← Return to FS-DFSP (Fibrosarcomatous dermatofibrosarcoma): Anyone else?

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Profile picture for humbl3reh192 @humbl3reh192

@biceto hello, i'm really happy for you
. My doctor thought it was sebaceous cyst on the back of the scalp i got it removed later in the biopsy i found out that it FS-DFSP, before going into wide excision removal i had my MRI and CT scan done which was clear. Got the surgery done 15 days back and now recovering well with wide clear margin and the smallish deep margins 0.3Cm.

Now one of the radiation oncologist suggests that i should go for surgery which im not keen on, but my surgeon is quite confident that he has removed everything even the extra layer under the deep margins. .

Would you recommend radiation? Or anyone?

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Replies to "@biceto hello, i'm really happy for you . My doctor thought it was sebaceous cyst on..."

@humbl3reh192 , my pathology from the surgery where diagnosis was first confirmed, indicated deep margin of 1.3mm. I was referred to a specialist Professor and had a further surgery at the major cancer facility in my state. My location was low back, so plenty of soft tissue to manipulate to cover the defect of a very wide excision. Very different to a scalp location. I did not have Radiotherapy or Glivec. I was frequent follow ups and scans for 5 years before being released from the Cancer hospital and on my own preference, continued privately with another Professor until the 10 year mark. All good so far!
If you have conflicting advice, it is difficult to know what to do. The question to ask is, do you feel comfortable with one path or the other. If not, perhaps talk to another professional with expertise. Ask your medical team for a referral for overview. Wish you will.