Mayo Clinic Connect
Has anyone every experienced muscle and facia pain from gabapentin?
Liked by Mamacita, Volunteer Mentor
I have been on Gabapentin for 5 years now after Chemo. I have been able to decrease my dosage and am now on 600,g 3 times a day. For a while I was on 900 mg 4 times a day. I would set my alarm to wake up and take it because if I didn’t the pain was severe. I guess I live with pain of about a 3 out of 10 all of the time. It is worse in the morning because I go longer than 8 hours to take the Gabapentin. It is a lifesaver. I did have a weird flare up and acupuncture brought it back down to my normal level. I also sometimes get a numb tongue and upper lips and chin. Weird!
Hello i took gabapentine for 3 months. I didn’t feel any pain relief. I did feel sleepy, had memory loss and muscle spasms in my legs and hand. I was up to 600 mg daily. When the spasms started i stopped taking it
Liked by Mamacita, Volunteer Mentor, GailBL, Volunteer Mentor
Hello, everyone, I’m new here, & this is my first post. Was I supposed to start a new post, or reply to one? I think this is a reply. I’m Susan, username @sistergoldenhair.
I take Gabapentin, 900 mg/day, (300 mg x3/day FOR Myofascial Pain. Myofascial Pain was described to me as nerve pain. This is how It was explained to me: The Fascia is part of the muscle; the Fascia sometimes ‘binds’ up the muscle, & the nerves in the muscle & Fascia cause the pain. Is this close to being accurate?
This started 14 mos. ago, & came seemingly out of nowhere. Gabapentin helped initially, but not anymore. My doctor suggested a higher dosage, but I don’t want to do that, for the reasons described by some of you in this forum. With this dosage, (900 mg/day), I don’t experience the ‘zombie effect’, or the all over restlessness. Restless Legs is bad enough, AND the Gabapentin doesn’t seem to aggravate my restless legs. According to literature I’ve read, it’s sometimes prescribed FOR Restless Legs Syndrome. I also take Tramadol, which works well for my long-standing low back pain, but has no effect on this Myofascial pain.
Back to Myofascial Pain Syndrome: I take physical therapy; the therapist has minimal training in Myofascial Release, & spends little time with me. I also had several sessions with a massage therapist with extensive training in Myofascial Release. It helped, sort of. Between sessions, the pain returned, and at $125/visit not covered by medical insurance, I couldn’t afford to continue the sessions. Have any of you had Myofascial Release therapy?
I’m back to square one. The pain comes on with exertion, only affects a specific area, the Latissimus Dorsi (sp?), R side of my back. Wen I use that muscle, like reaching for or lifting something, e.g cooking, laundry, cleaning, the pain starts. Continuing to use the muscle aggravates it enough that I have to lie down, & the pain usually eases up after about 20-30 minutes. When I’ve got a crowd of people waiting for dinner, I don’t have time for rest breaks.
This is lengthy because I wanted to let you all know what’s going on, & what I’ve done for it. BTW, It took months of complaining before my Primary Physician referred me to a specialist. It was initially mis-diagnosed by a Rheumatologist as Shingles Neuropathy without rash, & re-diagnosed by a Neurologist as Myofascial Pain Syndrome. Thanks for reading, & I hope you’ll respond with your thoughts or recommendations.
Liked by RoverGal, Mamacita, Volunteer Mentor
I have been taking gabapetin for pain in my feet. I have to take a fairly high dosage (1200). I have developed pain in my muscles. I’m beginning to think the gabapetin is causing pain in my calves and other muscles. I really need something for the neuropathy. I took Lyrica and it was great at first but stopped working after a couple of months. I feel like I can’t win for losing. I take one thing for pain and it causes pain somewhere else.
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Welcome to Connect juliawillc. I moved your discussion topic to an existing discussion called “Gabapentin and muscle pain.” Here you will find a robust conversation taking place on Gabapentin and some of the symptoms other members have experienced as a result.
I would like you to meet @1947 who recently posted about muscle spasms as a result from taking Gabapentin. I would also like you to meet @bryguy, @lauriedr, and @sandytoes14 who may be able to offer insight on other treatments that worked for them.
@nursegigi, as the creator of this discussion, what sort of pain did you experience as a result of taking Gabapentin? Was it similar to juliawillc’s side effects?
Juliawillc, you mentioned you took Lyrica, could you share what other treatments or therapies have you tried? Other members shared their concerns over memory loss and “zombie” like side effects from high dosages of Gabapentin, could you share whether you have experienced this side effect or not as well?
Liked by Gina
@JustinMcClanahan, I used gabapentin in moderate doses for migraine headache for 2 years. I was a zombie and have very little memory of that time period. One day I held my daughter’s tiny hand; after an intervention by friends, I got off the useless med. I next held my daughter’s now 5 yr old hand, and it was big. I hadn’t noticed. I still cry about those lost years that I can’t remember. If you do take gabapentin, have an attentive person watch you closely. My busy husband didn’t notice the change in me, but good friends did. Be careful of that powerful medicine!
Liked by Mamacita, Volunteer Mentor, noreenf
Well after some time off gabapentin I realize it actually made my Crps worse. I couldn’t sleep eat think or remember anything and it made me emotional and suicidal. Never will take it again
Liked by Mary, Mamacita, Volunteer Mentor, noreenf, paracat
Yes I had pain in my hands and feet. My feet would swell causing pressure and pain
@juliawillc and @JustinMcClanahan I did not have muscle pain specific to taking gabapentin 1200 mg daily, I had memory loss and was feeling like I was going to fall. Have you had your vitamin levels checked? I found I was low in Vitamin D and magnesium. I take Caltrate D3 with MSM. There is also something called magnesium oil that I use. http://www.ancient-minerals.com It is available on Amazon. I had no luck with Lyrica.
This Myofascial Pain, as my doctors call it, is interfering with my life; I can’t even make the bed anymore without the pain flaring up. I take Gabapentin FOR Fascia/muscle pain. It seems like a paradox that some of us take Gabapentin to relieve pain, and others start having pain from the drug. Is it dose related? Just that people react in different ways to the drug?
I can’t say my pain is any worse w/ Gabapentin, but it sure isn’t any better. After reading some of the side effects others experienced, I’m reluctant to take a higher dose than now – 900 MG/day. I’m considering tapering off; why should I take medication that isn’t helping? Another thing – I don’t think my doctors take this ‘condition’ seriously.
P.S. I submitted a post Oct 4 to introduce myself to the group; it explains how/when this started up to the present. It’s sort of lengthy; I was trying to report my own experience to the group, but I didn’t receive any responses.
I take lyrica now just 150 mg per day, and it is comparable to the 1800mg of gabapentin I was on.
Sorry I didn’t respond. I see a lady with myofacial pain release experience. She also has training in acupressure. It worked wonders. I also switched to lyrica
Hello sistergoldenhair, thank you for sharing your experiences and frustrations associated with your myofascial pain, as well as gabapentin. I invite you to view this Myofascial pain syndrome discussion that took place in the past as it may offer some insight on other methods of treatment and therapy, https://connect.mayoclinic.org/discussion/myofascial-pain-syndrome/.
I would also like to invite back @cork179, @aglassofsherry, and @almyalgia, who previously discussed symptoms very similar to yours and may be able to offer their thoughts on your experiences.
@sistergoldenhair, could you explain more about the physical therapy you received? You said that the therapist spent minimal time with you, but are the brief therapy sessions helpful in any way? Do you think with better direction that physical therapy may be helpful?
Hello, @JustinMcClanahan – I like you already with that Irish surname. Thanks for the link; I just read it. I was originally in PT for my shoulder, tendonitis. After about 7 mos. of Myofascial Pain, getting a diagnosis & RX of Gabapentin, the PT put emphasis on relief by using ultrasound, abt 5 min.; electrical stim, 10 min.; & soft tissue Myofascial Release – abt 5 min. I do shoulder strengthening exercises on my own at the PT facility & at home. The relief I get from all this is temporary; my insurance is about to run out for this year. I can continue exercise at home, & go to the Chiropractor for electrical stim and ultrasound. I think I’ll try for a referral for PT that will concentrate more on Myofascial Release next year when my insurance starts again, if this doesn’t resolve. That’s a question I’d like to throw out – has anyone ever had a spontaneous resolution of their Myofascial Pain? My Neurologist said it was a possibility.
I saw posts from members who said they had no relief from acupuncture, but I think I might give it a try anyway. My Chiropractor is certified to perform acupuncture. I see a lot of dissatisfaction from people taking Gabapentin, & I sure understand that. I’m serious about tapering off of it, & keeping a pain diary from now on. My Physician is offering Lyrica as an alternative, but I’m leery of side effects. Though it doesn’t help, at least the Gabapentin isn’t causing unpleasant side effects. I’d rather do without either of those meds.
I have arthritis involving my entire spine-worse in the low back. Tramadol takes care of that, but has no effect at all on the Myofascial Pain. One thing that helps is a muscle relaxant called Zanaflex (Tizanidine) that I take at bedtime. I take a half dose & it knocks me out, so I can’t take it during the day & function. I wouldn’t get behind the wheel of a car if I took it in daytime. I’ve received injections – no help.
I just want to be able to cook a meal, do household chores, and a little gardening without this pain, which comes on with exertion. The pain originates in the Latissimus Dorsi muscle, & radiates through my back, on the R side, extending around to my ribs. In fact, my initial complaint was Rib Pain. I’d never heard of Myofascial Pain until this year. Nothing showed up on an MRI. The Neurologist who diagnosed me said the muscle is ‘tight’ & ‘bound up’ by the Fascia, affecting the nerves & causing the pain. Are the others in this little group getting the same kind of explanation for their Myofascial Pain?
Thanks for responding. I saw a Myofascial Release therapist too. I felt better for a short time; it always came back, & it was getting awfully expensive, so I’ve been trying to get relief from therapy covered by my medical insurance. I’ll have to look up acupressure; don’t know anything about it. I fear side effects if I start Lyrica.
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