For basal cell carcinoma has anyone had to use vismodegib?
I have bcc which was not detected for sometime along the side of my eye. I was scheduled to have moh surgery but right before they decided to do the surgery my eye appeared a little off and they were afraid the bcc may have worked back behind or into my eye. After and mri and to my understanding some cells have worked backed by the socket. They also feel since my eye does not sit straight it probably has it as well. The plan is for me to take the pill vismodegib (erivedge) for two months and to kill off the bcc and some surgery probably to follow. My question is has anyone used vismodegib? And it’s effectiveness.
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I also had a deep basil bbc behind my eye that was very advanced and went from a Mohs surgery to a scan then a deep surgery. Just before going in from my surgery, my surgeon informed me how deep it was and that I might lose my eye. It was a three hour surgery and the outcome. They said it was successful and they felt like they got all the cancer. I then went to an oncologist and started taking everidge 150 ml once a day. My oncologist believed that there could be slight traces of cancer that could come back. I had a cancer same location started in my temple five years prior and had radiation. I wish I would’ve known about average then and not taken radiation. Unfortunately, my oncologist then didn’t recommend me to take scans to monitor it so I didn’t and then five years later had this second surgery. Since my surgeon felt like he had removed all the cancer there has not been any cancer showing up in my scans that I take every three months. It’s now been 13 months since I’ve started taking the medication and my oncologist has not given me any signs of when I will be able to stop taking it. The problem I have with it is it started off his minor cramps and his become major cramps at night in my legs and feet where I have to get up. My oncologist recommended me to stop drinking milk and was in denial that it was even from the average, which was very disappointing. It was not a Mayo clinic doctor. I have been looking for a group or someone else that has had success. When contacting the pharmaceutical company they do not have any recommendations for anything as far as food diet, but to take what not to take recommendations if I should have a gastrologist. I feel like with my bowel movements that I’ve had there must be a way to help my gut to get better. Trying to manage that now in a suggestions for helping with gut or with cramps from other patients. Average only did one study in 2019 with 32 patients after six months the patient stopped taking average. All of them had seen the cancer go away in another six months 11 of the patients the cancer came back. Very disappointing they’re not continuing to do other studies. I know that I’ll be taking blood work monthly and scans at least several times a year forever since it came back to my location twice . I have an appointment tomorrow with the Mayo Clinic doctor. Looking for help looking for answers to help sustain a more normal life
Everidge is a form of vismodegib.
I don't know about that study, but my doctor told me that Erivedge has an over 90% success rate; it is, however, typically prescribed for people with cancers that are considered either treatment resistant or advanced, so a certain subgroup of BCC patients who may have fewer options in the first place. Thomas Seyfried is a cancer researcher you can find on YouTube; he has specific dietary strategies that will improve outcomes of conventional cancer treatment. But it strikes me as interesting that yours has returned to the same location; again, my doctor told me this was unlikely. My BCC is on the helix and adjacent areas of my ear.
I'm in my third week of taking Erivedge and just yesterday had a neck-to-knees muscle spasm during the stretching portion of a gym class yesterday; it brought me to tears! Am trying magnesium and making more gentle movements in class today.