Where do you turn when you've tried many Fibromyalgia medications?

Posted by lvl @lvl, Jun 7, 2024

I’ve been prescribed many things and tried so much for my pain which is unbearable. Can anyone share what works for them best?

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@genles1

I’ve tried all the meds and they were either ineffective or I had severe side effects. Vicodin has helped me but I try to only take it during extreme flare ups. My Dr finally agreed after I tried everything else.

It’s very depressing and difficult when flare ups start. I tried Gabapentin but it makes me suicidal. There was one drug that worked, it may have been Duloxetine but I had an anaphylactic reaction.

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I agree and with you 100%. That Gabapentin is one horrible medication. I had similar side effect. I sympathize.

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@pollyperf

I understand. I tried all the meds they gave me and couldn’t tolerate them (and have a life). One doctor told me HE didn’t want me to have the Norco. I’m afraid I went ballistic on him and among other things asked (so the drug addicts van have it, but I can’t? It was him and not the Insurance he works for. He retired and I went to another doctor who asked who authorized Norco. Turns out the old doctor was the go-to doctor to ok meds. You have to fight for yourself and what is right for you. I’m past your age. I really do Understand the opioid concern, but don’t put me in that box.

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I use THC legally in Iowa

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Really haven’t tried it. Too expensive to take all the time in CA.

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@beejenigma

I use THC legally in Iowa

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When it was first legalized in Iowa, my doctor suggested I try it. I got my card from the state for $100 then spent close to $1000 on several formulations of thc and cbd. Got not one iota of pain relief. My friend who used marijuana in college and after, said you need
"real weed" to be effective for pain and what we get isn't potent enough. I don't know not having participated.

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