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jlor
@jlor

Posts: 19
Joined: Feb 26, 2018

feet neuropathy

Posted by @jlor, Mon, Feb 26 4:02pm

I have neuropathy, primarily my right foot bothers me a lot, feel I'm wearing a. Rey tight shoe, burning and tingling, it's terrible.
Are there any supplements to take to help with this, mine started 14 months ago, however, it went away last June and returned in December ?.

REPLY

Hello @jlor, welcome to Mayo Connect. We are glad you found us and hoping you can find some answers. Can I ask how you found out you have neuropathy in your feet? Did your doctor have any nerve tests done to determine if you have neuropathy?

Mayo Clinic has a symptom checker that you may want to take a look at:
https://www.mayoclinic.org/symptom-checker/foot-pain-or-ankle-pain-adult/related-factors/itt-20009075

Also, burning/tingling feet can be an indication of diabetic neuropathy if you have diabetes. I'm tagging @gman007 and @jimhd to see if they have any suggestions. In the meantime you might want to read through the active discussion "Living with Neuropathy – Welcome to the group". Here is the link to the discussion:
https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/bookmark/?ajax_hook=action&_wpnonce=12a348c300

John

Let me add my welcome to John's. I am asking only because you said it went away between June and December; did you add or stop any medicines around those time frames? Any activity during those 6 mos. that were different than your norm? I have very minimal symptoms as I have not been diagnosed with diabetes for a bunch of years and it has stayed pretty well controlled. As John said though, you will find some very valuable answers from the members.

@johnbishop

Hello @jlor, welcome to Mayo Connect. We are glad you found us and hoping you can find some answers. Can I ask how you found out you have neuropathy in your feet? Did your doctor have any nerve tests done to determine if you have neuropathy?

Mayo Clinic has a symptom checker that you may want to take a look at:
https://www.mayoclinic.org/symptom-checker/foot-pain-or-ankle-pain-adult/related-factors/itt-20009075

Also, burning/tingling feet can be an indication of diabetic neuropathy if you have diabetes. I'm tagging @gman007 and @jimhd to see if they have any suggestions. In the meantime you might want to read through the active discussion "Living with Neuropathy – Welcome to the group". Here is the link to the discussion:
https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/bookmark/?ajax_hook=action&_wpnonce=12a348c300

John

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John, a nerve study was done by two neurologists and the diagnosed sensory neuropathy.
Thanks for the info.
No, I'm not diabetic.

@gman007

Let me add my welcome to John's. I am asking only because you said it went away between June and December; did you add or stop any medicines around those time frames? Any activity during those 6 mos. that were different than your norm? I have very minimal symptoms as I have not been diagnosed with diabetes for a bunch of years and it has stayed pretty well controlled. As John said though, you will find some very valuable answers from the members.

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Well. The medicines they had me on, lyrica, gabapentin, did not do anything for me. So dr said to stop.
They did spinal MRI, found nothing, and all blood work was ok. I purchased the quell unit last year, it helped a lot,
Bu now, it is not helping. They discovered a brain hematoma in brain scar, had two surgeries last year, June and September, I have recovered, but nothing to do with neuropathy. It just went away and came back. And no, same activity . I also suffer from high blood preassure and anxiety.

Greetings @jlor
My name is Darlia and I have a rare ANTIBODY, called FGFR3 ANTIBODY GENE which is the cause of my Peripheral Neuropathy. It's also the cause of my Gastroparesis (the Drs all say this for both as until the antibody was discovered, it was idiopathic for both)
So if you ask your Neurologist to do the blood test to look for this antibody, you may find out this to be the source. If you are looking for more on this, visit my link here on Connect for the FGFR3 Antibody where I've posted more about this as well as others who have it too.
Hope this helps!
Darlia

Welcome, @jlor

I have the burning pain in both of my feet, along with numbness and pins and needles up to my knees. I have small fiber peripheral neuropathy and autonomic neuropathy, as well. My pain level was greatly reduced when I had a spinal cord stimulator implant last year in June. I still have pain if I walk or stand on hard surfaces for very long at a time, and I put as much cushioning in my shoes as I can.

If your feet hurt from having blankets on them, you could get a blanket lifter to keep the bedding off your feet. My feet sometimes hurt where they rest on the bed. I have a feather pillow to rest them on, which often helps.

My pain is in the balls of my feet and my toes. My heels hurt, as well, but not as much.

Have you found things that relieve the pain, whether it's medication or mechanical things like a blanket lifter?

I suppose that by now you've found the discussion about neuropathy in the chronic pain group. It's an active discussion, with a number of people who have shared their experiences and asked lots of questions.

Jim

@jimhd

Welcome, @jlor

I have the burning pain in both of my feet, along with numbness and pins and needles up to my knees. I have small fiber peripheral neuropathy and autonomic neuropathy, as well. My pain level was greatly reduced when I had a spinal cord stimulator implant last year in June. I still have pain if I walk or stand on hard surfaces for very long at a time, and I put as much cushioning in my shoes as I can.

If your feet hurt from having blankets on them, you could get a blanket lifter to keep the bedding off your feet. My feet sometimes hurt where they rest on the bed. I have a feather pillow to rest them on, which often helps.

My pain is in the balls of my feet and my toes. My heels hurt, as well, but not as much.

Have you found things that relieve the pain, whether it's medication or mechanical things like a blanket lifter?

I suppose that by now you've found the discussion about neuropathy in the chronic pain group. It's an active discussion, with a number of people who have shared their experiences and asked lots of questions.

Jim

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Jim, the funny thing, if it is funny, is that I'm able to sleep well at night. I wear the quell unit, it helped last year , not helping much now, it is basically like a distraction. Have tried lyrica, gabapentin, last year, now taking duloxetine and tramadol. No help so far.
Was looking into the implant. Was looking into the BURSTDR STIMULATION,
Also driving is becoming very painful, as it is basically my right foot. tested negative for small fiber neuropathy last year. Again, these symptoms went away from June to December last year. I'll try anything to get some relief.

Hi Jim, I have similar issues. My specialist at UofTX Medical school placed me on Cellcept, 2,000mg daily. It is an immune suppressant and I've been on it for 2 years. My pain, feet and hands, has much improved. I also take 600mg of Gabapentin daily. But I am left with weakness and incredible balance issues. (4 falls, hip replacement, broken arm and foot and 5 cracked vertebrates. She is now considering infusions of forgot name. Hope this info helps.

@jimhd

Welcome, @jlor

I have the burning pain in both of my feet, along with numbness and pins and needles up to my knees. I have small fiber peripheral neuropathy and autonomic neuropathy, as well. My pain level was greatly reduced when I had a spinal cord stimulator implant last year in June. I still have pain if I walk or stand on hard surfaces for very long at a time, and I put as much cushioning in my shoes as I can.

If your feet hurt from having blankets on them, you could get a blanket lifter to keep the bedding off your feet. My feet sometimes hurt where they rest on the bed. I have a feather pillow to rest them on, which often helps.

My pain is in the balls of my feet and my toes. My heels hurt, as well, but not as much.

Have you found things that relieve the pain, whether it's medication or mechanical things like a blanket lifter?

I suppose that by now you've found the discussion about neuropathy in the chronic pain group. It's an active discussion, with a number of people who have shared their experiences and asked lots of questions.

Jim

Jump to this post

@jlor

I have the Burst DR stimulator. The only concern I have is that the last time Kevin adjusted it, he said that the next step is to change the mode to a setting that would mean feeling the vibration all the time, which I thought I was avoiding by choosing the Burst DR. I might have to do that but I intend to put it off as long as possible. I'm treating the residual pain with morphine sulfate contin, at a low dose right now.

Jim

@klaus

Hi Jim, I have similar issues. My specialist at UofTX Medical school placed me on Cellcept, 2,000mg daily. It is an immune suppressant and I've been on it for 2 years. My pain, feet and hands, has much improved. I also take 600mg of Gabapentin daily. But I am left with weakness and incredible balance issues. (4 falls, hip replacement, broken arm and foot and 5 cracked vertebrates. She is now considering infusions of forgot name. Hope this info helps.

Jump to this post

@klaus

I'm getting off Gabapentin in a few days, been weaning off it. I felt it was making me think less clearly, even at a low starting dose. Cellcept is a new one for me. I'll research it before my next appointment with the neurologist.

Jim

@klaus

Hi Jim, I have similar issues. My specialist at UofTX Medical school placed me on Cellcept, 2,000mg daily. It is an immune suppressant and I've been on it for 2 years. My pain, feet and hands, has much improved. I also take 600mg of Gabapentin daily. But I am left with weakness and incredible balance issues. (4 falls, hip replacement, broken arm and foot and 5 cracked vertebrates. She is now considering infusions of forgot name. Hope this info helps.

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Jim, pls keep me updated on what you find out on Cellcept. I've been on this for several years and recently I started backing off with no change noticed.

@klaus

Hi Jim, I have similar issues. My specialist at UofTX Medical school placed me on Cellcept, 2,000mg daily. It is an immune suppressant and I've been on it for 2 years. My pain, feet and hands, has much improved. I also take 600mg of Gabapentin daily. But I am left with weakness and incredible balance issues. (4 falls, hip replacement, broken arm and foot and 5 cracked vertebrates. She is now considering infusions of forgot name. Hope this info helps.

Jump to this post

Klaus, what were you diagnosed for?

Hi, I have peripheral neuropathy, vasculitis, and essential thrombocythemia, among other issues that aren't pertinent here. The Cellcept is treatment for the neuropathy and vasculitis, and the thrombocythemia is treated by hydroxyurea (kills platelets to keep them under control.)

@johnbishop

Hello @jlor, welcome to Mayo Connect. We are glad you found us and hoping you can find some answers. Can I ask how you found out you have neuropathy in your feet? Did your doctor have any nerve tests done to determine if you have neuropathy?

Mayo Clinic has a symptom checker that you may want to take a look at:
https://www.mayoclinic.org/symptom-checker/foot-pain-or-ankle-pain-adult/related-factors/itt-20009075

Also, burning/tingling feet can be an indication of diabetic neuropathy if you have diabetes. I'm tagging @gman007 and @jimhd to see if they have any suggestions. In the meantime you might want to read through the active discussion "Living with Neuropathy – Welcome to the group". Here is the link to the discussion:
https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/bookmark/?ajax_hook=action&_wpnonce=12a348c300

John

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John, I saw a new neurologist on Monday, he performed an EMG, he is from an accredited a University medical division, said my numbers were those from a 20 year old, saw no sign of neuropathy, so why the burning feet, has even gabapentin?

@johnbishop

Hello @jlor, welcome to Mayo Connect. We are glad you found us and hoping you can find some answers. Can I ask how you found out you have neuropathy in your feet? Did your doctor have any nerve tests done to determine if you have neuropathy?

Mayo Clinic has a symptom checker that you may want to take a look at:
https://www.mayoclinic.org/symptom-checker/foot-pain-or-ankle-pain-adult/related-factors/itt-20009075

Also, burning/tingling feet can be an indication of diabetic neuropathy if you have diabetes. I'm tagging @gman007 and @jimhd to see if they have any suggestions. In the meantime you might want to read through the active discussion "Living with Neuropathy – Welcome to the group". Here is the link to the discussion:
https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/bookmark/?ajax_hook=action&_wpnonce=12a348c300

John

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Hi @jlor — that's a good question. Did the neurologist give you any follow up suggestions or appointments as to what might be causing the burning feet? There is another discussion you might want to read through – Burning Feet Syndrome:

https://connect.mayoclinic.org/discussion/burning-feet-syndrome/bookmark/?ajax_hook=action&_wpnonce=6a528e59d5

Mayo Clinic does have some information here on Burning Feet Causes:
https://www.mayoclinic.org/symptoms/burning-feet/basics/causes/sym-20050809

Hope this helps.

John

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