Father has BOOP and Pulmonary Hypertension
Hi,
First of all, thank you all in advance for any insight.
I'm writing this on behalf of my father due to his limited English, and the goal is to see if there is anything that can be done to improve his condition and if going to Mayo Clinic to see a pulmonary specialist is worth a shot for him.
Some background:
My father had a bone marrow transplant in 2013 for leukemia. He has since then been cancer free, however the chemo and recovery process took quite a toll on him physically. Over time he developed BOOP, and it seems like his pulmonary condition has been deteriorating slowly over time. He now has to always have a oxygen concentrator with him with a nasal canula, and has to walk with a walker, otherwise he gets too tired and out of breath.
He can't be on a long prescription or heavy dose of prednisone, which seems to be the main treatment, because of his other conditions and his pulmonologist did not recommend it.
So this brings me to my main question: are there any other recommended treatments for this condition, are there any doctors at Mayo Clinic (Rochester) that specialize in treating BOOP, and what kind of treatments have actually worked for people other than prednisone?
Thank you all in advance!
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@oakbourne
What finally cured your COP?
I was put on Myfortic for my COP. 3600 mg a day