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Functional (Psychogenic) Movement Disorder
Has anyone else been diagnosed with Functional (Psychogenic) Movement Disorder? I have uncontrolled leg, arm and body movements. I now stutter and have an extreme startle response. Only thing that helps is 300mg of Gabapentin 3 times a day. I was taking Alprazolam but have discontinued using it due to a fear of addiction. I'm particularly interested if anyone has received treatment and if so, what was the treatment?
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Thank you so very much for your suggestion. I was diagnosed in November of 2024 and your suggestion is the first practical suggestion/help I have received since that time. The only help I have received from the neurologists at the University of Louisville Neurology is to take 300mg of Gabapentin three times a day. I would appreciate it if you would share whatever other physical or mental direction you have been given during your therapy. Would you also be kind enough to tell me where you are receiving your therapy?
I had responded to your post a few days ago, but I don't see it on the site, so I will try to repeat what I said earlier. I really appreciate your suggestion on how to cope with tremors/uncontrolled movements. Yours is the first concrete suggestion on how to cope since I was first diagnosed. The only direction I received from the neurologists at the University of Louisville medical center is to take 300mg of Gabapentin 3 times a day. It does help control the movements, but not so much with the stuttering and startle response. You say you are receiving treatment, and I would ask if you would be kind enough to tell me more about the treatment and which medical facility you are attending. Again, I really appreciate you reaching out to me.
@wilmslow my neurologist suggested that I get both mental therapy, and physical therapy. I needed to find therapists who are knowledgeable with FND.
I have found both. I’m not sure the physical therapy is helping me move better. I’m still stumbling around with my walker.
FND is compared to a computer software problem. Our brain is not broken but the software that connects the brain and our body needs to be repaired
Check out, fndhope.org they have lots to see on FND.