Frustrated and worried about my husband

Posted by lspencer34 @lspencer34, Mar 25, 2019

My husband unexpectedly had a seizure in his sleep about 5months ago which scared me and him and left us curious. He was sent to see a nurse practitioner in the neurologist dept who did a Sleep deprivation EEG showing him having 4 seizures during his test. She was unsure of exactly why he was suddenly having seizures but stated that he was having right side focal seizures and they found a smal granuloma in his left temporal area but stated he wasn’t causing the seizures 🤔. His medicine was changed once and now he is on Topamax 200 mg daily at night. He has also been diagnosed with Obstructive Sleep Apnea also. But he has not had another seizure for 5 months until Thursday and it was while he was driving (yes I know he was not supposed to be driving but he gave me so much hell I allowed him to drive to work and home) 😭 but his accident was so bad and he walked away with only pain but y’all he doesn’t remember anything from the accident and I’m worried. I do believe he had a seizure. I’m also concerned because since being on Topamax he has moments when he unexpectedly laughs during our conversations and won’t respond to me when it happens and after he doesn’t recall doing it. Now I’m noticing he is having difficulty at times not all the times but sometimes with comprehension or getting his words out 😭😭😭😭. So this is where I’m at a frustrated, worried, emotional and praying wife wanting help, wanting a second opinion and some answers. I’m sorry for the long message but I wanted to tell y’all everything from the beginning to now.

@jakedduck1 Hmmm, that sounds difficult. How did you fare through it?

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I just heard from my neuropsychologist. The results of the testing were that my short term memory is bad and the probably a result of the seizures and Lamotrigine. He gave little hope for the improvement of the memory.
If your husband's seizures are under control, he may be better off. My seizures occurred over a two year period before finally being being brought under control. This was mainly due to not being sent to a neurologist by other doctors.
Give my best to your husband and hang in there like my.wife.has done.

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@bruceg

I just heard from my neuropsychologist. The results of the testing were that my short term memory is bad and the probably a result of the seizures and Lamotrigine. He gave little hope for the improvement of the memory.
If your husband's seizures are under control, he may be better off. My seizures occurred over a two year period before finally being being brought under control. This was mainly due to not being sent to a neurologist by other doctors.
Give my best to your husband and hang in there like my.wife.has done.

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Hi, @bruceg – I'm sorry to hear that the testing by the neuropsychologist showed that your short term memory is bad and the probably a result of the seizures and lamotrigine. How frustrating that he gave little hope for memory improvement.

Did he suggest any therapy for working with the short-term memory issues?

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@lisalucier

Hi, @bruceg – I'm sorry to hear that the testing by the neuropsychologist showed that your short term memory is bad and the probably a result of the seizures and lamotrigine. How frustrating that he gave little hope for memory improvement.

Did he suggest any therapy for working with the short-term memory issues?

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Both he and the neurologist gave me the usual advice of crossword puzzles, proper diet, good sleep and exercise.

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@bruceg

Both he and the neurologist gave me the usual advice of crossword puzzles, proper diet, good sleep and exercise.

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@bruceg
Hi Bruce,
Don’t discount those things, they may help and certainly won’t hurt. I still recommend a good Speech Pathologist and various types of brain games.
Jake

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@bruceg

Both he and the neurologist gave me the usual advice of crossword puzzles, proper diet, good sleep and exercise.

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Hello @bruceg, as @jakedduck1 said, don't discount the advice of "crossword puzzles, proper diet, good sleep and exercise." These are important for us all who want to be our best cognitively and physically.

I agree with @jakedduck1 as well when he encouraged you to pursue a referral to a speech pathologist. They have some very good techniques for helping people with organic brain problems. I think you would find it most helpful.

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