Anyone else out there with extremely high lipoprotein (a)?

Thank you for your reply, I appreciate it. Encouraging that you have experienced no side effects. I'm very concerned about sleep disturbance because I am an insomniac and onlt get a few hours sleep every night. I'm wondering if they would want to put me on 40mg because my LDL is higher. I have a consultation with my pharmacist on Tuesday and a drs appt with the GP on the 3rd. I am hoping I can find a statin that works without side effects. Congratulations on such a significant drop in your LDL, that's wonderful. 🙂

As we are snowbirds, we will travel down Alaska- Florida in October and then get lab work done again and see if we still need Repatha, no side effects at all.

I’ve been scrambling for information myself these past few months. My Lp(a) is 240nmol, I’m 69, no family history, somewhat elevated LDL and cholesterol, treadmill/echo test was good (11.7 mets). Although statins can raise Lp(a), at present the only treatment strategy is to get all other risk factors under control. There are ongoing clinical trials testing drugs to lower Lp(a), I’m looking forward to learning those results.

I started generic Crestor 20mg in May and have had no side effects and my ldl dropped from 140 to 70. I regret not starting stations sooner given their low cost and absence of side effects.

Good luck with your conversations with your health team!

Hello, my Lp(a) is 271 and I also have very high genetic LDL. I am meeting with my pharmacist next week to discuss the best treatment for me and I have an appointment with my doc on the 3rd. I will definitely be put on a statin but I wanted to ask you how your husband handled the Repatha, did he experience any bad side effects and is it a drug that has to be continued until there are treatments approved for lowering Lp(a)? Thank you.

Hello - I was wondering if you have had any change in your Lp(a) number? I was just diagnosed with high LDL and my Lp(a) is 271 nmol/L I don't have anyone to talk to about this and I would appreciate hearing what others are doing and how they are dealing with it psychologically ? I feel so alone.

I am in Canada also and just learned my number today and it is 271 and I have high LDL so I will have to go on a statin for that. I have a consultation with my pharmacist on Tues and a Drs appt on the 3rd. I can feel my BP is high from worrying yet I can't stop worrying. I wish someone would offer some encouraging words. 🙁

Hello - I saw that you're Lp(a) is/was 295 I just got my number and I am 271 plus I have high LDL. I have a doctors apt on Sept 3rd and am having a consultation with my pharmacist on Tues because I thought she could direct me to the best course of action.- I am on the verge of tears right at the moment, I live by myself and don't have anyone who understands my concerns. I am needing some reassurance. I noticed that you said your Lp(a) "was"295 and not "is" 295, did you get it to lower? I will need to go on a statin for my high LDL which apparently will make my Lp(a) go higher.

Hi, can you please update us on how you are doing since you wrote your message?

Many - MANY - folks have much higher CAC scores and remain asymptomatic.

Rule out obvious things:
- stress test with echo
- peripheral artery disease test
- advanced lipids test
- statins to get LDL around 50
- icosapent ethyl to get triglycerides around 50
- make sure you are symptomatic ... no chest discomfort ever?
- keep up your great lifestyle

Unless you have bad results from the above, live your life.

I’m a 65 year old , that is very healthy, I weigh 115 walk and average of 5 to 9 miles a day. I try and eat healthy I don’t drink and smoke. I keep active. But the calcium score freaks me out. 600 is way too high. What can I do?