Gabapentin use for neuropathy

Posted by Lisa @techi, Nov 3, 2017

I just want to know if anyone has used or is still using gabapentin for neuropathy. I had foot surgery in 2015 and l had nerve pain so my surgeon put me on gabapentin and it wasn’t once a day or twice a day. He said 3times a day.. So this Monday on the doctors Dr. Stock was talking about the gabapentin and how he was taking it after his surgery and he read about people who were trying to wean themselves off off it and it was hard to do it and if you are taking an opioid it intensify the opoid has anyone had that problem. Because l sometimes take tramadol and l always ask if it’s an opioid and everyone says no but when l went online they said it was so l am trying to not take them and when l went to the doctor this week l told them l am only taking the gabapentin 2times a day because l forget the third dose. I told her l am only use to taking meds twice a day so l want to know if anyone had a reaction or difficulty get off gabapentin?

@jimhd

I’m not ready or willing to give up on my mind.

I tried every medication available for neuropathy, and many others that have been helpful to some. None of them helped with the pain except Lyrica, and I ended up in the hospital because of bad reactions to it. Bummer! But since I had a spinal cord stimulator implant in June, I’m going to go back and try the meds again. I’m hoping that I’ll find one that works for me a second time around. I’m not sure if the neurologist is the one to work with, or the pain specialist. I liked the way the pain specialist went out of his way to figure out how to treat my pain. I have an appointment with the neurologist on the 14th, so I guess I’ll start with him. Wish me luck.

Jim

Jump to this post

@jimhd

Yes, I hope that you find a good script. How is your spinal stimulator working for you? Has the pain lessened quite a bit? Teresa

REPLY
@jimhd

I’m not ready or willing to give up on my mind.

I tried every medication available for neuropathy, and many others that have been helpful to some. None of them helped with the pain except Lyrica, and I ended up in the hospital because of bad reactions to it. Bummer! But since I had a spinal cord stimulator implant in June, I’m going to go back and try the meds again. I’m hoping that I’ll find one that works for me a second time around. I’m not sure if the neurologist is the one to work with, or the pain specialist. I liked the way the pain specialist went out of his way to figure out how to treat my pain. I have an appointment with the neurologist on the 14th, so I guess I’ll start with him. Wish me luck.

Jim

Jump to this post

@stuartg, thank you for bringing up the alternatives that you sought out and discussed with your provider. It is important to note that realhealthproducts has a disclaimer on its site stating, “These statements have not been evaluated by the Food and Drug Administration. This product is not intended to diagnose, treat, cure or prevent any disease.”

I think it was great on your part to include your provider in the process of obtaining these supplements and it is great that ultimately it led you and your provider to try a new medication that now works for you. I’ve learned on this site that always seeking answers, education, and alternatives on your own behalf is a powerful tool, but am pleased to read that you kept your provider part of the process throughout your search.

REPLY
@jimhd

I’m not ready or willing to give up on my mind.

I tried every medication available for neuropathy, and many others that have been helpful to some. None of them helped with the pain except Lyrica, and I ended up in the hospital because of bad reactions to it. Bummer! But since I had a spinal cord stimulator implant in June, I’m going to go back and try the meds again. I’m hoping that I’ll find one that works for me a second time around. I’m not sure if the neurologist is the one to work with, or the pain specialist. I liked the way the pain specialist went out of his way to figure out how to treat my pain. I have an appointment with the neurologist on the 14th, so I guess I’ll start with him. Wish me luck.

Jim

Jump to this post

About 5 or 6 years ago my gp put me on Lyrica. I managed to enjoy every side-effect on their liturature and then some. It got so bad my gp listed me as allergic to the drug. Also, since being diagnosed with type 2 diabetes I have been on gabapentin with the dosages maxing out at 3200mg/day. I experimented with the dosages (always going down never up) and found my pain increased as dosaged numbers decreased.

Currently my PN is in both hands and is at a #7 24/7. I live in AZ and my meds are going from 150mg of morphine a day to 90mg. I just love the decisions made by the feds. I haven’t figured out my plan “B” but rest assured I will have one.

@okay

REPLY
@jimhd

I’m not ready or willing to give up on my mind.

I tried every medication available for neuropathy, and many others that have been helpful to some. None of them helped with the pain except Lyrica, and I ended up in the hospital because of bad reactions to it. Bummer! But since I had a spinal cord stimulator implant in June, I’m going to go back and try the meds again. I’m hoping that I’ll find one that works for me a second time around. I’m not sure if the neurologist is the one to work with, or the pain specialist. I liked the way the pain specialist went out of his way to figure out how to treat my pain. I have an appointment with the neurologist on the 14th, so I guess I’ll start with him. Wish me luck.

Jim

Jump to this post

Yes, the pain was reduced significantly from the stimulator implant, but it didn’t eliminate it, Teresa. @hopeful33250 I still take a low dose of morphine and have to limit how much I walk.

@stuartg I took Lyrica for a couple of weeks, long enough to know that it was helping the pain. It was the first medication that had done anything at all. If I hadn’t been incoherent, blurry vision, memory loss, signs of stroke, I would probably still be taking it. Years ago I took Amitriptyline for a different ailment, and it really helped me, but it didn’t help with neuropathy. But I might try it again.

Jim

REPLY
@jimhd

I’m not ready or willing to give up on my mind.

I tried every medication available for neuropathy, and many others that have been helpful to some. None of them helped with the pain except Lyrica, and I ended up in the hospital because of bad reactions to it. Bummer! But since I had a spinal cord stimulator implant in June, I’m going to go back and try the meds again. I’m hoping that I’ll find one that works for me a second time around. I’m not sure if the neurologist is the one to work with, or the pain specialist. I liked the way the pain specialist went out of his way to figure out how to treat my pain. I have an appointment with the neurologist on the 14th, so I guess I’ll start with him. Wish me luck.

Jim

Jump to this post

I just wanted you to know you’re not alone. I have MS with PN in both lower legs and fingers. Frightening. I live in Florida which is in an “opioid emergency.” My neurologist is aware that tramadol is the only med I have found that alleviates some pain AND allows me to lift my legs so I can walk. She cannot give it to me, even a minimal dose. So I found a site online to obtain it – to be able to take care of my house and family, or function. I have never broken the law and everyday I fear the ” feds” will come charging thru my door. My choices are this, or being bedridden. Never thought I’d be in this position. And thank you so much for having the courage to share your story…You’re not alone.

REPLY

@keeptrying I can understand your fears. You are not a small/big time dealer so the fear of the Feds charging through your door may be extreme. Paranoia generally strikes those of us who do our best to abide by rules. Just keep the info to yourself lest some so called “do-gooder” has an unrealistic fear of opioids. I at times think people watch too much TV and want to be on TV by sticking their noses in where they do not belong. My input.
Do hope you can continue to get what you need.

REPLY

Is medical marijuana available in AZ? I was given a synthetic version to enhance appetite after a surgery and it was very good at that, but even better for pain relief. Far better than opiates and much less damaging to my brain long term. It is now only available to cancer patients in SC; God forbid anyone becoming dependent on cannabis instead of alcohol. You are right about the Feds getting involved, but government in general should not be between me and my physician. I am 57 and I can’t think of anything the government has ever decided to stick their regulatory noses in that has been better. Always produce unintended consequences.

REPLY
@gman007

Is medical marijuana available in AZ? I was given a synthetic version to enhance appetite after a surgery and it was very good at that, but even better for pain relief. Far better than opiates and much less damaging to my brain long term. It is now only available to cancer patients in SC; God forbid anyone becoming dependent on cannabis instead of alcohol. You are right about the Feds getting involved, but government in general should not be between me and my physician. I am 57 and I can’t think of anything the government has ever decided to stick their regulatory noses in that has been better. Always produce unintended consequences.

Jump to this post

Hello @gman007, it does look like medical marijuana is available in AZ. As expected, there are some rules and certain qualifications and only certain illnesses qualify. Like MN, the list of qualifying conditions tends to grow each year. Here is the AZ government website that should outline everything you need to know. http://www.azdhs.gov/licensing/medical-marijuana/index.php.

REPLY

In SC, the opposite is happening. The geniuses in our statehouse may outlaw aspirin as a gateway drug at some point.

REPLY

Well they did remove the caffeine from aspirin. There is an over-abundance of geniuses the world over.

REPLY

I have used Gabapentin for at least 10 years & it totally relieves the unbearable tingling in feet & lower legs. I’ve been told by several doctors/neurolobists etc

REPLY

i’mve been using Gabapentin for at least 10 years to relieve the unbearable tingling in feet & lower legs = totally effectively. I’ve been told my several doctors & neurologists that I could take more than the 4 tablets daily but have seldom needed to. I’m also trying it along with other pain meds for an excruciatingly painful nerve damaged ankle wound – hydro morphone and Oxycocget are more effective but am trying the combiination to try for more relief. I have no difficulty at all in stopping Gaba, except that the neuropathy tingling renews its assault! Have come to believe pain management is a pretty individual affair.
Sheila. Camada

REPLY

Re :gabapentin effectiveness. I have found this medication to be effective in relieving the needle like pain in my hands and arms. From reading everyones comments, I see that the dosages and time you take them may be a factor. I take one 300 mg in the morning and then one hour before bedtime I take 3 of the 300 mg capsules. That schedule may not work for you so keep your options open.

REPLY

I just got an email about Gabapentin and it’s going to be on the doctors program next week. I believe Monday for those who want to hear about it.

REPLY

I have had burning mouth syndrome for 15 years I take Gabapentin 6 a day– I am trying to get off it. seems to make no difference to pain but does help with the thick mucus that comes with this condition. I see the pain clinic every 6 months. I have had bowel cancer twice 20 years apart Doctors do not think it is connected – did have chemo with both. I also don’t think it is connected as it started 7 years after the the first chemo. anyone have this condition?

REPLY
Please login or register to post a reply.