Full body Loss of sensation(numbness) and tingling

Hello,
I know your post is from 2022, but I'm wondering if your still experiencing the same symptoms? Did your symptoms get better or worse? Did any of the doctors you saw have given you a diagnosis? I'm sorry for all my questions. I have been going to the doctor due to tingling, burning and numbness in my hands, arms, legs and feet. So far from what I am being told is it's due to long term effects of covid. It's very scary and I'm honestly at loss. I'm scheduled to see my neurologist again in February. I have gone for CT scan, MRI, EMG and bloodwork. All are coming back normal. I even had one doctor tell me it's a pinch normal and put me on naproxen. Nothing seems to help. The symptoms seem to be getting worse. I also saw a vascular Dr that put me on a daily baby aspirin. I almost feel like my nervous system is being attacked. Ever day I wake up and there's a new part of my body that feels the burning, tingling and numbness. Thanks for listening to my rant. It's definitely taking a toll mentally.

@lmmaldonado
I’m so sorry you’re experiencing these symptoms. Have you been tested for Small Fiber Neuropathy? I’m having burning throughout my entire body but my head and my mouth are feeling the worst. I know how frustrated you feel. I will be praying for some relief!!

@jandy88us

Hi
I haven't been tested for small fiber neuropathy. I will ask my doctor so I can get tested. I recently had a doctor tell me it is all in my head literally. Basically saying I'm imaging it all. Thank you very much for your response and I'm sorry your experiences this as well.

@lmmaldonado Were your MRIs done with contrast? Did you get an injection of dye halfway through the MRI? Several years ago I had symptoms similar to yours. I was diagnosed with Transverse Myelitis. Its an inflammation of the spinal cord resulting in demyelination. Its diagnosed using MRI with contrast.

@lmmaldonado
I’m so sorry you had a doctor say that to you!! It’s so wrong! I had a neurologist tell me to stop thinking about and it will go away!
Thank you for replying!
You’re not alone! Stay in touch! I’d really love to hear how you’re doing! Praying for relief and for answers!🙏🏼

@sandy8043
So far the MRI I had done has only been of my brain with and without contrast. I'm writing every possibility down and taking this information back to my doctors. Is there treatment for transverse myelitis?

@jandy88us
I'm sorry you were treated that way as well. Imagine if it was that easy to stop thinking about something and it actually goes away.

@lmmaldonado TM is in the spinal cord. It will "light up" with the contrast in an MRI. Treatment in my experience was steroids during the active stage meaning when the disease is active and causing demyelination. Once the damage is done and the disease goes dormant the dye won't show much. Treatment at that time was not medication in my experience. It was PT, OT and strength training. There may be newer treatments now.

@sandy8043
TM sounds very scary. I'm so sorry this is happening to you. Thank you for explaining and educating me. This is more information I can take back to my doctors office.

@lmmaldonado Thank you for sharing this with us! It took some courage. on your part, I reckon, to state that a Doctor told you, it was all in your head! That was cruel, of the Doc, to say that! Several times, in my long life, of nearly 80 years, I have had Docs brush me off like that! Each time, however, I ‘fired’ them, and refused to see them again! I was having numbness, pins and needles, etc. on my back, legs, and hands on and off, at times. So, my family Doc sent me to a Neurologist within the health system that I had medical coverage! The neurologist did a once over, quick check, and declared that my varicose veins, in my legs, were causing the problem. I asked my primary care Doc, “How can that be the cause, like, of my numbness, in my back!” He agreed, and was skeptical of what the neurologist had said. I told my primary Doc. that I did not want to go back to that neurologist! My primary Doc thought that I had a real neurological problem, that needed to be addressed, so, he sent me to the best well known Neurologist, in the major metropolitan city, that we lived in, and approved payment by my medical insurance! I am the type of patient who seldom complains, unless I am having a big problem. Anyway, the well known Neurologist was a Professor at one of the top medical Universities in the nation, which just happened to be my Alma Mater! So, this young lady, examined me thoroughly, finding neurological signs, that revealed a definite neurological deficit. Immediately, she put me in hospital! I was tested with scans ( except MRI - which had not yet been invented and produced for hospital use. ). EEG’s, and each day, medical students ( because it was, and still is, a teaching hospital ), examined me, and questioned my history of symptoms. After a week, or so, of being in hospital, the Neurologist released me with the diagnosis, of Probable Demyelinating Disease ( Possible Multiple Sclerosis ). So, this Dr. followed up, with me, for the next several years. I was about 30 years old, at that time. My symptoms gradually got worse, and more neurological signs revealed possible cranial nerve root compression symptoms.So, the excellent Neurologist admitted me to Hospital again, for a series of testing! This time I was in hospital for another week! The Hospital had just gotten their first “experimental” MRI machines, and I was one of their first patients, for an MRI scan! The MRI scan revealed some demyelination in white matter, in a small portion of Mid-Brain, but that was all! So my Neurologist pursued my case further. She brought my case up to the Chairman of Neurosurgery, at the World Class University where our city is, and where she was a Professor! The Neurosurgeon just happened to be one of the most respected, and famous surgeons, within the USA. He had trained, and graduated from the well respected Harvard Medical School Neurosurgical program! This humble Dr. approached my bed, and talked to me, like I was the most important concern on his mind! He was very kind, and examined me, taking the time to explain my situation. He stated that he thought I might have a brain tumor, pressing down, on the cranial nerve roots, that are situated at the cerebellum/pons level, of the midbrain. So, he stated that soon he and his assistants would take me to the operating room, and they would perform an Arteriogram on me, to see exactly what was going on, because the MRI did not show much, in the respect that there could be a tumor. Dye would be injected, and a little camera, would be inserted etc. They found an artery anomaly, that was pressing down on the cranial nerve roots, in my brain. Afterwards, the Neurosurgeon and his #1 Assistant came up to my hospital room, and told my wife and I the diagnosis! He said the anomaly was extremely rare, and showed us the picture from the little camera, that had been inserted, in my arteries, when they did the Angiogram! The Neurosurgeon then stated that the anomaly was not operable, because of the area of the brain, where it is, so he prescribed blood pressure pills, that keep my blood pressure low, and heart rate low! The Neurosurgeon saw me at the hospital neurosurgery clinic for several years, after that, to adjust medicines, etc. and keep symptoms under control! The one symptom that plagued me the most, has been severe migraines, that have sometimes lasted several days! I have pain medicine for that. The point of my telling you my history/story like this, is to encourage you to not give up! Please keep on pursuing getting answers for your symptoms, even if
it means finding another Dr. who is willing to care enough, for your well-being, that they will do whatever it takes, to find the source of your sympyoms/problems, and will prescribe a remedy, if possible! Wishing you the best!! Again, thanks so much for sharing your concerns!