Fibromyalgia and radiation

I had a meningioma removed about 7 years ago. I had a series of 30 rad treatments to get rid of any remaining bits. All through the treatment, I was still working full time. I felt pretty good even though my hair fell out on that side in week two. It wasn't until a couple of weeks after, that I started to feel tired and dragging. I got chronic fatigue syndrome and finally full blown fibromyalgia. Researching on my own, I found that both of them often occur after a bad injury. Brain tumor and other cancer removal and radiation treatments are definitely injurious. Depression can also affect your energy and defenses. Take care of yourself and don't push.

Hi
Thank you for sharing your insight. I think it's funny that they tell you you'll only have a slight fatigue for 3 weeks and it is so not the truth after radiation. My spine also fractured this April from the radiation cuz I have osteopenia I didn't do anything it just fractured. I'm trying my best to get my health back I just finished physio by go to the gym every two days just to walk I'm doing one cardio class which is murder but I'm doing it and it's not real difficult. My blood work has finally come up I was anemic after radiation but doing supplements has helped. I have lived with fibro since I was 30 and it has never been this debilitating but I guess we just have to keep plugging forward I hope that you start to feel better

I do know that stress can make Phibro worse.

Hi
Yes I know that I'm well aware of that let's just say prior to cancer my fibro was very good then they took me off HRT which caused me to go into horrid menopause so all the factors add up my nervous system is crap I just saw my naturopath. Trying to get on the proper medication is like pulling your hair out in Canada because it's frustrating trying to see a physician

I've had fibromyalgia then two years later had Chronic Fatigue Syndrome. Sometimes when our immune system is compromised, such as the radiation, it allows other disease to appear. I took amitriptyline - 25 mg then 10mg if needed daily. That was many years ago. I'm still taking the amitriptyline. As long as I do the fatigue is manageable and usually not present. This may not be your case, but I was so tired I had to take half-days at work for 3 months. So when I hear heavy fatigue CFS always comes to mind. Good luck to you and I hope you get fixed, whatever the problem is.

Hi
prior to radiation I felt fine through my two surgeries fine during radiation then 3 weeks later bam it has not let up a little but not a lot also. I went on Zoloft in May 25 mg it was working pretty well I don't really want to increase it but it has helped my anxiety my biggest problem is sleep because I cannot take my cyclobenzaprine because of the Zoloft I've tried trazodone that's horrible my naturopath just put me back on 5-HTP 50 mg which always worked well in the past so I'm trying that. I do belong to a zoom cancer group which is amazing breast cancer.org anyone can join at any stage they do meetings once a week online I've gotten a lot of info from that and help from other women with what they've gone through
It just frustrates me that doctors don't recognize fibromyalgia getting worse after radiation it's annoying. My radiologist told me I'd have a little fatigue for 3 weeks when I called back a couple months later and talk to the radiation nurse she laughed and she said try a year to five like man crazy. If if I can get my sleep back in check my fibro will settle, fingers crossed. Thank you for sharing your story. I didn't just lose my best friend last year I also lost my brother-in-law died from a heart attack he was young then my mom's sister died the day before my best friend died then I had another girlfriend commit suicide a month later so the stress and trauma of all of that I'm sure has really added to my mental health I just finished counseling but I want to go back into it when I can afford it. I just miss who I was prior to cancer

Hi
Can you tell me how they diagnosed CFS and also what you did to overcome it and how long it took
Thks