Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Posted by Merry, Volunteer Mentor @merpreb, Dec 6, 2018

It’s extremely difficult to face the fact of recurring cancers. After treatments we try and get away from it all and live our life. Then along comes another CT scan or PET scan and POW, you have to face another cancer. My reaction was developing PTSD.

You can read what I wrote in my blog: https://my20yearscancer.com/blog/

How do we cope? How do we react? What do we do?
How have you all reacted to another cancer? Or the possibility of another one? Has your “already compromised” mental health been able to deal with it? How? Or not?

All right folks, this is what I look like. Now you can put a face with the posts. I am about 98% gray and the blonde brightened up things and give it more body. Also letting the hair grow out.

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Beautiful and healthy looking @alamogal635

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@alamogal635

All right folks, this is what I look like. Now you can put a face with the posts. I am about 98% gray and the blonde brightened up things and give it more body. Also letting the hair grow out.

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Lovely!

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@alamogal635

All right folks, this is what I look like. Now you can put a face with the posts. I am about 98% gray and the blonde brightened up things and give it more body. Also letting the hair grow out.

Jump to this post

Thank you all!

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@alamogal635

All right folks, this is what I look like. Now you can put a face with the posts. I am about 98% gray and the blonde brightened up things and give it more body. Also letting the hair grow out.

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Beautiful @alamogal635. Here's how you can update your profile, including adding your picture and bio
– How to Update Your Profile https://connect.mayoclinic.org/page/about-connect/newsfeed-post/how-to-update-your-profile/

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@colleenyoung Thank you. Am saving this so I can refer to it as needed. Appreciate the help.

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@colleenyoung

Beautiful @alamogal635. Here's how you can update your profile, including adding your picture and bio
– How to Update Your Profile https://connect.mayoclinic.org/page/about-connect/newsfeed-post/how-to-update-your-profile/

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@colleenyoung Just got everything updated–so far as I am able. Thank you again.

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@alamogal635

All right folks, this is what I look like. Now you can put a face with the posts. I am about 98% gray and the blonde brightened up things and give it more body. Also letting the hair grow out.

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@alamogal635 You look fantastic. I wanted to have some color put on my gray hair, but research said to wait for a year since the new hair is fragile.🤨

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Have read that also. When the time comes, go for the color if it makes you feel better. Thank you. That was hair dresser fixed indwell never look that good when I fix it.

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Many of you know her as @merpreb or Merry, Volunteer Mentor. To survive lung cancer (twice) is one thing, but to live through it, to share your experience and support others, is another. Read about Merry’s journey with multifocal adenocarcinoma of the lung, on Mayo Clinic’s Social Media Network (MCSMN) blog, "Experts by Experience."

– Stopped in My Tracks – Experts by Experience https://socialmedia.mayoclinic.org/2019/04/19/stopped-in-my-tracks-experts-by-experience/

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Hello All:

For those of you living and/or visiting in Florida on July 16, I wanted to let you know about a symposium for cancer patients and their families. Here is a link with more information about, "Family First." It is available to all cancer patients and their families to learn more about the impact of a cancer diagnosis and to let you know that you are not alone. To register, or get more information, just click on the link below.

https://connect.mayoclinic.org/event/climb-at-mayo-clinic-florida-session-ii-1/?date=2019-07-16

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One good thing about my second positive biopsy is my family already knew how to help me. They immediately contacted me and encouraged me to talk about it. (I have 3 children, all married and each with 2 young children) So the night of that diagnosis we all gathered and talked. We kept it a light discussion but we all knew we were there to reassure each other that we were in this together. Seeing my children and grandchildren gathered together was what I needed.

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@alamogal635

All right folks, this is what I look like. Now you can put a face with the posts. I am about 98% gray and the blonde brightened up things and give it more body. Also letting the hair grow out.

Jump to this post

Pretty picture, I love your hair. I'm going gray also after covering my gray for 5 years. I love the time it saves and now I can wear a different color palette because other colors look better on me!

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Am such a newbie at all this I am not sure this si where my post should be. In march of 2019 had a VATS–right lobe removal– for a stage 1 lung cancer spot. Am doing well and since it was so small and caught early with no spread, my oncologist said we will wait until September for a CT. scan. That sounded great. I'm now thinking truly how soon really the CT scan will come in September and if I let myself, I start worrying about the "what ifs." Truth be told, I worry about recurrence, but often times try and NOT think about it. However, it looms in the back of my mind. I know that should cancer be found again, Iw ill deal with it, but the fear of it does NOT go away. Just wondering how others handle this sort of thing. Thank you all for your help.

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@alamogal635

Am such a newbie at all this I am not sure this si where my post should be. In march of 2019 had a VATS–right lobe removal– for a stage 1 lung cancer spot. Am doing well and since it was so small and caught early with no spread, my oncologist said we will wait until September for a CT. scan. That sounded great. I'm now thinking truly how soon really the CT scan will come in September and if I let myself, I start worrying about the "what ifs." Truth be told, I worry about recurrence, but often times try and NOT think about it. However, it looms in the back of my mind. I know that should cancer be found again, Iw ill deal with it, but the fear of it does NOT go away. Just wondering how others handle this sort of thing. Thank you all for your help.

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@alamogal635– Good morning. Oh boy do I know what you mean! lol. Although I feel great I'm still dreading my CT scan this Tuesday. After hearing that I have cancer 4 times I'm still never ready to hear it again. All I can say is that you get use to it- the dread, the heart palpitations, the night mares, the cold sweats…And you have to accept that it might come back and that you might have to go "through it all again". That doesn't make it easier, just more familiar. I think that I finally accepted it with my last one, almost 2 years ago. I also know that there are options and always new treatments.
The cancer world isn't any easy one. It's riddled with uncertainty, fear and looking over your shoulder. It's like having a bad dream follow you around, but with a truth attached to it. You can either chose to give yourself options in dealing with it, like you have, or deny it, like I did for quite a while. Does this make sense?.

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