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amber3212 (@amber3212)

Functional Neurological Disorder

Brain & Nervous System | Last Active: Jul 17, 2021 | Replies (49)

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Sending my prayers for healing. So much to handle…you are such a strong person. Has anyone mentioned to you CIDP? I was just diagnosed with CIDP and so many of your symptoms are listed under this neurological disease. God bless!

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Replies to "Sending my prayers for healing. So much to handle...you are such a strong person. Has anyone..."

Yes that is what they thought I had first. My nerve conduction studies have been normal. Also, I was already getting IVIG once a month when the ascending paralysis started. CIDP usually stays under control with IVIG. I was on monthly IVIG for 1 year after this started. My episode in February was only 2 days after my IVIG infusion. I just had a second EMG/nerve conduction study done during the acute phase of the paralysis and it is still normal so CIDP has been ruled out more than once.

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