Post-operative Gastroparesis

Posted by ken82 @ken82, Jul 16, 2019

I have Gastroparesis .. the post operative type.. where some of the nerves that surround the stomach were damaged and my stomach is slow to empty.

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@ginnyodie

Anyone with gastroparesis?

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Yes, post-operative type…. stomach takes 2-3 hours to empty. Foam sometimes forms. Food sometimes gets caught. Every meal is a challenge. Cut up and small. Use your blender or Ninja. .

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@ken82

Yes, post-operative type…. stomach takes 2-3 hours to empty. Foam sometimes forms. Food sometimes gets caught. Every meal is a challenge. Cut up and small. Use your blender or Ninja. .

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Beyond that. It’s autoimmune type. Have failed all medications, NJ tube, GJ tube and staff from Picc lines. Currently on TPN thru central line. Appointments in 2 weeks at Mayo to see what’s next. Any thoughts out there?

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@ken82

Yes, post-operative type…. stomach takes 2-3 hours to empty. Foam sometimes forms. Food sometimes gets caught. Every meal is a challenge. Cut up and small. Use your blender or Ninja. .

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ken82 What type of surgery did you have?

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@ginnyodie

Beyond that. It’s autoimmune type. Have failed all medications, NJ tube, GJ tube and staff from Picc lines. Currently on TPN thru central line. Appointments in 2 weeks at Mayo to see what’s next. Any thoughts out there?

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@ginnyodie I am sorry you have had such a hard time. There are many in this group that have gastroparesis. You should use the search option .. magnifying glass up at the top on the same line as appointments to find conversations that might help you.

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@fourof5zs

@ginnyodie I am sorry you have had such a hard time. There are many in this group that have gastroparesis. You should use the search option .. magnifying glass up at the top on the same line as appointments to find conversations that might help you.

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This illness is a challenge but workable. I eat about 5 to 6 times a day. Small meals and I stay away from foods that are hard to digest such as cabbage, broccoli and uncooked carrots. Beef hurts. the internet on Gastroparesis will give you lots of info. I take Domperidone three times a day. Good luck

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@harliegirl

This illness is a challenge but workable. I eat about 5 to 6 times a day. Small meals and I stay away from foods that are hard to digest such as cabbage, broccoli and uncooked carrots. Beef hurts. the internet on Gastroparesis will give you lots of info. I take Domperidone three times a day. Good luck

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I find that food cut small… and take the time to cut it while you eat as that slows the rate of putting food in your mouth… with a lot of sauces… pasta, barB Que, cream etc… what ever… I too do not eat much beef… ground up is OK but with mashed sweet potatoes and gravy on the meat… during the summer I have been able to eat Baby back ribs..with a lot of sauce.. they keep one busy cutting biting small bits… ..and Ice Cream for dessert… a blue berry at a time … Good Luck.. K

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@ken82

Yes, post-operative type…. stomach takes 2-3 hours to empty. Foam sometimes forms. Food sometimes gets caught. Every meal is a challenge. Cut up and small. Use your blender or Ninja. .

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@ken82 , what kind of surgery did you have that brought you to your gastroparesis? Thank you

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@ginnyodie

Anyone with gastroparesis?

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A Nissen…to reduce Reflux. It damaged nerves in the stomach

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@ginnyodie

Anyone with gastroparesis?

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I was told by Mayo doctor that 1 in 6 go bad…

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@ken82

I was told by Mayo doctor that 1 in 6 go bad…

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@ken82 , thank you for replying! I'm so sorry to hear about that; however, from the thread I've been reading, you seem to finally be in a good place, now, with all that you've had to learn along the way. Your knowledge and experience is enabling you to be a great help to many others!

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@ken82

I had that… I had an operation called a "Nissen" that was to solve GERD…had that surgery in Iowa ..It seems as if it is still occuring…I feel bloated often after I eat…but it passes usually within a half hour.. I often carry Papaya enzyme pills to get relief from bloated feeling…but must be very careful not to eat too much…

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My vagus nerves were cut/damaged beyond repair. My life since April 2016 really has been a living hell. For example, I thought I was going to have a good day today and before I can even do anything, I am in bed with a heating pad on my gut and hoping I can make it to the bathroom when the diarrhea hits. I haven't found anything with this disorder that provides me much relief and I think I have tried everything. I see your post from last July and I wonder how you are doing? It doesn't sound like the damage from your Nissen was as bad as mine, but wondering about your quality of life and and strategies that help.

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