Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Chronic Pain group.

@sandytoes14

I have been on Savella aka milnacipran and that helped. Now I am on Cymbalta and that helps a good deal. Otherwise, you sound much like me. I have chronic neck pain added to my story but only get 1 or 2 Vicodin per day but not even a whole months supply–I’m no addict, we have military (retired) insurance and the military health care is trying to paint spouses and retirees as opioid dependent.

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Hi Sandy, I was just reading through the comments on pain and fibro.. Anyone that has real cronic pain knows that we don’t even get close to feeling high on pain meds. With this big push on getting everyone off pain pills “carte blanche” is not fair. I’m still getting pain pills because of my spine surgeries (one more to go). However, my doctor is dying to stop prescribing them. Then what? The same people that convinced me to take 4 pills a day instead of “as needed’ now just wants me to just stop. Even though I don’t think I can make it without any help from pain meds. Every time I try to ask how to get help to get off the pills, they just blow me off. Mostly, they say just stop. What kind of professionals say that. If it was so easy there would not be so many non-sick people trying to do anything to get their hands on them. At my age and all the complications I have, I should be allowed to have some relief. Or any age for that matter. I don’t know who to turn to..
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@2122

I tried a diet plan that a doctor wrote and for me it worked. It had something to do with not eating anything from the night shade families such as anything with tomatoes, potatoes, etc. You do have to follow it exactly but it is worth it plus you can lose some unwanted inches as well.

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The auto immune solution …is a good book and talks about this

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@tonyc55

Try marijuana with lots of cbd

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so the CBD oil that you put under your tongue it is pure oil CBD is that a good one can you take that if you take other pills from the doctor and does it really help if so how you just don’t feel pain or it makes you numb I don’t know never try the stuff but I hear a lot about it a lot of people take it I guess please get back with me thanks

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@tonyc55

Try marijuana with lots of cbd

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so the CBD is a good one to try is the oil one good of that CBD oil I never try this stuff but I am in a lot of pain a lot because of my fibro and arthritis and other things please get back with me thanks

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@tonyc55

Try marijuana with lots of cbd

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@tonyc55, do you have experience or an opinion about CBD oil?

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@tonyc55

Try marijuana with lots of cbd

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Yes but finding out you should add a about 30%thc with it

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Wanda, I’m so sorry you have to struggle with this awful illness. Check out the 4-7-8 breathing technique online. I especially like the YouTube videos where Dr. Andrew Weil demonstrates this simple relaxing technique. I find that it gives me a better sense of well being if I do it twice daily as recommended. Good luck. I am a chronic pain sufferer too.

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@andilynn

Wanda, I’m so sorry you have to struggle with this awful illness. Check out the 4-7-8 breathing technique online. I especially like the YouTube videos where Dr. Andrew Weil demonstrates this simple relaxing technique. I find that it gives me a better sense of well being if I do it twice daily as recommended. Good luck. I am a chronic pain sufferer too.

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Thank you for reminding me what at times has helped! Sometimes I can’t remember all that I’ve tried.

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@andilynn

Wanda, I’m so sorry you have to struggle with this awful illness. Check out the 4-7-8 breathing technique online. I especially like the YouTube videos where Dr. Andrew Weil demonstrates this simple relaxing technique. I find that it gives me a better sense of well being if I do it twice daily as recommended. Good luck. I am a chronic pain sufferer too.

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@jamesthee You took the words out of my mouth! I went from carrying a sheet of paper to now carrying my own home medical file for my conditions and treatments with me to doctor appointments. For instance, if my visit is about fibromyalgia, I take a folder on everything I take, have taken or done for fibro. I noticed that you posted a while ago about leg and thigh pain. What have you discovered as the cause?

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Thank you for thinking of me. The MRI’s showed no significant stenosis. We’re thinking now that it is sacrililiosis (sp?) because of butt pain and leg pain and weakness. Anti inflammatories seem to be the best bet for me right now. I also see a chiro regularly. I had extensive back fusion some time ago (L2-S1) with rods so it’s a mixed problem. I’m not sure anymore, specifically. I still find Gababentin very helpful along with moist heat. I also find it comforting to know that I’m not alone and that its significance pales compared to the extreme suffering of others. Take care.

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@tonyc55

Try marijuana with lots of cbd

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what is cbd? a special nutrient in marijuana? I have access to a dispensery grower for medicinal and I don’t smoke so he make me flavored suckers. that’s why I ask..

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@tonyc55

Try marijuana with lots of cbd

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Same here in CA. And they pee test you at your appts.

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