Getting Off of Omeprazole

Posted by Bonnie @nightngale1998, Jun 26, 2018

Hi there: Has anyone had success in weaning off of Omeprazole? I take it for GERD. Thank you in advance!

@guthealth

I got off Aciphex (sp) ten years ago and had to suffer through horrible acid rebound for two months. I weaned myself off with Zantac. I now take nothing. Control the reflux by eliminating coffee, carbonated drinks and too many carbs. I take an occasional Zantac and avoid trigger foods. Doctors don’t tell you that you will experience rebound when you try to get off the PPI. It is not the disease but the rebound that keeps us hooked on the PPI. Modern medicine is designed to hand us pills for everything and masking symptoms rather than eliminating the underlying cause. I have accepted that I cannot eat or drink in my sixties what I could in my twenties. I realize not everyone can get off these medicines due to other or more serious underlying medical conditions, but worth some looking into.

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Just a note that my doctor has always warned me about the reflux returning if I stop taking the medication.

I also got off of PPIs by taking Zantac and Tums combined. However, I did have a hiatal hernia repaired and a LINX Augmentation Procedure in September 2018 and now take nothing, no meds of any kind. No heartburn, no nausea, no pain. It was a godsend for me.

@jackiem95

Just a note that my doctor has always warned me about the reflux returning if I stop taking the medication.

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I am glad to hear that. I have had the misfortune of doctors not informing me about side effects of medications on many occasions with catastrophic results at times. Let the consumer beware. I now do my own research about any medication I put in my mouth, over the counter or prescription. Acid rebound from PPIs is horrible and one of the reasons many people can’t get off these medicines that I am not sure we’re designed for long term use in the first place.

@guthealth

I am glad to hear that. I have had the misfortune of doctors not informing me about side effects of medications on many occasions with catastrophic results at times. Let the consumer beware. I now do my own research about any medication I put in my mouth, over the counter or prescription. Acid rebound from PPIs is horrible and one of the reasons many people can’t get off these medicines that I am not sure we’re designed for long term use in the first place.

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I agree that we all need to research all of our own medications (as well as other medical treatments) and be informed health care consumers. Sometimes it’s difficult though when the data is confusing, inconsistent or conflicting.

@jackiem95

Just a note that my doctor has always warned me about the reflux returning if I stop taking the medication.

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I have been on PPIs for ten years and it worries me when I heard of the warnings. I had BE starting in 2008 and was told because of that, I must continue taking omeprazole ( I now take pantoprazole). I was increased from 20 mg daily to 40mg daily and then to twice a day until about three months ago. Now I am on 40 mg once a day, approved by my doctor. I cleared up the BE this year. However, I never did have much symptoms and now do not experience problems and wondered if I could go off them entirely. I watched and changed my diet and wonder if that is enough. However, I heard that there was such a thing as silent GERD so I am still a bit confused. I do forget sometimes now because I seem to e doing OK. I will be checked again in March Anybody have the same history?

@l3440r

I have been on PPIs for ten years and it worries me when I heard of the warnings. I had BE starting in 2008 and was told because of that, I must continue taking omeprazole ( I now take pantoprazole). I was increased from 20 mg daily to 40mg daily and then to twice a day until about three months ago. Now I am on 40 mg once a day, approved by my doctor. I cleared up the BE this year. However, I never did have much symptoms and now do not experience problems and wondered if I could go off them entirely. I watched and changed my diet and wonder if that is enough. However, I heard that there was such a thing as silent GERD so I am still a bit confused. I do forget sometimes now because I seem to e doing OK. I will be checked again in March Anybody have the same history?

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@jackiem95 Linda, I presume BE means Barrett's Esophagus. I have that also but I was under the impression that it cannot go away. How did you clear it up? I would love to be able to do that. Mine is fairly minor so if it can be cleared up I don't think it would be that difficult. The only symptom I had before being diagnosed was hoarseness. I do still get a little bit hoarse on some days so I guess that probably means that I do still have it. If I could clear it up and get off of omeprazole though I would even give up coffee.
JK

@jackiem95

I agree that we all need to research all of our own medications (as well as other medical treatments) and be informed health care consumers. Sometimes it’s difficult though when the data is confusing, inconsistent or conflicting.

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I have been wearing a 24-hour blood pressure monitor, just took it off. I suspect that my blood pressure is mildly elevated and that my PCP will want to put me on a blood pressure medication. I plan to research them before I see him this week so I know exactly what we are talking about.
I was on BP medications for a while about 15 years ago and one made me cough constantly, which it turned out is a very frequent problem with that medication. As soon as I told the PCP I had back then that I had a constant cough she knew it was from the medication and changed me to a different one. I know my current PCP has a record of that.
If anyone knows anything about problems with any BP medications I would love to hear about them. Thanks.
JK

@guthealth

I am glad to hear that. I have had the misfortune of doctors not informing me about side effects of medications on many occasions with catastrophic results at times. Let the consumer beware. I now do my own research about any medication I put in my mouth, over the counter or prescription. Acid rebound from PPIs is horrible and one of the reasons many people can’t get off these medicines that I am not sure we’re designed for long term use in the first place.

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If you have fructose malabsorption, PPI's can cause acid reflux. At least Prilosec can because it has sugar(s) in it. You can look up any drug in Daily Med to see a copy of the package insert including side effects and so-called "inactive" ingredients. I made a posting in the Fructose Malabsorption discussion group about going to a list of different names for sugars and then looking up drugs in Daily Med.

@lelia

If you have fructose malabsorption, PPI's can cause acid reflux. At least Prilosec can because it has sugar(s) in it. You can look up any drug in Daily Med to see a copy of the package insert including side effects and so-called "inactive" ingredients. I made a posting in the Fructose Malabsorption discussion group about going to a list of different names for sugars and then looking up drugs in Daily Med.

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I have IBS and I guess fructose malabsorbtion is s component of that. But I had acid reflux long before the IBS showed up. The reflux has just began bothering me again—so now it’s juggling two dietary concerns and further limiting what I eat.

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@contentandwell

@jackiem95 Hi Jackie. I have never heard of either of these supplements. I am curious about them now. I take 20 mg omeprazole a day for Barrett's esophagus. I hate taking it with all of the talk about negative effects and sometimes wonder if I really do need it. My Barrett's is pretty minor so far, apparently.
JK

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Just received results from Comprehensive Metabolic Profile (Henry Ford Hospital, Detroit) after 9 years of 20mg omep. Everything right down the middle. See Robini post above.

@badone

Just received results from Comprehensive Metabolic Profile (Henry Ford Hospital, Detroit) after 9 years of 20mg omep. Everything right down the middle. See Robini post above.

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I am going to see a Dr McFarlin at Henry Ford Hospital in 8 days. This is first time I remember seeing anyone also that has a doctor at HFH. I use to see a PCP in Plymouth but then switched over to U of M when MAC was not diagnosed. I do have problems with digestion that might be related to fructose and acid reflux. I had surgery for so much including Achalasia. Have you ever heard of this?

@badone

Just received results from Comprehensive Metabolic Profile (Henry Ford Hospital, Detroit) after 9 years of 20mg omep. Everything right down the middle. See Robini post above.

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My computer has been off and on while sending and receiving messages. It might look like I wasn't paying any attention to you.

@macjane

I am going to see a Dr McFarlin at Henry Ford Hospital in 8 days. This is first time I remember seeing anyone also that has a doctor at HFH. I use to see a PCP in Plymouth but then switched over to U of M when MAC was not diagnosed. I do have problems with digestion that might be related to fructose and acid reflux. I had surgery for so much including Achalasia. Have you ever heard of this?

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Not familiar with Achalasia. My only issue has been moderate long-term esophagitis. The CMP profile above indicates that omeprazole is not necessarily harmful and is a good way to control GERD for most. It just needs to be carefully monitored.

Do you have the ability to talk with the doctor? Omeprazole does not seem to help me. Did you ever go to Mayo in Rochester? I am due for first visit there soon.

@badone

Not familiar with Achalasia. My only issue has been moderate long-term esophagitis. The CMP profile above indicates that omeprazole is not necessarily harmful and is a good way to control GERD for most. It just needs to be carefully monitored.

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I took omeprazole for quite a few years but eventually stopped working even with increased dosages. Switched to Dexilant (worked well but no insurance coverage) then to the generic Nexium which appears to not be working well anymore.

When you say that you saw a PCP in Plymouth and then switched to U of M—are these facilities in Michigan or Minnesota?

I am waiting to find out if Mayo gastroenterology dept. is going to give me an appointment. Keeping my fingers crossed!

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