← Return to FS-DFSP (Fibrosarcomatous dermatofibrosarcoma): Anyone else?

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@humbl3reh192 , my pathology from the surgery where diagnosis was first confirmed, indicated deep margin of 1.3mm. I was referred to a specialist Professor and had a further surgery at the major cancer facility in my state. My location was low back, so plenty of soft tissue to manipulate to cover the defect of a very wide excision. Very different to a scalp location. I did not have Radiotherapy or Glivec. I was frequent follow ups and scans for 5 years before being released from the Cancer hospital and on my own preference, continued privately with another Professor until the 10 year mark. All good so far!
If you have conflicting advice, it is difficult to know what to do. The question to ask is, do you feel comfortable with one path or the other. If not, perhaps talk to another professional with expertise. Ask your medical team for a referral for overview. Wish you will.

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Replies to "@humbl3reh192 , my pathology from the surgery where diagnosis was first confirmed, indicated deep margin of..."

@biceto

Thank you for your response.

I'm taking few other opinions regarding the radiation, most of them suggested that its a precautionary, not that its needed.

Im more inclined towards surveillance, as i dont want to get the radiation done and bear the side effects of something which is not there.

Wish me luck. Hope all gets better but seeing your case which is similar to mine gives me hope that I should be fine.

My deep margins are 3MM with the doctor removed the periosteum layer, also that layer came negative. So it give me confidence

@biceto

Hi, may I know your distance of deep margin? Mine is 5mm and suggested to do radiation for better result. For myself I don't want to do as the main side effect is it would hurt my kidney. I want more opinion. Thanks