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FS-DFSP (Fibrosarcomatous dermatofibrosarcoma): Anyone else?

Posted by citizendeveloper @citizendeveloper, Jan 6, 2025

I was diagnosed with FS-DFSP. I've already had my MOHS surgery, and today I meet with my Oncologist to get the results of my CT scan. Is there anyone else who is currently fighting this rare cancer? Also, did you buy a lottery ticket? 😀

Laugh or cry, why not do both!

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cmiller1122 | @cmiller1122 | Mar 13 3:18pm

Rare diagnosis of fibrosarcoma ex DFSP has anyone heard of this?Newly diagnosed with further pathology testing currently being done. Has anyone else heard of this fibrosarcoma ex DFSP.

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Colleen Young, Connect Director | @colleenyoung | 1 day ago
In reply to @cmiller1122 "Rare diagnosis of fibrosarcoma ex DFSP has anyone heard of this?Newly diagnosed with further pathology testing..." + (show)
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Rare diagnosis of fibrosarcoma ex DFSP has anyone heard of this?Newly diagnosed with further pathology testing currently being done. Has anyone else heard of this fibrosarcoma ex DFSP.

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@cmiller1122, welcome. To help you connect with other members, I moved your post about dermatofibrosarcoma protuberans (DFSP) to this existing discussion:
- FS-DFSP (Fibrosarcomatous dermatofibrosarcoma): Anyone else?https://connect.mayoclinic.org/discussion/fs-dfsp/

Here you can connect with @citizendeveloper @biceto @karlman @susangourdlady @lala1989 @sarab74 and others who have experience with DFSP.

@cmiller1122, have you completed the diagnostic pathology now? What is your treatment plan? How are you doing?

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