Families Walking Alongside Children With Epilepsy — Let's Connect

Hi Everyone!
Over time, I've noticed how many of us here are family members navigating epilepsy alongside a child — carrying not only the practical weight of seizure management, medications, and medical appointments, but also the emotional weight that comes with watching a child struggle.
So, I thought it'd be lovely to have a dedicated thread where these families can find one another, share experiences, and offer mutual support.
Whether your child was diagnosed as a newborn, a young child, or as a teenager, whether you're just beginning this journey or have been on it for years — this is a place to share what’s helped, what's been hard, and what you wish you'd known earlier.
I'm tagging some of the members I've come to know in our group who are on this journey — @keeg1010 @ebrown78 @happyrivers9 @laurabeck @hattenburg5 @debra54 @jdebono @sg325 @adoptivemother @kymill @mphaddican @minajo @zeljmar @acpsulli @sb7 @melissa1234 @tchandos @terin82 @bearbayou @frandex @jemollica — and I warmly invite every parent, grandparent, sibling, or caregiver to join this conversation. If I haven't mentioned your username, please know that was memory, not intention. This space belongs to all of you.
What's been your greatest challenge? And what's helped you most — practically and/or emotionally?
Chris