Fibromyasia

Posted by luvmychihuahuas @luvmychihuahuas, Feb 3, 2012

Any one with this condition going through serious pain right now???
I have been dealing with this for over 20 years & am really having serious pain the last several days...

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@luvmychihuahuas

Yes, it's bad--I can't even concentrate long enough to spell it correctly--sorry Fibromyalsia..

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Do u know anything about filing for disability benefits? It is becoming impossible for me to work due to my fibromyalgia symptoms. I am considering filing for disability but It is very confusing. I think I am reading that
you can't be working while waiting to be approved? Do you know if that is correct? I just don't know how to survive without a check for awhile. seems like a no win situation

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@luvmychihuahuas

Yes, it's bad--I can't even concentrate long enough to spell it correctly--sorry Fibromyalsia..

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I hear you that is my feelings too. Everything will be okey .Try every possible way .

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@line

Hi, I was diagnose with fibromyalgia. I take as needed pain killers and my doctors are telling me to go out everyday and walk. I've not been able to do this yet. But I also have Lupus, so pain I know about and when it's too painful I use ice and pain killers. Good luck, hope this helps.

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My Cymbalta use to work for me it helps my depression anxiety and pain it seems it's not working . I will try to find another solution take care hang in there ...

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@luvmychihuahuas

Yes, it's bad--I can't even concentrate long enough to spell it correctly--sorry Fibromyalsia..

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I am quite sure that you can be working when you file for a disability. Good luck with everything. I was a state employee for 34 years & retired @ 55 because I was no longer able to work because of the pain & our present guv's take-aways. Let me know how your disability works out .

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@powerofpositive

Just wondering if your doc has done any further testing lately? Perhaps there is other Rhematology issues that have surfaced in addition to the Fibro. Just a thought. Maybe discuss this and have the blood tests...I was misdiagnosed with Fibromylgia and I kept stating I dont fit the criteria but was brushed off. Once I went to the Rheumatologist I found help with properly diagnosing the issues I was having. Good Luck.

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Thank you, but yes, I have been tested for everything from MS to you name it...

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@dawnlowry

yes.have had many years experience dealing with pain of fibromyalgia.I have something that made a big difference for me and gave me some sort of quality of life.

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What made the difference for you?

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hi luvmychihuahuas, I am in bed this am after getting dressed to go meet friends for some volunteer work and having to go home discouraged and get into a hot shower nearly burning my backside because I can't get relief today. I am new to this stie but have become friends with one other person. I hear what you are saying. my story is similar to yours with diagnosis going on for a long time before they could reach a diagnosis...They too checked me for MS Lupus and Rheumatoid Arth, I finally got sent to two pain clinics and they began giving me different pain meds that didn't do much but take edge off...They bumped me up to Patch w norco for break thru pain. It was a diff. adjustment to stablize but when injections didn't offer much relief to the S.I.Joints they diagnosed Pelvic Pain & sent me to a female specialist for this is done from the inside out. ...this has flared everything again, and Im not so sure i can hang with this.I hear your pain and I empathize completely with what you are going thru. I find that one of the most frustrating things is having to get up and down from different positions and keep moving/resting. it is impossible to be in one place for too long and get anything done. Isolation is the other prob and then lack of friends getting it.
I was telling a friend this morning why i had to go home and he was sympathetic then a min later was asking if i was going to be there this evening. they just don't get it.
Please write to me I will take everything you say seriously and w compassion.

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@redocean

hi luvmychihuahuas, I am in bed this am after getting dressed to go meet friends for some volunteer work and having to go home discouraged and get into a hot shower nearly burning my backside because I can't get relief today. I am new to this stie but have become friends with one other person. I hear what you are saying. my story is similar to yours with diagnosis going on for a long time before they could reach a diagnosis...They too checked me for MS Lupus and Rheumatoid Arth, I finally got sent to two pain clinics and they began giving me different pain meds that didn't do much but take edge off...They bumped me up to Patch w norco for break thru pain. It was a diff. adjustment to stablize but when injections didn't offer much relief to the S.I.Joints they diagnosed Pelvic Pain & sent me to a female specialist for this is done from the inside out. ...this has flared everything again, and Im not so sure i can hang with this.I hear your pain and I empathize completely with what you are going thru. I find that one of the most frustrating things is having to get up and down from different positions and keep moving/resting. it is impossible to be in one place for too long and get anything done. Isolation is the other prob and then lack of friends getting it.
I was telling a friend this morning why i had to go home and he was sympathetic then a min later was asking if i was going to be there this evening. they just don't get it.
Please write to me I will take everything you say seriously and w compassion.

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Redocean, What did they diagnose you with?

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