Gabapentin dosage for trigeminal neuralgia?

Posted by pointeofview @pointeofview, Sep 14, 2021

I am currently on 1800 mg/day of gabapentin, but am still having a fair amount of pain. On a scale of 1 to 10, the background level is about a 2 with occasional flares to a level of 5 or 6.
Does anyone have luck with gabapentin, and if so, what dosages?

Interested in more discussions like this? Go to the Brain & Nervous System group.

I take 1,800 milligrams as well. It does help my pain somewhat (I have small fiber neuropathy). I still have pain though. My neurologist also had a compound pharmacy make me a pain compound. The first one wasn’t strong enough so they made me a stronger one. It’s expedited $170 a pump bottle. It helps but I am never pain free. The Gaberpentin does give me horrible brain fog but I I don’t think I could survive without it.

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Hi @pointeofview and welcome.

I thought you might like to read a few articles regarding your inquiry about gabapentin.
Defining the role for gabapentin in the treatment of trigeminal neuralgia: a retrospective study: https://pubmed.ncbi.nlm.nih.gov/14622800/

Gabapentin Dosing for Neuropathic Pain: https://www.practicalpainmanagement.com/treatments/pharmacological/non-opioids/gabapentin-dosing-neuropathic-pain

Trigeminal Neuralgia: A “Lightning Bolt” of Pain: https://www.uspharmacist.com/article/trigeminal-neuralgia-a-lightning-bolt-of-pain

Did you report the constant pain to your physician?

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Can I take 600 mg four times a day?

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600 mg of gabapentin for TN four times a day

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@speercntry

600 mg of gabapentin for TN four times a day

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Hello @speercntry, Welcome to Connect. I'm guessing your question about the amount of gabapentin you can take a day is because of the pain you are having with Trigeminal Neuralgia. As patients ourselves we are only able to share experiences and what helps us. Drugs.com does have a maximum dosage guide that may give you an idea but I would recommend discussing it with your doctor.

Gabapentin Dosage Guide + Max Dose, Adjustments: https://www.drugs.com/dosage/gabapentin.html

Have you talked with your doctor about how much gabapentin you can take?

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Low light laser has helped me hugely. Using THOR machine. Now new crown placed has flared me up. So far no meds here. My case is incredibly complex. I just wish I had someone to talk too to sort things out. Right now I'm into alternate treatment. I've heard acupuncture is good. But low light laser has been amazing.

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@johnbishop

Hello @speercntry, Welcome to Connect. I'm guessing your question about the amount of gabapentin you can take a day is because of the pain you are having with Trigeminal Neuralgia. As patients ourselves we are only able to share experiences and what helps us. Drugs.com does have a maximum dosage guide that may give you an idea but I would recommend discussing it with your doctor.

Gabapentin Dosage Guide + Max Dose, Adjustments: https://www.drugs.com/dosage/gabapentin.html

Have you talked with your doctor about how much gabapentin you can take?

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Thank you for you reply and for the information. I’ve read through the link and have found other sources. Some say 3600 is max others 1800 max. I’ve been on gabapentin for 4 days and have read that gabapentin takes 1 to 2 weeks to be effective. I’ll be calling my doctor today because I don’t seem to be getting much relief. Thank you again for your help.

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@speercntry

Thank you for you reply and for the information. I’ve read through the link and have found other sources. Some say 3600 is max others 1800 max. I’ve been on gabapentin for 4 days and have read that gabapentin takes 1 to 2 weeks to be effective. I’ll be calling my doctor today because I don’t seem to be getting much relief. Thank you again for your help.

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@speercntry
“I’ve been on gabapentin for 4 days”
It’s very eary to call your doctor. Your likely not at a dose that is thereputic for you yet. Why not give it a fighting chance to help you before calling the doctor. 3,600 mg is the recommended maximum dose, not the absolute maximum dose. Some people take more than the 3,600 mg., Gabapentins dose is somewhat side effect driven.
Hopefully it will start to help you but if it doesn’t don’t hesitate to ask for a dosage increase. I knew someone who took 7,000 mg a day without any problems.
Take care,
Jake

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@jakedduck1

@speercntry
“I’ve been on gabapentin for 4 days”
It’s very eary to call your doctor. Your likely not at a dose that is thereputic for you yet. Why not give it a fighting chance to help you before calling the doctor. 3,600 mg is the recommended maximum dose, not the absolute maximum dose. Some people take more than the 3,600 mg., Gabapentins dose is somewhat side effect driven.
Hopefully it will start to help you but if it doesn’t don’t hesitate to ask for a dosage increase. I knew someone who took 7,000 mg a day without any problems.
Take care,
Jake

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Thank you for your reply. I was taking 3,900 with no relief. I must be a sissy I went to the doctors Saturday morning and was prescribed carbamazepine 200mg. One tablet and I was able to eat and drink with very little pain. However I haven’t been able to get a hold of my primary doctor to find out if there are any side effects with otc vitamins.

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I take 3600 mg a day in three divided doses. I am a 72 year old woman and weigh 116 lbs. I take it for post herpetic neuralgia. It helps a lot.

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Thanks to everyone posting their experiences with TN.

I'm so blessed that mine comes on for a relatively short spell (sometimes only a day, and the longest so far for a month), and then disappears for weeks / months. I feel for everyone who needs to resort to taking these strong meds on an ongoing basis to obtain some relief. So sorry!

/LarryG

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@speercntry

Thank you for your reply. I was taking 3,900 with no relief. I must be a sissy I went to the doctors Saturday morning and was prescribed carbamazepine 200mg. One tablet and I was able to eat and drink with very little pain. However I haven’t been able to get a hold of my primary doctor to find out if there are any side effects with otc vitamins.

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@speercntry
I also take carbamazepine although I take the Brand name time release version (carbareol) for seizures. You post made me wonder if the pain from my Neuropathy went away when I started taking it. I wish I remembered. I take 1,000 mg a day.
Like some other seizure medications carbamazepine can lower your vitamin D level. If your doctor doesn’t order a vitamin D level you should probably suggest it. You may have to supplement your vitamin D. Also grapefruit and juice may increase the amount of carbamamzepine potentially increasing side effects. My brother also takes this medication and he drinks grapefruit juice but it has no effect on him.
Good luck,
Jake

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