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First seizure.

Posted by gmamrj @gmamrj, Apr 9 4:34pm

I had a seizure 2 months ago while on vacation Texas. Was the first seizure I had ever had. EEG, MRI, ekg, Ct , echo and lung xray were all done along with a multitude of blood work. All tests were negative. Drs did not think it was a seizure.
Two months later I had a second seizure here at home. Drs have put me on Keppra and told not to drive. I am a zombie. Told I need to see a neurologist.
Trying to get an appointment at Mayo.
Has anyone had an experience like this?

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methel | @methel | Jul 25 7:55pm
In reply to @jafar "Hello, I am new to epilepsy and am scared of its rapid progression. Mone tend to..." + (show)
Profile picture for jafar @jafar

Hello,
I am new to epilepsy and am scared of its rapid progression. Mone tend to start behind my left eye with twitching then progress down my face for 2-3 minutes. Had 4 in April, 9 in May, 20 in June and almost daily in July. Went to neurologist in June and have had EEG and brain scan which look normal. He just increased my Keppra dose from 1,000 to 2.500 two days ago. Too early to see if this does anything, but it does make me a bit tired and nauseous. I’m wondering if I should seek another opinion at this point. He is not sure what rype of seizure this is but I am fully vaccinated aware and have videos of many of them.

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Your doctor seems to be using the Keppra protocol that mine followed. Started low dose and then increased the dose when the seizures continued. I now am taking 1500 mg of extended release Keppra 2x a day. A heavy dose with the side effect of continual tiredness but it works where the lower doses did not. And the extended release Keppra works better for me than the straight formulation. In the meantime, it’s good to review the safety precautions needed to be safe during an unexpected seizure. And if the increased Keppra doesn’t work, then it might be time to ask for a referral to an epilepsy specialist.

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Profile picture for methel
methel | @methel | Jul 25 8:07pm
In reply to @jafar "Hello, I am new to epilepsy and am scared of its rapid progression. Mone tend to..." + (show)
Profile picture for jafar @jafar

Hello,
I am new to epilepsy and am scared of its rapid progression. Mone tend to start behind my left eye with twitching then progress down my face for 2-3 minutes. Had 4 in April, 9 in May, 20 in June and almost daily in July. Went to neurologist in June and have had EEG and brain scan which look normal. He just increased my Keppra dose from 1,000 to 2.500 two days ago. Too early to see if this does anything, but it does make me a bit tired and nauseous. I’m wondering if I should seek another opinion at this point. He is not sure what rype of seizure this is but I am fully vaccinated aware and have videos of many of them.

Jump to this post

I forgot to mention one other thing which helped when the seizures started. The doctor’s assistant worked with me to identify my seizure triggers. I learned that caffeine is a major trigger for me and so, when I quit the coffee, there was an instant improvement.

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