles” to check for visual fields. I came out “normal” and showed no loss of vision with that test which is supposedly more accurate than the older one. Long story short, the doc took me off Latanoprost and said she didn’t believe I had glaucoma. Of course, she dilated me and looked at optic nerve. Since that time I have learned that glaucoma is frequently over-diagnosed. Crazy story, no? Your comments are appreciated. Thanks.

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Looking back, I now wonder if the optometrist who referred me to the glaucoma specialist had some kind of agreement to refer patients. Her name was listed repeatedly on my records as the person making the referral. It would be very interesting to see a total of how many patients she referred to the same specialist. I live in a town with many wealthy residents...but I am definitely not one of the affluent. When I refused to buy any of the expensive, designer frames, I think she realized I would not be one of her regular customers , so why not send me off to her connection/friend? At that time I hadn't experienced dealing with medical "professionals" who were more interested in financial collection than appropriate treatment for patients. Very disappointing. I am now much more skeptical of any and every medical "professional" with whom I must deal.

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Profile picture for deborahkk @deborahkk

Looking back, I now wonder if the optometrist who referred me to the glaucoma specialist had some kind of agreement to refer patients. Her name was listed repeatedly on my records as the person making the referral. It would be very interesting to see a total of how many patients she referred to the same specialist. I live in a town with many wealthy residents...but I am definitely not one of the affluent. When I refused to buy any of the expensive, designer frames, I think she realized I would not be one of her regular customers , so why not send me off to her connection/friend? At that time I hadn't experienced dealing with medical "professionals" who were more interested in financial collection than appropriate treatment for patients. Very disappointing. I am now much more skeptical of any and every medical "professional" with whom I must deal.

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@deborahkk .... I share your "distrust" of medical practitioners... we were always taught and believed they all had or have our best interests and not the almighty dollar. But I have reason to believe my last Optom. "saw the dollars not the patient." We realize this is a business, of course, but looking back on things that happened, like arriving for appointment and being told: You are seeing a student today, is that ok? Welkl what was I going to say? Then 2 hours of one or two students and the flashing lighgts over and over til they got it right.... etc et.. it's all ading up now. I do believe the majority are honest and care, but like everthing else in life, we come across those who dont....its sorting them out is the problem and over the years have had many caring medical people who helped me a lot and who i trusted and still do... J.

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