clownscrytoo
@clownscrytoo
@clownscrytoo
Posts: 16
Joined: Oct 19, 2016
fibromyalgia pain
Is there anyone here that suffers from fibro? I had the ‘tender spot test’ several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I’m alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I’ve tried them all, I think), or anything, besides hobbies and such? I’ve tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn’t help, but I’m hoping one of our members might have some knowledge that could help. I’d really appreciate it.
hugz,
Clownscrytoo
Liked by Jen, Alumna Mentor, Mamacita, Volunteer Mentor, basslakeview, Parus ... see all
Try marijuana with lots of cbd
what is cbd? a special nutrient in marijuana? I have access to a dispensery grower for medicinal and I don’t smoke so he make me flavored suckers. that’s why I ask..
Try marijuana with lots of cbd
Same here in CA. And they pee test you at your appts.
Liked by wandamiller
robbinr
@robbinr
@robbinr
Posts: 108
Joined: Mar 21, 2016
Yoga. Restorative Yoga. Use lots of props. It hurts more at first and then your body starts working out the kinks and wayward signals that Fibro produces. That, acupuncture, massage, and CBD ointments are the things I’ve found to work. If you can work on your sleep issues (even if it means taking a pill) you’ll find that you can cope so much better. No Sleep=No Healing. Regards, Robbinr
basslakeview
@basslakeview
@basslakeview
Posts: 149
Joined: Feb 15, 2017
I was diagnosed in 1991 after suffering from a flu virus. Its like I recovered from the fever and was left with the pain I had from the flu. (I suppose thats why i think it was brought on by the flu.)
I also take pain medication, but because I only have one kidney (lost one in 1999 because of a benign oncocytoma tumor) , my nephrologist said not to take any anti inflammatory drugs. Ibuprofen was the only thing that helped my pain so I was told by a general practitioner (before my kidney tumor) I could take up to 6 a day so that’s what I took for too many ‘years.’ One of my surgeons that removed the kidney said that could have been the cause of the tumor, so, after that long explanation, my advise to you…just be careful about your kidneys and liver. I was told some meds filter through one or the other.
After that scare and the recom. to watch what drugs i took, i have ended up taking Methadone (an opiod drug). It works better for me than the one i was on before (Vicoden). I don’t get the highs I used to get from the Vicoden and it lasts longer.
Kelly, Alumna Mentor
@kdubois
@kdubois
Posts: 290
Joined: Mar 24, 2016
robbinr
@robbinr
@robbinr
Posts: 108
Joined: Mar 21, 2016
I was diagnosed in 1991 after suffering from a flu virus. Its like I recovered from the fever and was left with the pain I had from the flu. (I suppose thats why i think it was brought on by the flu.)
I also take pain medication, but because I only have one kidney (lost one in 1999 because of a benign oncocytoma tumor) , my nephrologist said not to take any anti inflammatory drugs. Ibuprofen was the only thing that helped my pain so I was told by a general practitioner (before my kidney tumor) I could take up to 6 a day so that’s what I took for too many ‘years.’ One of my surgeons that removed the kidney said that could have been the cause of the tumor, so, after that long explanation, my advise to you…just be careful about your kidneys and liver. I was told some meds filter through one or the other.
After that scare and the recom. to watch what drugs i took, i have ended up taking Methadone (an opiod drug). It works better for me than the one i was on before (Vicoden). I don’t get the highs I used to get from the Vicoden and it lasts longer.
I was diagnosed with Fibro in 1995 after spending many years wondering why I was so tired and hurt all over.
Recently, I had a really long flare of pain, but as it started to subside I felt like all my joints were sore and swollen.
As the swelling started to recede, I have had a couple of weeks of bladder urgency (no pain). I can’t go an hour without a bathroom.
Has anyone else had something like that happen?
Robbinr
Justin McClanahan
@JustinMcClanahan
@JustinMcClanahan
Posts: 1647
Joined: Jun 01, 2016
I was diagnosed in 1991 after suffering from a flu virus. Its like I recovered from the fever and was left with the pain I had from the flu. (I suppose thats why i think it was brought on by the flu.)
I also take pain medication, but because I only have one kidney (lost one in 1999 because of a benign oncocytoma tumor) , my nephrologist said not to take any anti inflammatory drugs. Ibuprofen was the only thing that helped my pain so I was told by a general practitioner (before my kidney tumor) I could take up to 6 a day so that’s what I took for too many ‘years.’ One of my surgeons that removed the kidney said that could have been the cause of the tumor, so, after that long explanation, my advise to you…just be careful about your kidneys and liver. I was told some meds filter through one or the other.
After that scare and the recom. to watch what drugs i took, i have ended up taking Methadone (an opiod drug). It works better for me than the one i was on before (Vicoden). I don’t get the highs I used to get from the Vicoden and it lasts longer.
Hello @robbinr. I was unable to find anyone else who has talked about this experience on Connect. However, with a little research, I don’t think your situation is unique. Although brief, here is an article from PubMed, https://www.ncbi.nlm.nih.gov/pubmed/26259883.
Liked by basslakeview
robbinr
@robbinr
@robbinr
Posts: 108
Joined: Mar 21, 2016
I was diagnosed in 1991 after suffering from a flu virus. Its like I recovered from the fever and was left with the pain I had from the flu. (I suppose thats why i think it was brought on by the flu.)
I also take pain medication, but because I only have one kidney (lost one in 1999 because of a benign oncocytoma tumor) , my nephrologist said not to take any anti inflammatory drugs. Ibuprofen was the only thing that helped my pain so I was told by a general practitioner (before my kidney tumor) I could take up to 6 a day so that’s what I took for too many ‘years.’ One of my surgeons that removed the kidney said that could have been the cause of the tumor, so, after that long explanation, my advise to you…just be careful about your kidneys and liver. I was told some meds filter through one or the other.
After that scare and the recom. to watch what drugs i took, i have ended up taking Methadone (an opiod drug). It works better for me than the one i was on before (Vicoden). I don’t get the highs I used to get from the Vicoden and it lasts longer.
Wow, thanks Justin,
That is amazing to find such detailed a survey.
Regards,
Robbin
Justin McClanahan
@JustinMcClanahan
@JustinMcClanahan
Posts: 1647
Joined: Jun 01, 2016
I was diagnosed in 1991 after suffering from a flu virus. Its like I recovered from the fever and was left with the pain I had from the flu. (I suppose thats why i think it was brought on by the flu.)
I also take pain medication, but because I only have one kidney (lost one in 1999 because of a benign oncocytoma tumor) , my nephrologist said not to take any anti inflammatory drugs. Ibuprofen was the only thing that helped my pain so I was told by a general practitioner (before my kidney tumor) I could take up to 6 a day so that’s what I took for too many ‘years.’ One of my surgeons that removed the kidney said that could have been the cause of the tumor, so, after that long explanation, my advise to you…just be careful about your kidneys and liver. I was told some meds filter through one or the other.
After that scare and the recom. to watch what drugs i took, i have ended up taking Methadone (an opiod drug). It works better for me than the one i was on before (Vicoden). I don’t get the highs I used to get from the Vicoden and it lasts longer.
I wish I could take all of the credit, but we have to thank @colleenyoung for the heavy lifting.
Liked by basslakeview
wandamiller
@wandamiller
@wandamiller
Posts: 26
Joined: Jan 19, 2016
I was diagnosed in 1991 after suffering from a flu virus. Its like I recovered from the fever and was left with the pain I had from the flu. (I suppose thats why i think it was brought on by the flu.)
I also take pain medication, but because I only have one kidney (lost one in 1999 because of a benign oncocytoma tumor) , my nephrologist said not to take any anti inflammatory drugs. Ibuprofen was the only thing that helped my pain so I was told by a general practitioner (before my kidney tumor) I could take up to 6 a day so that’s what I took for too many ‘years.’ One of my surgeons that removed the kidney said that could have been the cause of the tumor, so, after that long explanation, my advise to you…just be careful about your kidneys and liver. I was told some meds filter through one or the other.
After that scare and the recom. to watch what drugs i took, i have ended up taking Methadone (an opiod drug). It works better for me than the one i was on before (Vicoden). I don’t get the highs I used to get from the Vicoden and it lasts longer.
Does anyone have any idea how to get rid ar at least alleviate inflammation? I feel like my body is burning itself up from inside.
wandamiller
@wandamiller
@wandamiller
Posts: 26
Joined: Jan 19, 2016
Wanda, I’m so sorry you have to struggle with this awful illness. Check out the 4-7-8 breathing technique online. I especially like the YouTube videos where Dr. Andrew Weil demonstrates this simple relaxing technique. I find that it gives me a better sense of well being if I do it twice daily as recommended. Good luck. I am a chronic pain sufferer too.
I’ll check it out. I’m sick of it all. My family and friends dont understand it. They think im a hypochondriac. Lately I’ve been suffering from inflammation everywhere. Even my stomach! Istarted getting horrible squeezing pain around my stomach area. Ive had enough! Test after test..I’m tired!
Kelly, Alumna Mentor
@kdubois
@kdubois
Posts: 290
Joined: Mar 24, 2016
I was diagnosed in 1991 after suffering from a flu virus. Its like I recovered from the fever and was left with the pain I had from the flu. (I suppose thats why i think it was brought on by the flu.)
I also take pain medication, but because I only have one kidney (lost one in 1999 because of a benign oncocytoma tumor) , my nephrologist said not to take any anti inflammatory drugs. Ibuprofen was the only thing that helped my pain so I was told by a general practitioner (before my kidney tumor) I could take up to 6 a day so that’s what I took for too many ‘years.’ One of my surgeons that removed the kidney said that could have been the cause of the tumor, so, after that long explanation, my advise to you…just be careful about your kidneys and liver. I was told some meds filter through one or the other.
After that scare and the recom. to watch what drugs i took, i have ended up taking Methadone (an opiod drug). It works better for me than the one i was on before (Vicoden). I don’t get the highs I used to get from the Vicoden and it lasts longer.
The acupuncture I’ve been doing since early January also alleviates my inflammation. The term they use is actually called internal “heat” that they are helping the body release.
robbinr
@robbinr
@robbinr
Posts: 108
Joined: Mar 21, 2016
One little known inflammatory is artificial sugars, like Splenda or Sweet-n-Low. I’ve known folks to stop using those and have a complete reversal of inflammation. Pears are supposed to be anti-inflammatory. Don’t give up! It is just a mystery to be solved. Robbinr
Liked by Kelly, Alumna Mentor
robbinr
@robbinr
@robbinr
Posts: 108
Joined: Mar 21, 2016
I was diagnosed in 1991 after suffering from a flu virus. Its like I recovered from the fever and was left with the pain I had from the flu. (I suppose thats why i think it was brought on by the flu.)
I also take pain medication, but because I only have one kidney (lost one in 1999 because of a benign oncocytoma tumor) , my nephrologist said not to take any anti inflammatory drugs. Ibuprofen was the only thing that helped my pain so I was told by a general practitioner (before my kidney tumor) I could take up to 6 a day so that’s what I took for too many ‘years.’ One of my surgeons that removed the kidney said that could have been the cause of the tumor, so, after that long explanation, my advise to you…just be careful about your kidneys and liver. I was told some meds filter through one or the other.
After that scare and the recom. to watch what drugs i took, i have ended up taking Methadone (an opiod drug). It works better for me than the one i was on before (Vicoden). I don’t get the highs I used to get from the Vicoden and it lasts longer.
The use of Moxa is very effective for inflammation when getting acupuncture. Thanks for the reminder on how effective acupuncture is! Robbinr
Liked by Kelly, Alumna Mentor
@jamesthee
Thank you for thinking of me. The MRI’s showed no significant stenosis. We’re thinking now that it is sacrililiosis (sp?) because of butt pain and leg pain and weakness. Anti inflammatories seem to be the best bet for me right now. I also see a chiro regularly. I had extensive back fusion some time ago (L2-S1) with rods so it’s a mixed problem. I’m not sure anymore, specifically. I still find Gababentin very helpful along with moist heat. I also find it comforting to know that I’m not alone and that its significance pales compared to the extreme suffering of others. Take care.
Liked by Jen, Alumna Mentor