Frustrated and still no diagnosis

Posted by LAL7792 @lal7792, Mar 13, 2012

Hello everyone, I am new here and been having issues for two years now with extreme fatigue, loss of appetite and weight loss. I have had extensive testing performed by every specialist you can imagine and still have no diagnosis of what is wrong with me. It has been suggested by a few specialists that I should go to the Mayo Clinic or Johns Hopkins. I’m afraid that I’ll be wasting my time and money and they will just test me for all of the same things again. Anyone know of anyone else who has these symptoms and have no diagnosis? Everyone says that my symptoms are so vague it could be a million things but that’s not helping with how I’m feeling.

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@css

Hi, I went to Mayo after I was diagnosed with Churg-Strauss Syndrome, it’s an autoimmune disease.I had never heard of it and wanted to make sure I had the correct diagnosis. I didn’t feel well for about 10 years. Even had a dr. tell me it was all in my head. You need to go to Mayo and keep trying to find out what is wrong. Please don’t give up. You just need the right dr. to figure out what is wrong. Mayo was great. My drs. were very knowledgeable,listened to me, and were willing to work with my doctors back home. I was there 3 days. The appts. were scheduled quickly and there was no wasted time. I was impressed with the efficiency. Good luck .

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Also Parathyroid and hypolthalumus

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hi. i am really sorry to here this. i am experiencing simalair problems. for the past 3 years i have headaches . dizziness , pins and needles and muscle pain especially in my hips. i have been to numerous doctors but to no avail. i recently saw a doctor who diagnosed me with RA. i was on medication but saw no results. i visited another doctor and he said i have vitamin d deficiency. i just started the medication and i am waiting to see the results. hope we both get better soon 🙂

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@emcris

I know the feeling…. I don’t have the same symptoms but I have beenin and out of hospitals for a year and I still have not found what’s wrong…. I keep passing out and having low blood sugars

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sounds like what my mom experiences when her dumping syndrome happens

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Hi! I can relate to you as I am experiencing the same things as yourself. I was reading through the reply’s and wanted to share my story. Long story short: I have been dealing with health issues for the past 5/6 yrs. I have had severe stomach pain & a significant amount of weight lost in a short amount of time. Doctors have ran every kind of test imaginable including blood work on me. 2 yrs ago a women’s health doc. diagnosed me with Celiac’s Disease. I was tested for that same thing by a different doc. about a yr. or so before that and wasn’t picked up. I have been following the gluten free diet since even though I cheat every now & then 🙂 Not only is it a HUGE adjustment but also is hard & expensive. I find myself having a hard time believing that’s what I have because I am able to eat wheat most times and I am fine- my stomach does not seem to be in pain. It goes in spurts though. I have been experiencing back pain since Feb. that has returned again. My pain was so bad that I couldn’t get out of bed and went to the doctor when they said my white blood cell count was HIGH & I had a kidney infection & put me on antibiotics. Then the doc. office called me back 3 days later telling me based on my culture results that I didn’t have a kidney infection and I didn’t need to take the antibiotics.I went back the doc. who then did 2 ultrasounds looking at my kidneys & galbladder, ect. then did a hipascan where they study/look at your galbladder. All of those tests came back fine.
I then went to my Women’s Health doc. a few weeks later where they ran the same tests and said my white blood cell count was LOW! They told me they were going to retest me a few weeks later and haven’t been done yet. Since my pain has returned I’m going to go back to the doctor and insist something be done.
I know how frustrated you must be- I feel the same way and am tired of being tired and sick everyday of my life!! Easier said than done but hang in there & keep me posted!

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@emcris

I know the feeling…. I don’t have the same symptoms but I have beenin and out of hospitals for a year and I still have not found what’s wrong…. I keep passing out and having low blood sugars

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If you are passing out and have low blood sugars then make sure you intake enough carbs through the course of the Day and even throughout the evening!!! Do what ever it takes to not let your body get to the point of “passing” out !! it is quite unfortunate that sometimes there is no answer as to the cause… so one must treat the symptoms… Good luck

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@china

How about Lyme disease

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I’m flustrated, vexed, disappointed, outrage about my entire situation! Texas had the audacity to tried to kill, or demise my health totally; to get rid of vital evidence, DNA! However, TX didn’t have the courage, will power to admit they were wrong, and be held accountable for their actions!

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@china

How about Lyme disease

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My health crisis is so bad, out of hand! Texas is refusing to offer me the following: social, emotional, legal, and medical attention! I have reach out to the USA, with my concerns, situation; but the USA including the President has refused, wont reach out, help, support me at all! Thats for sure!

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@china

How about Lyme disease

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Since June 09, I had tried to get answers, properly diagnose, treated, told the truth, closure, justice, and recompense for; the unnecessary harm, mental anguish, emotional trauma, neglect, endangerment, and collateral, punitive damages! I’m still waiting for justice in my situation! For real!

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@china

How about Lyme disease

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Hi, severe anxiety and drepression can cause a lot of problems. Trust me I know! Since my little girl has been gone, I have had a “mild cardiac episode” more or less a mild heart attack that was completelystress induced. I also had the vertibrae in my neck and back dislocate because of the stress. Mental definitly has a direct connect with physical. However, when it gets to the point of unexplainable torment and misunderstanding; I would sit down and pray. My experiences with things are more extensive than what I protray. I do understand.

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@china

How about Lyme disease

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In my case it’s not like I’m not aware, or have some type of knowledge about what went down/happen! It just that the State of TX, Gov. Perry, The Criminals(Albertson’s, Dallas Housing Authority, and Doctors/Medical Professionals), Don’t Wants To Admit, Accept That a Crime Was Committed!

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@china

How about Lyme disease

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However, God Sits High and Looks Low, and Yet Sits On The Throne! He is All Knowing, Powerful, Wise, Lives Forevermore, Omniscient, Omnipotent, OmniPresent! What You Do, Did, or Done To The Least of The Brethrens/Littleones; God Said You’ve Did, Done the same got damn thing to Him!

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