Gastroparesis and EPI related?

Posted by susanh824 @susanh824, May 18, 2023

I was diagnosed with Exocrine Pancreatic Insufficiency a few months ago. Tried Creon, which seemed to help, but can’t afford refill. Still awaiting AbbVie’s decision on Creon Assistance. Because I am seldom hungry, my doctor ordered a gastric emptying test, which showed Gastroparesis. Do I just have bad luck, or are these two related? I also have Sjogren’s Syndrome, which I suspect might have caused these. Strangely, I never vomit, and only have nausea after a meal like steak. I was acutely ill with pain and nausea for four days after a steak and baked potato two weeks ago. Almost went to the ER because of the pain! But generally, my main symptoms are bloating and lack of appetite. I’ve lost over 80 lbs (which I needed to lose.) Any suggestions? I cannot take Reglan (causes extreme anxiety)

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susanh824 | @susanh824 | Oct 8 4:08pm

Thank you, and wishing you the best!

Lisa Lucier, Moderator | @lisalucier | Oct 17 2:46pm

In reply to @peggyjean "I have a routine appointment with primary tomorrow….. Thanks For Info!🥰🎊" + (show)

@peggyjean - did you end up discussing the potential of EPI with your doctor or getting tested for it?

Lisa Lucier, Moderator | @lisalucier | Nov 24 10:58am

In reply to @susanh824 "Hi Yukisun, So sorry that you are fighting the same battles. I think I may have..." + (show)

@susanh824 - how are things going with the EPI and gastroparesis? Are you still on pancrelipase (Creon)?

@bzinzy - how are you? How's your appetite?

skylarke | @skylarke | Nov 26 5:48am

Did anyone tell you about Zen Pep? I was diagnosed with pancreatic insufficiency after a stool test.
My insurance covered the zen pep...
My last endoscopy showed my numbers were up so I was off of it.
But I was also igosed with diverticulosis...