first doctor visit

Posted by ann0616 @ann0616, Feb 6, 2019

Good morning! I had my first appoint at UW Health Pulmonary Clinic yesterday. I was anxious as I had no idea how bad my CT scan was. I did really well on most of the breathing tests. Much better than someone with asthma should do. They did a sputum test a week ago. All three came back negative for MAC infection in the rapid smear but they said they could not run the culture as the sputum was too old (I did get it to them in the proper time frame). I am not sure why they could run a rapid smear but not a culture. They said they wanted the doctor to collect for another. He did not feel he had to check as I am not coughing much and not getting anything up. He said that since I feel well overall he did not want to put me through additional tests and would just redo a CT scan at six months. He said there were nodules which were probably scar tissue from whooping cough and pneumonia. He said my bronchiectasis is not that bad at the moment. He said of course if I started not feeling well I should get in before the six months. He was very thorough going through the breathing tests and CT scan with me. I was just wondering what your opinion was of the wait and watch. Thanks so much for any input!

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

@angiejohnson

@windwalker I already had the lobectomy on April 8. I would consider Mayo for second opinion on my continued treatment.

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@angiejohnson, Oops!! I dee you did post that to tdrell. Had you gotten a second opinion before you did that? Just curious. Are you feeling a lot better for doing it? It sounds like you are healing nicely. My middle right lobe has a big dead spot from the result of mac. The majority of my middle lobe is severely damaged & non-functioning. I wonder what another institution's train of thought would be on it.

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