Mayo Clinic Connect
Any one with this condition going through serious pain right now???
I have been dealing with this for over 20 years & am really having serious pain the last several days…
Liked by Anonymous
Yes, it’s bad–I can’t even concentrate long enough to spell it correctly–sorry Fibromyalsia..
I started having symptoms after hysterectomy 7 mos ago. Would love to share and listen to your experiences. Message me
Sorry to hear that you have to go through this also. I have been dealing with it for over 25 years. When I first started with the pain, I was tested for MS, had milograms, spinaltaps, you name it & I had it. 25 years ago there was no name for fibromyalsia. I was eventually diagnosed with myofibrositis, fibromyositls, whatever they could think of, I guess….. I guess it will be back to PT for me, I have tried everything else that I have used over the years, including doubling up on my fentynal patch & 750 vicodens…. ROM is not working, heat is not working, cold is not working, my infrared lamp is not working. Wish there was a miracle out there…. Sorry to sound so down–I’m just not generally in so much pain.
Hi, I’m also sorry that you have to go through all this pain. I was diagnosed 30 years ago at Mayo and like luvmychihuahuas, that was back when they still called it fibromyositis. I don’t know if it is the weather or stress or what, but I, too, have been going through so much pain, fatigue, and weakness over the last several months. Unfortunately, I can’t take any of the medicaitons they now have for fibromyalgia, I don’t tolerate them. I’m doing my best not to be too crabby around here, but somedays when I can’t do the stuff I want and/or need to do I do get a little frustrated. Like I said, I’ve had it for 30 years and I was very active during most of those years, working as a nurse, raising a family, taking care of other family members etc., Now, over the last few months, I’m lucky if I get showered and dressed on a daily basis. It’s been at least 5 years since I’ve had a flare like this – the good news is, it will eventually pass and I will be back to my normal, achy, ornrey, active self.
I feel exactly the same, Lucy Anna. Do you live in WI? I’m kind of thinking that it is the damp weather that we have been having–not sure, but that is my guess. It is so frustrating when you are used to being active & get to the point where taking a shower is a chore. Yesterday i had to force myself to shower & run to pick up prescriptions & a few groceries. It was a miserable trip. Hopefully tomorrow will be a better day…. I really wish that I could afford to move to a tropical climate. Whenever I had taken trips to Mexico, within a day, the pain almost disappears. It has been several years for me also since I have had a flare up this bad. Tomorrow my plan is to call my Dr. & see if I can get a referral to go back to PT. That will be my last resort to get on the road to feeling better. Thank goodness that my kids are grown & don’t have to deal with my crabbiness right now….!! I too worked & raised a family during the whole time. Did you go through the injections? I did that also & it just created more spasms, which in turn caused more pain. Wouldn’t you think that there would be something that would help people like us…
Do u know anything about filing for disability benefits? It is becoming impossible for me to work due to my fibromyalgia symptoms. I am considering filing for disability but It is very confusing. I think I am reading that
you can’t be working while waiting to be approved? Do you know if that is correct? I just don’t know how to survive without a check for awhile. seems like a no win situation
Liked by janasr
I hear you that is my feelings too. Everything will be okey .Try every possible way .
I am quite sure that you can be working when you file for a disability. Good luck with everything. I was a state employee for 34 years & retired @ 55 because I was no longer able to work because of the pain & our present guv’s take-aways. Let me know how your disability works out .
Hi, I was diagnose with fibromyalgia. I take as needed pain killers and my doctors are telling me to go out everyday and walk. I’ve not been able to do this yet. But I also have Lupus, so pain I know about and when it’s too painful I use ice and pain killers. Good luck, hope this helps.
I do the same. Thanx for your suggestions; however, right now nothing is helping. I have been dealing with this conditions for 25 + years & it has not been this bad in many, many years. I doubled up on my fentynal patch today hoping that would help, but doesn’t seem to be doing anything. Looks like I will have to see if I can get back into Pt next week. NOTHING else is working…
My Cymbalta use to work for me it helps my depression anxiety and pain it seems it’s not working . I will try to find another solution take care hang in there …
Hello,I feel your pain . Im sorry .Im have tingling in my body I have it too. I have chronic illness. Doctor said try exercise walking ,swimming , yoga even if your in pain /fatigue try it anyways drink lots of water . This is a frustrating illness and I’m angry I have ringing in the ear too .. I just have to think god will ease our pain. We just have to fight and continue to find solutions to our pain .Take always.
yes.have had many years experience dealing with pain of fibromyalgia.I have something that made a big difference for me and gave me some sort of quality of life.
What made the difference for you?
Just wondering if your doc has done any further testing lately? Perhaps there is other Rhematology issues that have surfaced in addition to the Fibro. Just a thought. Maybe discuss this and have the blood tests…I was misdiagnosed with Fibromylgia and I kept stating I dont fit the criteria but was brushed off. Once I went to the Rheumatologist I found help with properly diagnosing the issues I was having. Good Luck.
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