Functional Neurological Disorder

Posted by amber3212 @amber3212, Wed, Feb 20 11:56am

Anyone have FND? Looking for more info and someone to talk to, also on how to get treatment. Thanks!

Liked by Dee, Leonard

@paulalina

I called Mayo, sent them an email registration form and within three days had an appointment at Mayo Rochester. We are only three and a half hours drive from them so it's the closest for us. I was so impressed with the patient care, team approach to care, the volunteers were amazingly helpful and they are easy to find because there are so many of them. It took me almost two and a half YEARS to get into a Neurologist in the Quad Cities area where we live. Mayo certainly went above and beyond for me!

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How wonderful, @paulalina! I'm glad to hear that you were able to get into Mayo, Rochester. I'm looking forward to hearing about your experience at Mayo!

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@jenniferhunter

@redhead63 A liver condition can cause higher ammonia blood levels. I used to take care of an elderly woman with this and the cause was alcoholism that resulted in liver damage, so the waste products were not converted properly into less toxic products to be excreted by the kidneys. She had brain damage from the ammonia that resulted in a loss of short term memory. Here a link that explains the process. https://www.mayoclinic.org/tests-procedures/blood-urea-nitrogen/about/pac-20384821

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Hi Jennifer l just saw your post but elevated ammonia levels are not always from alcohol. I have elevated ammonia levels and mines is from non-alcoholic liver disease. Mines was from medications. Ones l was allergic to and also recall one and antidepressant. I was placed on 3 recall high blood pressure meds. And when l came to the mayo clinic on my records the doctors always put on that l was previously on depakote. Which l told the doctor l was having reactions too. So it was the medication. But they really don't look at your ammonia levels. They go buy your symptoms. So now l just have to end differently and rest. So it's not always from cirrhosis.

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@techi

Hi Jennifer l just saw your post but elevated ammonia levels are not always from alcohol. I have elevated ammonia levels and mines is from non-alcoholic liver disease. Mines was from medications. Ones l was allergic to and also recall one and antidepressant. I was placed on 3 recall high blood pressure meds. And when l came to the mayo clinic on my records the doctors always put on that l was previously on depakote. Which l told the doctor l was having reactions too. So it was the medication. But they really don't look at your ammonia levels. They go buy your symptoms. So now l just have to end differently and rest. So it's not always from cirrhosis.

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@techi Lisa, thanks for adding your input to the discussion. Basically, because ammonia is a toxic waste product of metabolism, the body needs to convert this to urea which is a less toxic waste product that is excreted by the kidneys. Anything that interrupts that process could affect it. I'm not a medical professional, and it's likely that there could be different reasons for a condition. Often, there can be overlapping symptoms for different medical conditions that share common symptoms. As patents, we should try to be aware of this, and doctors take many factors into account when they connect symptoms to a diagnosis. I'm glad you have discovered the source of your condition and taken action. It's good to know about and pay attention to adverse effects from prescription drugs, and to bring this to your doctor's attention.

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