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Getting second lupron injection
Has anybody gone through rounds of lupron injections? I had my first shot st the end of February. I've experienced severe fatigue, mood swings, tears come easily, muscle loss, weight gain, brain fog and more. I have my second shot in early September. If you've had this, does your body handle the second shot better? Does the fatigue and side effects hit you hard again?
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@brianjarvis
I got no warnings nor were any options discussed with me. I just got the standard 44 radiation treatments and Lupron. I had severe pain from the very beginning.
@mjm8491
it would be hard to count how many people have had the decipher test here, There are so many.
At the latest ASCO (American Society of clinical oncology) Conference, some of the Presenters used decipher as a major measure of how treatment was done.
Some medical centers used decipher on almost everybody.
@pesquallie Did they try an alternate ADT (Eligard, Prostap, Camcevi, Lucrin, Zoladex, Trelstar, Pamorelin, Decapeptyl, Firmagon, or Orgovyx)? Sometimes even the inert ingredients can have side-effects.
There has been much reported on the physical benefits of resistance-training exercise while on ADT. Here are just a few that I’ve bookmarked:
> Drs. Sholz and Moyad talking about exercise and hormone therapy: https://m.youtube.com/watch
> A paper on The Benefits of Exercise During Hormone Therapy: https://static1.squarespace.com/static/54c68ac6e4b06d2e36a4b8c9/t/55cb7275e4b0d97ae7ff60af/1439396469154/The+Benefits+of+Exercise+During+Hormone+Therapy_Insights+August+2015_PCRI.pdf
> A study about the benefits of exercise to counteract the adverse effects of ADT: (They describe a good resistance-training program): https://journals.lww.com/acsm-msse/fulltext/2023/04000/resistance_exercise_training_increases_muscle_mass.2.aspx
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@pesquallie Interesting. My experience was totally different.
When I was initially diagnosed with PCa in April 2012 (at 56y), my first comments to my urologist were “I don’t know anything about prostate cancer so, I’ve got a zillion questions to ask before you cut anything out of me, or bombard me with radiation, or inject toxic chemicals into me……”
From that point on, we had quite a few discussions. We all worked together. Unless I fully understood what was going on and why, we didn’t do it. I had the final sign-off with any action we took. They left the choice up to me to have 20, 28, or 30 sessions. (I chose 28.)
Seems like each center had a different protocol.
@brianjarvis
Yes, I have always had a regular exercise routine. It may be a coincidence, but my side effects improved a great deal the same day that I added a simple high impact exercise like jumping off a low platform thirty times a day.
@brianjarvis
My doctor never spent enough time with me for many questions. I got what I learned later was standard procedure of 44 radiation treatments to be followed by 18 months of Lupron. My very painful side effects led me to refuse more than 4 months of Lupron which I found out later would have been supported by Duke's recent study of ADT use.
After 2 injections of Lupron and 23 radiation treatments, I was very exhausted. I so fed up with feeling this way I became angry. I went home, put on my swim suit and went swimming in the local salt water lagoon. Since I was out of shape for swimming I only swam about 200 yards. ( I gradually work up to 1000 yards.) When I got out of the water I felt about 70% of my energy came back along with a better attitude. I attribute this to breathing deep with each stroke which injects oxygen into the blood stream. I had 2 years of Lupron and went thru a lot of what you are going thru. My last injection of Lupron was last March. Most of the bad experience is leaving. I am 87 years old and still swim in the summer, lift weights twice a week and run up 3/12 flights of stairs as fast as I can twice a week.
I'm a firm believer in exercise to relieve much of the negative things you mentioned.