Mayo Clinic Connect
I have Gastroparesis .. the post operative type.. where some of the nerves that surround the stomach were damaged and my stomach is slow to empty.
as I recall the Surgeon said they did some repair on that too…as I was having a lot of trouble with reflux that way… My big adjustment is to sleep with 4 pillows or the bed head area tilted up quite a bit… but this way I don't have food come up during the night… that was a heck of a way to wake up… I don't lay down flat anymore… that is just asking for trouble..
Liked by marychapman
There are silicone antifoaming tablets — that might help – defoam after eating. Your Gastroenterologist should be aware of these. This is usually present in Antacid tablets. Foaming can also occur due to swallowing of air while eating. I have this problem, when I talk (maybe more than necessary !!) while eating.
I had that… I had an operation called a "Nissen" that was to solve GERD…had that surgery in Iowa ..It seems as if it is still occuring…I feel bloated often after I eat…but it passes usually within a half hour.. I often carry Papaya enzyme pills to get relief from bloated feeling…but must be very careful not to eat too much…
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It sounds like the Nissen is failing. I had a Nissen in 2001. My story here: https://zarogasnook.blogspot.com/2015/08/a-long-time-passing.html .. no ads. I haven't updated in a long time. Right now I am having esophageal spasms that are creating the mucus… I cannot figure out a trigger.
My experience with gastroparesis… First diagnosed.. late 1990s or so. Every time I ate salads I had problems. I took propulsid and it helped, but they took it off the market. I tried domperine (sp) and the side effects were bad for me and it is recommended I not take reglan because of nerve problems I have. In 2008 we went on a trip out to the west coast and up to Washington State to see my brother We were in Benson Arizona and I got a stomach virus… then it hit my husband a few hours later. When it hit we were out and about and all of a sudden my vision went wacky and nausea hit. My husband sped back to campground, but I asked him to pull over because I had to throw up. I didn't really notice what I threw up.. but hubby said it was salad… looked as fresh as I had eaten two days before. It had never made it to my stomach. When we got back home I saw my GI doctor and he did an endoscopy. More greens in my esophagus from a salad I ate days before. He found a small bezoar in my stomach. I also had an ulcer. Some info on bezoars here: https://www.mayoclinic.org/diseases-conditions/gastroparesis/expert-answers/bezoars/faq-20058050 . Since high fiber and fibrous foods and most raw food can sit in the stomach a long time I was advised to not eat them. I have had less problems with gastroparesis since following this advice. I have followed it more closely since my last surgery in 2015.
If I were you I would watch my diet more closely. Look up on internet suggested diet to follow.. they should have given you a guide when you were diagnosed. Also let your doctor know what is going on. If you have to prop up with that many pillows you need more testing to see what is going on.
You have had quite a battle. . The surgeon and GI doc in Ames IA who did the Nissen could not figure out what went wrong.. the GI doc even prescribed a non FDA approved drug…then I asked for a referral to Mayo Rochester.. great people. I had the diagnosis promptly after the tests. . Once I was telling the doc how a once eaten chicken with a lot of sauce and broccoli… when stuff came up only the broccoli did… The doc said,"you never have to eat broccoli again…".. when talking to a Swedish friend who was a retired Radiologist before going to Mayo. She gave me the heads up.. "hope you don't have gastropaneisis".. I seem to tolerate raw fruits and vegetables that are not leafy…soft breads also don't work.. that is they cause the food to get caught and come up… I feel the worst after eating… and usually sit with my legs up for a half hour after eating to allow some of the food to go beyond the stomach, that way easing the pressure..
Please let them know about the swallowing. Sometimes I get the stuck food feeling. I get fussed at by doctors because I do not go to the ER after an hour of pain and nausea after eating.. and liquid will not go down. Used to be a simple walk and gentle massage would solve the problem… and sometimes my heating pad. I believe it is the esophageal spasm that cause this… anyway they say it is easy to aspirate into the lung when this happens. .. wjich is not a good thing to happen. Sometimes it comes with coughing, but most times just feel full and nauseated. Once I throw up I am fine, but it takes more than that hour most of the time. I think the spasms just cause the sphincter to close and food is not stuck. Used to be a strtch of the esophagus would hold for a good while. I have had 4 episodes since May 3rd when I had the last stretch.
I can tolerate some breads and some buns from burger joints around. I can eat Ritz crackers, but not saltines. Potatoes even mashed and soupy are difficult. Sweet potatoes are fine… no peels. I can eat granola bars… homemade. I chop dried fruits and toasted almonds and pecans fine with toasted quick oatmeal. Held together with a mixture of butter, brown sugar and honey… think I am going to have to drop the honey… maybe substitute a syrup or just more brown sugar. Green beans don't want to go down… Bush's baked bean I do fine with. All veggies have to be so tender they would be baby food if mashed with a fork. It is better than the feeding tube.
Ah, Sweet Potatoes soooo good .. butter and brown sugar gets the calories up… I am 5'-10" and now weigh about 170… Before that botched Nissen I weighed 196… I was down to 152 or so when I went to Mayo… I take a multivitamin… and a Mirtazapine … to help me think that I want to eat … also a generic Nexium in the Morning… At 82 years old .. I am doing a lot better than so many….and I am grateful.. I don't think that I have trouble swallowing …its what happens after it is swallowed…when gravity seems to be in play… I have to eat a lot of sauces with the food to make it go down easier all the way to the stomach… I was an Architect and a Univ. Professor…and very active.. this focus on eating is just something I was not used to … chewing a lot… cutting stuff so fine …. I even have to cut fettuccine or other pasta … rice …not too sticky works well usually… I don't ever use straws because of the air you have to swallow.. When I went out for Brunch this morning, a restaurant serves a Breakfast Slate… it is ideal for Grazers (slow and easy while doing a crossword…)… and that really works well for me… a little of this and that …1 poached egg…a tiny bowl of porridge with a blueberry puree on it., candied bacon piece, a small slice of cantaloupe, pineapple, honey dew, grapes, some almonds, some cheese, some dried fruits, an shot glass of orange juice, and really toasted bread with fresh strawberry jam… with a chocolate filled filo baked pastry… crisp and flakey..
If I travel I do eat those granola/protein bars… and trail mix… I was never on a feeding tube.. but I order appetizer servings and take some home in a box to eat later…
We went out to a buffet for Father's day. My son, his wife and 4 grandchildren with us. I ate some shrimp and I forget what veggies I could eat. I had peach cobbler for dessert and had two cups of coffee. I did not get my husband's money's worth. He and my son and grandson ate all the prime food they could eat and grand girls loved the chocolate covered cherries and other desserts and made up for it. 😂
I am 5’5” tall and weighed in at a fat 180 lbs a few months before Mayo trips. I lost 50lbs two months prior which was part of my symptoms bringing me there. I was asked before 2nd surgery to gain at least 5 lbs. That was very hard to do. I came off the feeding tube weighing 140lbs.. lost 10lbs within i2 months after that. Kept slowly losing it and last year I lost 15 or pounds. This year I started off at 117lbs and am up to 122lbs… sometimes dropping below. If I cannot maintain my weight they say I may have to go back to feeding tube, I was nauseous whole time I was on it. The tube went to my remanent stomach and no way to throw up. Too nauseous and I would just disconnect from it for a while. Sometimes Zofran works and sometimes not for nausea. It makes me have a headache. I take valium for my back sometimes and it seems to help my stomach.
To me it sounds like you have the sphincter not working as it should. You need to find the cause and figure treatment. I am heading toward 68 years old in August. I feel much older. I am trying to take care of my 91 year old mom. I am blessed to have a great husband to help me.
I have a big plastic jar on my kitchen counter that I keep my mix of Costco Trail mix with added unsalted mixed nuts, craisens, dried apricots, and m&Ms.. I also have a big jar of pickles herring, olives, a lot of fresh or frozen fruit eaten with that Avocado frozen dessert.. that's how I keep the weight on..
Correction: Pickled herring…
I go to Mayo Rochester for this GI problem, but also for kidney stones, and now even radiation oncology for a prostate cancer .. prognosis is good.. the time the doctors, PAs, and nurses spend with you gives confidence to the patient..at least that's how I feel about it..
Anyone with gastroparesis?
Yes, post-operative type…. stomach takes 2-3 hours to empty. Foam sometimes forms. Food sometimes gets caught. Every meal is a challenge. Cut up and small. Use your blender or Ninja. .
Beyond that. It’s autoimmune type. Have failed all medications, NJ tube, GJ tube and staff from Picc lines. Currently on TPN thru central line. Appointments in 2 weeks at Mayo to see what’s next. Any thoughts out there?
ken82 What type of surgery did you have?
@ginnyodie I am sorry you have had such a hard time. There are many in this group that have gastroparesis. You should use the search option .. magnifying glass up at the top on the same line as appointments to find conversations that might help you.
Liked by JK, Volunteer Mentor
This illness is a challenge but workable. I eat about 5 to 6 times a day. Small meals and I stay away from foods that are hard to digest such as cabbage, broccoli and uncooked carrots. Beef hurts. the internet on Gastroparesis will give you lots of info. I take Domperidone three times a day. Good luck
I find that food cut small… and take the time to cut it while you eat as that slows the rate of putting food in your mouth… with a lot of sauces… pasta, barB Que, cream etc… what ever… I too do not eat much beef… ground up is OK but with mashed sweet potatoes and gravy on the meat… during the summer I have been able to eat Baby back ribs..with a lot of sauce.. they keep one busy cutting biting small bits… ..and Ice Cream for dessert… a blue berry at a time … Good Luck.. K
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