Parkinsons caregivers support group

Posted by pookielightfoot @pookielightfoot, Nov 18, 2023

I want to find a caregivers support group for Parkinsons Disease. Can you help me?

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

Hello @pookielightfoot and welcome to the Parkinson's Support Group on Mayo Connect. I see that you are looking for a Caregiver's Support Group. Here on Connect we have many discussions for caregivers. Here is a link to all of those discussion groups:
https://connect.mayoclinic.org/group/caregivers/?pg=1#discussion-listview
And here is Caregiver's discussion group that is specifically for caregivers of Parkinson's patients.
https://connect.mayoclinic.org/discussion/parkinsons-with-diabetis-and-dialysis-end-of-life/
Please look through the discussions and see where your needs might be best met.

How long have you been a caregiver for a PD patient? What struggles are you facing at this point?

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I live in Michigan. I also belong to the MichiganParkinson Foundation which has support groups in many counties. At least 1 group is partly on line. I was asked to join. A few months ago I joined 2 different support groups. I go to both of them. THey are each different. My husband goes with me to the one support group he finds it better meets his needs. They have different speakers & topics of discussion from the Mayo clinic support group. I looked on line for local groups unsuccesfully. I asked my Parkinson movement specialist about support groups 2 years into the diagnosis & she told me about these groups. I wish I had joined sooner. I would check to see if this is available to you.

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I am looking for a support group f or caregivers in Maryland --in the Bethesda, Rockville area. Can you help me out? Thanks.
Carol

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My husband has Parkinson’s for 7 years now. He doesn’t really have tremors but stiffness and pain. He’s looking into DBT (he’s seeing his PD Dr. tomorrow).

Has anyone had DBT and needed an MRI down the road? How is that handled? Thanks in advance.

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@dlc1953

My husband has Parkinson’s for 7 years now. He doesn’t really have tremors but stiffness and pain. He’s looking into DBT (he’s seeing his PD Dr. tomorrow).

Has anyone had DBT and needed an MRI down the road? How is that handled? Thanks in advance.

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Thanks for the background on your husband's Parkinson's, @dlc1953. I hope the appointment goes well tomorrow.

Confirming if you are talking about deep brain stimulation (DBS)?

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@pookielightfoot

I am looking for a support group f or caregivers in Maryland --in the Bethesda, Rockville area. Can you help me out? Thanks.
Carol

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Parkinson’s Support Groups

Parkinson’s Carepartners Support Group in Chevy Chase - Virtual
Every Monday at 11 am

Please private message me if you would like the contact information for this group.

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@geronimo87

Parkinson’s Support Groups

Parkinson’s Carepartners Support Group in Chevy Chase - Virtual
Every Monday at 11 am

Please private message me if you would like the contact information for this group.

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@geronimo87 - Thanks so much for sharing this information for those who want to participate in the virtual support group.

Due to this portion of the Connect community guidelines, I've removed the personal phone number of the contact for the Parkinson's support group to protect the privacy of that individual: Feel free to introduce and talk about yourself. But for your safety and privacy, do not post personal information such as phone numbers, addresses, social security numbers or any other private information https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/.

Instead, I've edited the post to indicate members should private message you on Connect if they'd like the contact information for the support group. Thanks for your understanding.

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@lisalucier

@geronimo87 - Thanks so much for sharing this information for those who want to participate in the virtual support group.

Due to this portion of the Connect community guidelines, I've removed the personal phone number of the contact for the Parkinson's support group to protect the privacy of that individual: Feel free to introduce and talk about yourself. But for your safety and privacy, do not post personal information such as phone numbers, addresses, social security numbers or any other private information https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/.

Instead, I've edited the post to indicate members should private message you on Connect if they'd like the contact information for the support group. Thanks for your understanding.

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Greetings, Lisa. Thanks so much for clarifying the community guidelines. I was actually posting information that is listed on this public website:
https://www.visitingangels.com/aspenhill/articles/caregiver-support-groups-bethesda-maryland/26137
Please let me know if sharing contact info from a public website is okay. And thanks for being a moderator. It is much appreciated and I surely want to respect the rules of this forum.

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@geronimo87

Greetings, Lisa. Thanks so much for clarifying the community guidelines. I was actually posting information that is listed on this public website:
https://www.visitingangels.com/aspenhill/articles/caregiver-support-groups-bethesda-maryland/26137
Please let me know if sharing contact info from a public website is okay. And thanks for being a moderator. It is much appreciated and I surely want to respect the rules of this forum.

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Hi, @geronimo87 - I note in the link you provided this individual has already chosen to make their personal contact information public. So this should be no problem.

Does someone close to you have Parkinson's, geronimo87? If so, have you had the chance to attend a Parkinson's caregivers' support group?

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